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UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research [PDF]

International Journal of Population Data Science
Introduction The UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the UK's longitudinal research community, supporting the UK's unparalleled collection of Longitudinal Population Studies (LPS ...
Andy Boyd, Katharine Evans, Emma Turner, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, et al.   +9 more
doaj   +7 more sources

A novel protocol for a "Citizen Panel" for diverse Public and Participant Involvement in the review and development of the process to access data in the UK Longitudinal Linkage Collaboration Trusted Research Environment [PDF]

International Journal of Population Data Science
Background Researchers can apply to UK Longitudinal Linkage Collaboration (UK LLC) to access Longitudinal Population Study (LPS) data linked to health, non-health administrative and geo-environmental data.
Lidis Garbovan, Betty O. Idemudia, Robin Flaig, Kirsteen Campbell, Katharine Evans, Andy Boyd, Sarah Cunningham-Burley, Emma L. Turner   +7 more
doaj   +3 more sources

How public and participant voices have influenced the UK Longitudinal Linkage Collaboration and its Trusted Research Environment.

International Journal of Population Data Science, 2022
Objectives UK longitudinal population studies have complex governance structures and participant safeguards. As a new Trusted Research Environment (TRE) for >20 longitudinal studies, the UK Longitudinal Linkage Collaboration (UK LLC) must ensure ...
Kirsteen Campbell, Rebecca Whitehorn, Andy Boyd, Robin Flaig, Stela McLachlan, Christie Levein, Jacqueline Oakley, Sarah Chave, Michael Gregg, Della Ogunleye   +9 more
doaj   +2 more sources

The UK Longitudinal Linkage Collaboration legal & governance framework: managing ‘delegated and distributed’ data processing working with cross-sectorial data owners.

International Journal of Population Data Science, 2022
Objectives The UK Longitudinal Linkage Collaboration (UKLLC) was established to link and integrate data from many longitudinal population studies (LPS) with participants’ records from diverse governmental data owners across the UK.
Jacqui Oakley, Robin Flaig, Emma Turner, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Andrew Boyd   +7 more
doaj   +2 more sources

The UK Longitudinal Linkage Collaboration: A trusted research environment for the longitudinal research community

International Journal of Population Data Science, 2023
Objectives Our Trusted Research Environment (TRE) provides a centralised infrastructure to pool Longitudinal Population Studies’ (LPS) data and systematically link participants’ routine health, administrative and environmental records. All data are held
Andy Boyd, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Emma Turner   +7 more
doaj   +3 more sources

UK Longitudinal Linkage Collaboration – and the challenges in creating a new Longitudinal Populations Studies linked data resource.

International Journal of Population Data Science, 2022
Objectives The UK Longitudinal Linkage Collaboration (UK LLC) is a new, unprecedented infrastructure enabling research into the COVID-19 pandemic.
Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Emma Turner, Andy Boyd   +7 more
doaj   +2 more sources

Linking Digital Footprint Data into Longitudinal Population Studies [PDF]

International Journal of Population Data Science
Background Linking digital footprint data into longitudinal population studies (LPS) presents an opportunity to enrich our understanding of how digitally captured behaviours relate to health traits and disease.
Romana Burgess, Andy Boyd, Oliver Davis, Louise AC Millard, Mark Mumme, Sarah Robertson, Andy Skinner, Zhuoni Xiao, Anya Skatova   +8 more
doaj   +2 more sources

Using digital information to enrich longitudinal population study data at the UK Longitudinal Linkage Collaboration

International Journal of Population Data Science
Introduction & Background UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the longitudinal research community.
Abigail Hill, Andy Boyd, Richard Thomas, Katherine Evans, Rachel Calkin   +4 more
doaj   +2 more sources

Improving transparency in data access processes: Developing best practice standards and promoting system-wide change through a competitive funding call [PDF]

International Journal of Population Data Science
Introduction Transparency in the use of data for research benefits the public and researchers by fostering trust and enabling efficient data sharing. Public support for access to their data for research depends on robust data security, the absence of ...
Yemi Macaulay, Ester Bellavia , Rachel Brophy, Angela Coulter, Ben Glampson, Bethany Gilbert, Alan Holcroft, Erik Mayer, Edel McNamara, Katherine O'Sullivan, Paola Quattroni, David Seymour, Yvonne Silove , Doreen Tembo, Andrew D Morris, Cassie Smith, Andy Boyd   +16 more
doaj   +2 more sources

Associations between different measures of SARS-CoV-2 infection status and subsequent economic inactivity: A pooled analysis of five longitudinal surveys linked to healthcare records. [PDF]

PLoS ONE
IntroductionFollowing the acute phase of the COVID-19 pandemic, a record number of people became economically inactive in the UK. We investigated the association between coronavirus infection and subsequent economic inactivity among people employed pre ...
Richard J Shaw, Olivia K L Hamilton, Rebecca Rhead, Richard J Silverwood, Jacques Wels, Jingmin Zhu, Giorgio Di Gessa, Ruth C E Bowyer, Bettina Moltrecht, Michael J Green, Evangelia Demou, Serena Pattaro, Paola Zaninotto, Andy Boyd, Felix Greaves, Nishi Chaturvedi, George B Ploubidis, Srinivasa Vittal Katikireddi   +17 more
doaj   +2 more sources