Results 141 to 150 of about 418,226 (300)

The International Consortium for Arthrogryposis: A Collaborative Framework for Early Detection, Care, Research, and Education

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Arthrogryposis multiplex congenita (AMC) is a group of rare congenital conditions, characterized by multiple joint contractures but may involve any body system including central nervous system. AMC is etiologically heterogeneous, with over 400 genetic and many non‐genetic causes implicated in its prenatal development.
Shahrzad Nematollahi, Noa Bouzaglo, Victoria Castillo Sanchez, Johanna I. P. de‐Vries, Klaus Dieterich, Alicja Fafara, Isabel Filges, Philip Giampietro, Göknur Haliloğlu, Judith Hall, Coleman Hilton, Remco Jansen, Valentina Maestri, Carolina Navalon, Daniel Natera de Benito, Tony Pan, Ani Samargian, Bonita Sawatzky, Harold van Bosse, Paul A. Trainor, Noémi Dahan‐Oliel   +20 more
wiley   +1 more source

Rationalizing manifold CSR dimensions-and-aspects towards sustainable business performance of small and medium-sized enterprises: Findings from pre-hoc and post-hoc analysis. [PDF]

PLoS One
Zhang G, Hossain GMS, Zhang J, Li M, Rahman MS, Firdaus HB.   +5 more
europepmc   +1 more source

What NGO leaders want for the year 2020 : report of the second survey of the 2020 Global Stakeholder Panel; NGO leaders' views on globalization, governance, and sustainability

, 2004
"Research conducted for the 2020 Fund by: GlobeScan Inc ...
GlobeScan, Global Stakeholder Panel
core  

Understanding Arthrogryposis Multiplex Congenita (AMC) Across the Lifespan: An Integrative Review of the Adult AMC Registry's Contributions With Lived Experience Partnerships

American Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT This reflective essay explores how collaborative work between researchers and adults living with Arthrogryposis Multiplex Congenita (AMC) has deepened and broadened our understanding of what it means to live with this rare condition. By intentionally integrating the lived experiences of individuals with AMC into research processes, the ...
Bonita J. Sawatzky, Megan K. MacGillivray, Tracey Schalk, William Bennett Mortenson   +3 more
wiley   +1 more source

Implementation Strategies for Strengthening Community and Stakeholder Engagement in Clinical and Translational Pilot Studies. [PDF]

J Particip Res Methods
Brewer SK, Chen S, Concannon TW, Sege RD, Rushforth A, Must A, Prokofieva N, Welch LC.   +7 more
europepmc   +1 more source

‘The Other Parent’: A Critical Policy Analysis of Fatherhood Discourses in the Australian Government's Paid Parental Leave Scheme

Australian Journal of Social Issues, EarlyView.
ABSTRACT The Australian paid parental leave (PPL) government scheme aims to support working parents through financial assistance and the promotion of gender equality in caregiving responsibilities. However, the scheme's implementation has been critiqued for its gendered design, which marginalises fathers and reinforces traditional gender roles.
Lily Lewington, Bernadette Sebar, Jessica Lee   +2 more
wiley   +1 more source

Retrospective Analysis of Stakeholder Engagement Activities in a Horizon Europe Multi-Actor Project: Evidence from KijaniSpace. [PDF]

Open Res Eur
Löytty TM.
europepmc   +1 more source

Transition From Primary to Secondary School: Igniting Attendance and Engagement Among Aboriginal and Torres Strait Islander Students Through National Policy Reform

Australian Journal of Social Issues, EarlyView.
ABSTRACT Australia's Closing the Gap reform aims to address disparities experienced by Aboriginal and Torres Strait Islander peoples. There are specific targets focussed on key educational transitions; yet, the transition to secondary education is not a targeted priority.
Azhar Hussain Potia, Kai W. Wheeler, Tracy Woodroffe, Karen Thorpe   +3 more
wiley   +1 more source

Mitigating the Burden of Seasonal Influenza on Cardiovascular Diseases in GCC Countries

Oman Medical Journal
Salah T. Al-Awaidy, Shadha S. Al Raisi, Fatima Al Slail, Dalal Abdulaziz Al Kathiry, Amaal Owaidh Al Mutairy, Ibtihal Mubarak Bin Jumah, Sahar M. Fadl, Kawther Osman Abdelfadil, Omer Kheir, Parvaiz A Koul, Najim Z. Alshahrani   +10 more
doaj   +1 more source

Navigating the Generosity of Medicines (Gen-MED): characterizing the complex relationships of medication donations in Japan through stakeholder and social network analysis. [PDF]

Front Public Health
Arakawa N, Namata C, Kobayashi E, Mamiya KT, Irie T, Egawa T, Watson KE.   +6 more
europepmc   +1 more source