Results 81 to 90 of about 4,200,065 (286)

Developing meaningful public involvement in HQIP’s data access processes and Data Access Request Group (DARG)

International Journal of Population Data Science
Background As commissioners of the National Clinical Audit and Patient Outcomes Programme (NCAPOP), HQIP are custodians of data from across many areas of healthcare. The high quality and national coverage of circa 40 national audits and registries means
Claudia Snudden, Kim Rezel, Yvonne Silove, Tom Biggs, Wendy Davis, Sarah Markham, Michael Molete   +6 more
doaj   +1 more source

Evaluation of the Western Australian population based data linkage Intellectual Disability Exploring Answers (IDEA) surveillance system

International Journal of Population Data Science, 2018
Introduction The IDEA system is a population-based data linkage system for intellectual disability (ID), which combines data from two government departments. Due to recent policy changes the future of the IDEA system is unknown.
Natalie Strobel, Jenny Bourke, Helen Leonard, Alice Richardson, Karen Edmond, Dan McAullay   +5 more
doaj   +1 more source

Sex‐Stratified Association of Regional Dopamine Transporter Binding With Disease Progression in Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To clarify the clinical relevance of dopamine transporter single‐photon emission computed tomography (DAT‐SPECT) abnormalities in amyotrophic lateral sclerosis (ALS), with a prespecified focus on sex‐stratified associations with disease progression and short‐term prognosis.
Tomoya Kawazoe, Keizo Sugaya, Kentaro Hayashi, Keiko Hino, Yasuhiro Nakata, Kota Bokuda, Toshio Shimizu, Kazushi Takahashi   +7 more
wiley   +1 more source

Improving Transparency of NHS Trust uses of data for Research Purposes

International Journal of Population Data Science
Background In 2022, the UK Health Data Research Alliance published a Data Transparency Standards white paper (UK Health Data Research Alliance, 2022).
Claire MacDonald, Anthony Wilson, Adam Shepphard   +2 more
doaj   +1 more source

How integration of the federal Indian Register has enhanced First Nations-specific analysis of ICES data

International Journal of Population Data Science, 2018
Introduction In Ontario, First Nations are increasingly seeking population-level data about the health of their citizens. However, First Nations people are not readily identified in standard health administrative data and indirect strategies, such as the
Sue Schultz, Carmen Jones, Jennifer Walker   +2 more
doaj   +1 more source

Improvements to the National Vital Statistics System [PDF]

The National Center for Health Statistics (NCHS) is the nation\u2019s principal health statistics agency, providing data to identify and address health issues.

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Uncovering G Protein‐Coupled Receptors: Novel Targets and Biomarkers for Predicting Glioma Prognosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Low‐grade gliomas (LGG) exhibit significant heterogeneity and recurrence risk. G protein‐coupled receptors (GPCR) contribute to glioma malignant progression, but their prognostic value remains unclear. This work attempts to formulate a GPCR‐based outcome‐predicting model for LGG. Methods Based on TCGA LGG data, the enrichment scores
Jun Yang, Dongxu Zhang, Dongyuan Liu, Da Lin, Hao Wang   +4 more
wiley   +1 more source

The Impact of Linked Administrative Data on Community Development of Integrated Mental Health Hubs: a Case Study

International Journal of Population Data Science, 2018
Introduction Increasingly, communities are designing and implementing contextualized approaches to integrated service delivery. Having communities in the lead is critical to successful design and implementation.
Naomi Parker, Valerie Salt, Allison N Scott, Cathie Scott, Jason Lau   +4 more
doaj   +1 more source

Cognitive and Neuroimaging Divergence Between Juvenile and Adult FUS Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Amyotrophic lateral sclerosis (ALS) is a neurodegenerative disorder characterized by progressive motor neuron degeneration. Fused in sarcoma (FUS)‐associated juvenile ALS (jALS) represents a distinct and aggressive subgroup with rapid deterioration and poor prognosis.
Alexandra V. Jürs, Marcel Naumann, Annaliis Lehto, Hanna Schön, Jens Kurth, Johannes Prudlo, Andreas Hermann, Elisabeth Kasper   +7 more
wiley   +1 more source

Recurrent vital thrombotic events in a young man with FVIII gene duplication

Chinese Medical Journal, 2021
Ling-Li Wang, Dan Liu, Na Feng, Mu-Ye Ping, Jiang-Li Han, Wei Gao, Fang-Fang Wang, Peng Lyu.   +7 more
doaj   +1 more source