Results 11 to 20 of about 19,927,417 (302)

Development and content validation of the Pediatric Oral Medicines Acceptability Questionnaires (P-OMAQ): patient-reported and caregiver-reported outcome measures

Journal of Patient-Reported Outcomes, 2020
Background Evolving regulatory guidelines recommend routine assessment of the acceptability of pediatric oral medicines throughout clinical development processes.
Diane M. Turner-Bowker, Kristina An Haack, Meaghan Krohe, Andrew Yaworsky, Norma Vivas, Masami Kelly, Godhuli Chatterjee, Emily Chaston, Erin Mann, Matthew Reaney   +9 more
doaj   +1 more source

Qualitative concept elicitation and cognitive debriefing interviews of symptoms, impacts and selected customized PROMIS® Short Forms: a study in patients with axial spondyloarthritis

Journal of Patient-Reported Outcomes, 2023
Background Sleep disturbance, pain, and fatigue are key symptoms/impacts of axial spondyloarthritis (axSpA). Three customized Patient-Reported Outcomes Measurement Information System (PROMIS®) Short Forms (Sleep Disturbance, Pain Interference, and ...
Amy Findley, Jessica M. Middlehurst, Chloe A. Howse, Molly J. Clifford, William Neill, Sophi Tatlock, Wen-Hung Chen, Marguerite G. Bracher, Dharm S. Patel   +8 more
doaj   +1 more source

Content validation of a caregiver diary to monitor severity and recovery of pediatric patients with respiratory syncytial virus infection

Journal of Patient-Reported Outcomes, 2022
Background Respiratory Syncytial Virus (RSV) is a leading cause of hospitalization and serious respiratory illness in infants/young children. The objectives of this study were to (1) identify important RSV-related signs of illness in infants that were ...
Sophi Tatlock, Sarah Bentley, Rob Arbuckle, Linda Abetz-Webb, Jane Scott   +4 more
doaj   +1 more source

Values-Based Leadership [PDF]

, 2017
It is imperative to underscore the urgent need for values-based leadership worldwide – in our governments, academic institutions, and businesses. The lack thereof explains the collapse of global companies such as Enron, Tyco, Lehman Brothers, WorldCom ...
Rao, M.S.
core   +2 more sources

The Value Landscape in Ecosystem Services: Value, Value Wherefore Art Thou Value? [PDF]

Sustainability, 2017
Ecosystem services has risen to become one of the preeminent global policy discourses framing the way we conceive and articulate environment–society relations, integral to the form and function of a number of far-reaching international policies such as the Aichi 2020 Biodiversity Targets and the recently adopted Sustainable Development Goals.
Hejnowicz AP, Rudd MA
openaire   +5 more sources

Psychometric evaluation of the Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF©) and determination of a threshold score for moderate symptoms

Orphanet Journal of Rare Diseases, 2023
Background The Indolent Systemic Mastocytosis Symptom Assessment Form (ISM-SAF) (©Blueprint Medicines Corporation), a 12-item daily diary that assesses 11 signs and symptoms of indolent systemic mastocytosis (ISM) and smoldering systemic mastocytosis ...
Alan L. Shields, Fiona Taylor, Roger E. Lamoureux, Brad Padilla, Kas Severson, Tanya Green, Anthony L. Boral, Cem Akin, Frank Siebenhaar, Brenton Mar   +9 more
doaj   +1 more source

Science and Values [PDF]

, 2015
This short paper, written for a wide audience, introduces "science and values" topics as they have arisen in the context of eugenics. The paper especially focuses on the context of 20th century eugenics in western Canada, where eugenic legislation in two
Barker, Matthew J.
core   +1 more source

Aesthetic values in science [PDF]

, 2017
Scientists often use aesthetic values in the evaluation and choice of theories. Aesthetic values are not only regarded as leading to practically more useful theories but are often taken to stand in a special epistemic relation to the truth of a theory ...
Ivanova, Milena
core   +2 more sources

Aligning Values with Value [PDF]

AMA Journal of Ethics, 2011
Medical stewardship is a way of describing a relatively new obligation to maximize health care resources. A professionwide conversation about its meaning and value is needed.
openaire   +2 more sources

Development of symptom-focused outcome measures for advanced and indolent systemic mastocytosis: the AdvSM-SAF and ISM-SAF©

Orphanet Journal of Rare Diseases, 2021
Background Advanced systemic mastocytosis (AdvSM), indolent systemic mastocytosis (ISM), and smoldering systemic mastocytosis (SSM) are rare diseases characterized by neoplastic mast cell infiltration of more than one organ.
Fiona Taylor, Cem Akin, Roger E. Lamoureux, Brad Padilla, Tanya Green, Anthony L. Boral, Iyar Mazar, Brenton Mar, Alan L. Shields, Frank Siebenhaar   +9 more
doaj   +1 more source