Results 81 to 90 of about 3,364,813 (267)

Development and Preliminary Psychometric Evaluation of the Glycogen Storage Disease Type Ia Functional Assessment Diary (GSD FAD)

open access: yesPatient Preference and Adherence
Diane M Turner-Bowker,1 Shayna Egan,1 Jessica Butler,1 Adrian Jewett,2 Deepali Mitragotri,3 Brandon Foster,2 Alison Skrinar,1 Christina Theodore-Oklota1 1Endpoint Development and Strategy, Ultragenyx Pharmaceutical Inc., Novato, CA, USA; 2Patient ...
Turner-Bowker DM   +7 more
doaj  

Identifying one university’s prevailing online course accessibility issues

open access: yesEducational Technology & Society
Online and digital learning is becoming more widespread in a post-pandemic world. The rapid expansion of online education has introduced many accessibility concerns that may go unnoticed by inexperienced observers.
Madasen Briggs   +4 more
doaj   +1 more source

Development and Implementation of a Disease‐Targeted Storybook as a Clinical Tool for Children With Acute Leukemia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Although significant progress has been made in childhood leukemia survival, healthcare providers, and caregivers often face challenges in explaining this disease to patients. Disease‐targeted storybooks have been proposed as a tool to facilitate the understanding of diagnoses and treatment.
Nutvipha Ummartyotin   +6 more
wiley   +1 more source

Animal‐Assisted Activities With Therapy Dogs in Pediatric Oncology: A Multicenter Survey of the Current Status, Implementation, and Challenges in Germany, Austria, and Switzerland

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Animal‐assisted activities (AAAs) with therapy dogs have shown positive effects on patient well‐being and quality of life in various areas of medicine, including pediatric oncology. However, research on this topic is limited. The aim of this study is to present the current status of AAA in pediatric oncology in Germany, Austria, and
Jan‐Marius Wedig   +7 more
wiley   +1 more source

On Hierarchical Composite Endpoints in Pediatric Cancer Supportive Care: Illustrative Examples From Two Multi‐Center Phase‐III Randomized Clinical Trials

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric supportive care clinical trials often involve multiple clinically important outcomes, complicating trial interpretation. Hierarchical composite endpoints (HCEs) provide a framework to integrate key outcomes according to clinical importance.
Willem H. Collier   +11 more
wiley   +1 more source

Can Blockchain Advance Digital Social Responsibility in Enterprise Ecosystems? Evidence From 121 Implementation Projects

open access: yesHuman Behavior and Emerging Technologies
This study explores how blockchain solutions impact digital social responsibility within enterprise ecosystems by impacting sustainable business practices and enabling mechanisms for responsible governance and stakeholder participation.
Tan Gürpinar   +3 more
doaj   +1 more source

A Population‐Based Study on Childhood Aplastic Anemia—Incidence, Outcomes, and Health‐Related Quality of Life

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Childhood aplastic anemia (AA) is a rare disease, and both the disease itself and its treatment cause significant morbidity. We aimed to determine the contemporary incidence of childhood AA in Finland, to compare the clinical characteristics of AA against inherited bone marrow failure syndromes (IBMFS) and refractory cytopenia of ...
Lauri‐Matti Kulmala   +8 more
wiley   +1 more source

The Role of Chemotherapy in Pediatric Myoepithelial Carcinoma: A Systematic Review of the Literature

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Myoepithelial carcinoma (MEC) in pediatric patients is a rare and aggressive malignancy characterized by heterogeneous morphology and variable molecular features. The optimal role of chemotherapy remains unclear. We conducted a systematic review according to PRISMA 2020 guidelines to evaluate chemotherapy in pediatric and young‐adult patients ...
Marco Salvi   +7 more
wiley   +1 more source

Determining Parental Factors for Clinical Trial Attrition in Pediatric Acute Lymphoblastic Leukemia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Despite high enrollment rates on Children's Oncology Group (COG) protocols, attrition after initial consent is challenging, introducing bias and prolonging trial completion. While adult oncology literature has identified predictors of withdrawal, little is known about caregiver decision‐making for child participation in ...
Kimberly L. Stathas   +3 more
wiley   +1 more source

Ready, Set, Coach: A Mixed Methods Pilot Study Exploring the Impact of Implementation Coaching to Optimize the Allied Health Assistant Workforce in Public Health Settings

open access: yesJournal of Multidisciplinary Healthcare
Lucy Whelan,1 Sharon L McLean,1 Alexandra Edwards,1,2 Sandra Glagovski,1,2 Jessica Huglin,1 Janet E Golder,1,3 Abby M Foster1,2,4 1Allied Health Workforce Innovation, Strategy, Education & Research (WISER) Unit, Monash Health, Melbourne, VIC ...
Whelan L   +6 more
doaj  

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