Results 191 to 200 of about 363,740 (285)

Values of Individuals With Rare Genetic Neurodevelopmental Disorders and Their Family/Caregivers in Healthcare: A Scoping Review to Inform Guideline Development

open access: yesJournal of Intellectual Disability Research, Volume 70, Issue 6, Page 608-652, June 2026.
ABSTRACT Background Healthcare decision‐making for individuals with rare genetic neurodevelopmental disorders (RGNDs) associated with intellectual disabilities (ID) can be complex due to the intersection of lifelong care needs, limited medical expertise and communication barriers.
Mirthe J. Klein Haneveld   +6 more
wiley   +1 more source

“Humanizar”: aprendizajes sobre alteridad, salud y futuro en una experiencia de investigación compartida

open access: yesThe Journal of Latin American and Caribbean Anthropology, Volume 31, Issue 2, June 2026.
ABSTRACT The visit to Bogotá of a fééeneminaa (Muinane) friend, Célimo Nejedeka Jifichíu, and in particular, his work in researching and transmitting traditional health knowledge, offer the pretext to navigate the relationship between elements that at first glance seem distant from each other: indigenous imaginaries about otherness, their visions of ...
Giovanna Micarelli
wiley   +1 more source

Educational attainment is associated with reduced functional decline in Puerto Ricans with elevated pTau181. [PDF]

open access: yesJ Alzheimers Dis
Dorfsman DA   +34 more
europepmc   +1 more source

Continuing Education to Equip Sonographers as Interprofessional Point‐Of‐Care Ultrasound Educators: A Mixed Methods Study

open access: yesAustralasian Journal of Ultrasound in Medicine, Volume 29, Issue 2, May 2026.
ABSTRACT Introduction Point‐of‐care ultrasound has become an essential tool in critical care medicine. The provision of adequate ultrasound training is one of the most significant barriers to point‐of‐care ultrasound adoption. Sonographers are a valuable resource for ultrasound training but often lack support and formal recognition of their role as ...
Carolynne Cormack   +15 more
wiley   +1 more source

X‐Linked Anhidrotic Ectodermal Dysplasia in A 19‐Year‐Old Male: A Classic Phenotype

open access: yesClinical Case Reports, Volume 14, Issue 5, May 2026.
ABSTRACT X‐linked anhidrotic/hypohidrotic ectodermal dysplasia (XLHED), also known as Christ‐Siemens‐Touraine syndrome, is a rare genetic disorder characterized by the abnormal development of ectodermal structures, primarily affecting sweat glands, hair, and teeth. It results from mutations in the Ectodysplasin A (EDA) gene.
Laxman Chapagain   +4 more
wiley   +1 more source

The freedom to forget. [PDF]

open access: yesDialogues Hum Geogr
Hepach MG.
europepmc   +1 more source

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