Undone Science: Charting Social Movement and Civil Society Challenges to Research Agenda Setting. [PDF]
Sci Technol Human Values, 2010 ‘‘Undone science’’ refers to areas of research that are left unfunded, incomplete, or generally ignored but that social movements or civil society organizations often identify as worthy of more research. This study mobilizes four recent studies to further elaborate the concept of undone science as it relates to the political construction of research ...
Frickel S +5 more
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The missed disease? Endometriosis as an example of 'undone science'. [PDF]
Reprod Biomed Soc Online, 2022 Endometriosis is a chronic gynaecological condition which has been referred to as the 'missed disease' due to its unclear aetiology and inconsistencies in its diagnosis and management. Unlike other long-term conditions such as diabetes and asthma, endometriosis has remained largely ignored in government policy and research funding globally.
Hudson N.
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Entrepreneurial treatment activism for undone science: mannitol and Parkinson's disease. [PDF]
Biosocieties, 2023 This paper describes CliniCrowd, a patient-designed, entrepreneurial, crowd-sourced citizen-science approach to evaluating mannitol-essentially, an orphan drug-as a Parkinson's disease treatment. As such, CliniCrowd addresses 'undone science', and our paper contributes to the sociological literature thereon.
Guzmen-Carmeli S, Rier DA.
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Engaging Science, Technology, and Society, 2017 Could crowdsourcing be a way to get undone science done? Could grassroots groups enlist volunteers to help make sense of large amounts of otherwise unanalyzed data—an approach that has been gaining popularity among natural scientists?
Gwen Ottinger
doaj +3 more sources
Unravelling the conceptualisation of unfinished care among physicians in acute care hospitals: a scoping review [PDF]
BMJ OpenBackground Unfinished care—also referred to as care left undone, missed care or implicit rationing—has been widely studied in nursing but remains poorly defined and underexplored in the medical profession.
Walter Sermeus, Simon Dello, Ken De Smet
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When undone science stifles innovation: the case of the Tasmanian devil cancer
Prometheus, 2015 Gaps or deficits in knowledge present opportunities for new and innovative research, but when studies are undone much is lost. The concept of ‘undone science’ can be understood within related concepts, including ignorance, nescience, non-knowledge and ...
Josephine Warren
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Undone Science and Rice Workers in Uruguay
Cuadernos de Antropología Social, 2016 The following paper presents some discussions resulting from an ethnographic approach to a knowledge construction process developed by a team of university researchers and rice workers.
Santiago Alzugaray
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Is glacier science undone, or just enough for a just transition? Reflections from Andean Mines
TapuyaUndone science refers to missing areas of scientific knowledge needed for decision-making or public policy. Though the term has become ubiquitous in STS research, it is hard to distinguish undone science from other possibilities like uncertainty, secrecy,
Javiera Barandiarán +3 more
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Consent as a compositional act – a framework that provides clarity for the retention and use of data [PDF]
Philosophy, Ethics, and Humanities in MedicineBackground Informed consent is one of the key principles of conducting research involving humans. When research participants give consent, they perform an act in which they utter, write or otherwise provide an authorisation to somebody to do something ...
Minerva C. Rivas Velarde +4 more
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Monogamy Undone: Review of A. Willey’s Undoing Monogamy: The Politics of Science and the Possibilities of Biology (2016) [PDF]
Imaginations: Journal of Cross-Cultural Media Studies, 2019 Rick W.A. Smith
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