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UK Longitudinal Linkage Collaboration (UK LLC): The National Trusted Research Environment for Longitudinal Research [PDF]

International Journal of Population Data Science
Introduction The UK Longitudinal Linkage Collaboration (UK LLC) is the national Trusted Research Environment (TRE) for the UK's longitudinal research community, supporting the UK's unparalleled collection of Longitudinal Population Studies (LPS ...
Andy Boyd, Katharine Evans, Emma Turner, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Richard Thomas, Stela McLachlan, Matthew Crane, et al.   +9 more
doaj   +23 more sources

A novel protocol for a "Citizen Panel" for diverse Public and Participant Involvement in the review and development of the process to access data in the UK Longitudinal Linkage Collaboration Trusted Research Environment [PDF]

International Journal of Population Data Science
Background Researchers can apply to UK Longitudinal Linkage Collaboration (UK LLC) to access Longitudinal Population Study (LPS) data linked to health, non-health administrative and geo-environmental data.
Lidis Garbovan, Betty O. Idemudia, Robin Flaig, Kirsteen Campbell, Katharine Evans, Andy Boyd, Sarah Cunningham-Burley, Emma L. Turner   +7 more
doaj   +6 more sources

UK Longitudinal Linkage Collaboration – and the challenges in creating a new Longitudinal Populations Studies linked data resource. [PDF]

International Journal of Population Data Science, 2022
Objectives The UK Longitudinal Linkage Collaboration (UK LLC) is a new, unprecedented infrastructure enabling research into the COVID-19 pandemic.
Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stela McLachlan, Richard Thomas, Emma Turner, Andy Boyd   +7 more
doaj   +5 more sources

Identifying and linking individuals participating in multiple longitudinal population studies in the UK Longitudinal Linkage Collaboration [PDF]

International Journal of Population Data Science
UK Longitudinal Linkage Collaboration (UKLLC) is the national Trusted Research Environment (TRE) for record linkage in longitudinal research, partnering with SeRP and >20 Longitudinal Population Studies (LPS).
Samuel Neale, Richard Thomas, Jacqui Oakley, Hazel Lockhart-Jones, Chris Orton, Simon Thompson, Andy Boyd   +6 more
doaj   +7 more sources

Including seldom-heard voices in a novel, circular and reflective data learning model: the Citizen Panel at UK Longitudinal Linkage Collaboration (UK LLC) [PDF]

International Journal of Population Data Science
Background The UK LLC Citizen Panel is a research and public engagement project which is the first proof of concept of an innovative model of learning in data research governance, proposed by Understanding Patient Data (UDPD).
Robin Flaig, Lidis Garbovan
doaj   +7 more sources

How public and participant voices have influenced the UK Longitudinal Linkage Collaboration and its Trusted Research Environment.

International Journal of Population Data Science, 2022
Objectives UK longitudinal population studies have complex governance structures and participant safeguards. As a new Trusted Research Environment (TRE) for >20 longitudinal studies, the UK Longitudinal Linkage Collaboration (UK LLC) must ensure ...
Kirsteen Campbell, Rebecca Whitehorn, Andy Boyd, Robin Flaig, Stela McLachlan, Christie Levein, Jacqueline Oakley, Sarah Chave, Michael Gregg, Della Ogunleye   +9 more
doaj   +4 more sources

The UK Longitudinal Linkage Collaboration: the Trusted Research Environment for data linkage in longitudinal population research [PDF]

International Journal of Population Data Science
The UK Longitudinal Linkage Collaboration: the Trusted Research Environment for data linkage in longitudinal population research We have created an unprecedented interdisciplinary infrastructure integrating data from UK-wide LPS linked to participants ...
Andy Boyd, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, K Evans, Stela McLachlan, Richard Thomas, Emma Turner   +7 more
doaj   +4 more sources

The UK Longitudinal Linkage Collaboration: a trusted research environment for the longitudinal research community. [PDF]

International Journal of Population Data Science, 2022
Objectives The COVID-19 Longitudinal Health and Wellbeing National Core Study utilises data from Longitudinal Population Studies (LPS) and whole-population NHS databases: yet no resource existed linking multiple LPS to COVID-19 records.
Andy Boyd, Robin Flaig, Jacqui Oakley, Kirsteen Campbell, Katharine Evans, Stella McLachlan, Richard Thomas, Emma Turner   +7 more
doaj   +4 more sources

Strategies for ascertaining timing of address changes in administrative data [PDF]

International Journal of Population Data Science
Addresses captured in administrative health data can facilitate the analysis of place-based exposures and their influence on health. If patients change address, hospital records are updated when individuals next use health services: precise timing of ...
Joseph Lam, Mario Cortina-Borja, Peter Christen, Richard Thomas, Robert Aldridge, Ruth Blackburn, Ruth Gilbert, Andy Boyd, Katie Harron   +8 more
doaj   +4 more sources

Co-developing resources for better public understanding of Longitudinal Population Study Data and the Law [PDF]

International Journal of Population Data Science
Introduction The legal basis for using participants' data in Longitudinal Population Studies (LPS) is complex. Laws of particular relevance are (1) UK data protection legislation, including Data Protection Act 2018 and UK General Data Protection ...
Kirsteen Campbell, Sarah Chave, Rosie Hill, Mhairi Docherty, Michael Gregg, Emma Turner, Katharine Evans, Jacqui Oakley, Stela McLachlan, Alex Bailey, Cassie Smith, Rebecca Whitehorn, Lidis Garbovan, Robin Flaig, Andy Boyd   +14 more
doaj   +2 more sources