Results 11 to 20 of about 10,812,709 (214)

Using digital information to enrich longitudinal population study data at the UK Longitudinal Linkage Collaboration

International Journal of Population Data Science
Introduction & Background UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the longitudinal research community.
Abigail Hill, Andy Boyd, Richard Thomas, Katherine Evans, Rachel Calkin   +4 more
doaj   +4 more sources

The UK Longitudinal Linkage Collaboration legal & governance framework: managing ‘delegated and distributed’ data processing working with cross-sectorial data owners.

International Journal of Population Data Science, 2022
Objectives The UK Longitudinal Linkage Collaboration (UKLLC) was established to link and integrate data from many longitudinal population studies (LPS) with participants’ records from diverse governmental data owners across the UK.
Jacqui Oakley, Robin Flaig, Emma Turner, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Andrew Boyd   +7 more
doaj   +2 more sources

The UK Longitudinal Linkage Collaboration: A trusted research environment for the longitudinal research community

International Journal of Population Data Science, 2023
Objectives Our Trusted Research Environment (TRE) provides a centralised infrastructure to pool Longitudinal Population Studies’ (LPS) data and systematically link participants’ routine health, administrative and environmental records. All data are held
Andy Boyd, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Emma Turner   +7 more
doaj   +3 more sources

Generation Scotland Teenage Recruitment – Creating, evaluating and evolving a study sign-up process in collaboration with study participants and young people [PDF]

International Journal of Population Data Science
Objectives Generation Scotland (GS) is a family-based genetic epidemiology study. Initial recruitment was ~24,000 adult volunteers from across Scotland in 2006-11 with consent for medical record linkage and re-contact.
Robin Flaig, Sarah Robertson, Alex Wood, Liz Kirby, Rosie Tatham, Cathie Sudlow   +5 more
doaj   +2 more sources

Linkage of the Avon Longitudinal Study of Parents and Children (ALSPAC) to Avon & Somerset Police regional police records [version 1; peer review: 2 approved, 1 approved with reservations]

Wellcome Open Research, 2023
This data note describes a new resource for crime-related research: the Avon Longitudinal Study of Parents and Children (ALSPAC) linked to regional police records.
Anna Ferrante, Richard Thomas, Alison Teyhan, Andy Boyd, Mark Mumme, Rosie Cornish, Iain Brennan, John Macleod, Adrian Brown, Amy Dillon   +9 more
doaj   +1 more source

Towards a standardised cross-sectoral data access agreement template for research: a core set of principles for data access within trusted research environments

International Journal of Population Data Science, 2023
Introduction Trusted Research Environments (TREs) are secure computing environments that provide access to data for approved researchers to use in studies that can save and improve lives.
Rachel Brophy, Ester Bellavia, Maeve Groot Bluemink, Katharine Evans, Munisa Hashimi, Yemi Macaulay, Edel McNamara, Allison Noble, Paola Quattroni, Amanda Rudczenko, Andrew D Morris, Cassie Smith, Andy Boyd   +12 more
doaj   +1 more source

Addressing the fetal alcohol spectrum disorder (FASD) ‘data gap’: Multi-method and multi-disciplinary public engagement to ascertain the acceptability and feasibility of establishing the first UK National linked database for FASD

International Journal of Population Data Science, 2023
Objectives To conduct public engagement work to establish the views of key stakeholders on the feasibility, acceptability, key purposes, and data structure of the first national linked longitudinal research database for fetal alcohol spectrum disorder ...
Sarah Harding, Beverley Samways, Amy Dillon, Sandra Butcher, Andy Boyd, Raja Mukherjee, Penny Cook, Cheryl McQuire   +7 more
doaj   +1 more source

Blueprint for Co-production: The United Kingdom Longitudinal Linkage Collaboration (UK LLC) Citizen Panel Case Study

Abstract Background: As data-intensive health research expands, questions around legitimacy, trust and social license have become central to research governance. Citizen Panels and other forms of public engagement groups are increasingly used to incorporate public perspectives into decision-making ...
Gichki S, Garbovan L, Flaig R, Boyd A.
europepmc   +2 more sources

Refugee Integration Outcomes cohort study: Evidence for policy and planning

International Journal of Population Data Science, 2023
Evidence on refugee integration outcomes in the UK is lacking, partly due to an absence of datasets which permit refugees to be identified. The RIO longitudinal cohort study designed in collaboration with the Home Office aims to address this by linking ...
Sam Frowen, Nicky Rogers, Alan Evans, Hannah Toft, Angela Black, Tilly Skipper, Caroline Peate, Raoul Hodgson   +7 more
doaj   +1 more source

Organic supply chain collaboration: a case study in eight EU countries [PDF]

, 2009
This study aims at contributing to a better understanding of the linkage between supply chain performance and possible performance improvement with respect to food quality and safety.
Stolze, Matthias, Naspetti, Simona, M. Stolze, Lampkin, Nicolas, P. Nicolas, S. Naspetti, Nicolas, Philippa, N. Lampkin, R. Zanoli, Zanoli, Raffaele   +9 more
core   +1 more source