Results 41 to 50 of about 484,284 (292)

Experiences, impact, and enablers of involving young people and family caregivers in developing reporting guidelines for paediatric randomised trials: a case study

Research Involvement and Engagement
Background Patient and public involvement (PPI) is increasingly recognized as important, yet no guidance exists on integrating young people and family caregiver perspectives in the development of research reporting guidelines. We developed two paediatric-
Ami Baba, Maureen Smith, Jennifer Preston, Begonya Nafria Escalera, Segolene Gaillard, Pamela Dicks, Matthew Prebeg, Amanda Doherty-Kirby, Kimberly Courtney, Lynn Mendonza, Tanya Chute Nagy, Lotty Hooft, Martin Offringa   +12 more
doaj   +1 more source

Review: Burden on Family Caregivers Caring for Patients with Schizophrenia and Its Related Factors [PDF]

, 2011
Background: Family caregiver is the most important person who cares for patient with schizophrenia. However when care is provided for long time, he/she may experiences the burden.Purpose: The purpose was to review concept and factors related to burden on
Rafiyah, I. (Imas)
core   +1 more source

Enhancing Oncological Care for India's Aging Population: Addressing the Complex Needs of Older Adults With Cancer

Aging and Cancer, EarlyView.
Aging‐associated physiological and molecular alterations pose significant challenges in cancer management among India's elderly. Limited geriatric oncology expertise, financial constraints, and inadequate specialized care exacerbate disparities. Strategic expansion of insurance coverage, integration of palliative care, and infrastructural advancements ...
Nihanthy D. Sreenath, Mathigatta Shivarudraiah S, Rajath Govind, Kaushik M R   +3 more
wiley   +1 more source

Establishing a core outcome set for creatine transporter deficiency and guanidinoacetate methyltransferase deficiency

Orphanet Journal of Rare Diseases
Background Creatine transporter (CTD) and guanidinoacetate methyltransferase (GAMT) deficiencies are rare inborn errors of creatine metabolism, resulting in cerebral creatine deficiency.
Zahra Nasseri Moghaddam, Emily K. Reinhardt, Audrey Thurm, Beth K. Potter, Maureen Smith, Celeste Graham, Beth H. Tiller, Steven A. Baker, Deborah A. Bilder, Regina Bogar, Jacobus Britz, Rachel Cafferty, Daniel P. Coller, Ton J. DeGrauw, Vicky Hall, Gerald S. Lipshutz, Nicola Longo, Saadet Mercimek-Andrews, Judith S. Miller, Marzia Pasquali, Gajja S. Salomons, Andreas Schulze, Celine P. Wheaton, Kayla F. Williams, Sarah P. Young, Jasmine Li, Sofia Balog, Theresa Selucky, Sylvia Stöckler-Ipsiroglu, Heidi Wallis   +29 more
doaj   +1 more source

Is Helping Really Helping? Health-Related Quality of Life after TBI Predicting Caregiver Depression Longitudinally in Latin America [PDF]

, 2020
Objective: Studies have shown that functional and psychosocial sequelae of traumatic brain injury (TBI) predict emotional well-being of caregivers (Harris, 2000).
Arango-Lasprilla, Juan Carlos, Ohayagha, Chimdindu, Olivera, Silvia, Perrin, Paul B, Pugh, Mickeal, Jr., Quijano, Maria Cristina, Rodriguez, Yaneth   +6 more
core   +1 more source

Accuracy of Caregivers' Recollections of Caregiving Hassles [PDF]

The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 1998
Despite their common use in clinical settings, caregivers' recollections of the hassles they face in caregiving have not been examined in previous research. Ninety-seven spousal caregivers of persons with dementia were assessed for 6 consecutive months concerning caregiving hassles and numerous other issues.
J C, Cavanaugh, J M, Kinney
openaire   +2 more sources

Re‐Awakening Public Attention to the Silent Pandemic of Cancer Among Older Adults in Low‐ and Middle‐Income Countries

Aging and Cancer, EarlyView.
ABSTRACT As global populations age, cancer is increasingly becoming a leading cause of morbidity and mortality among older adults, particularly in low‐ and middle‐income countries (LMICs). Despite accounting for the majority of new cancer cases and deaths, older individuals remain underrepresented in cancer research, clinical guidelines, and health ...
Ibrahim Bidemi Abdullateef, Sunkanmi Folorunsho, Abdulazeez Opeyemi Abdulganiyu   +2 more
wiley   +1 more source

Identifying commonalities and differences between EHR representations of PASC and ME/CFS in the RECOVER EHR cohort

Communications Medicine
Background Shared symptoms and biological abnormalities between post-acute sequelae of SARS-CoV-2 infection (PASC) and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) could suggest common pathophysiological bases and would support coordinated
John P. Powers, Tomas J. McIntee, Abhishek Bhatia, Charisse R. Madlock-Brown, Jaime Seltzer, Anisha Sekar, Nita Jain, Mady Hornig, Elle Seibert, Peter J. Leese, Melissa Haendel, Richard Moffitt, Emily R. Pfaff, On behalf of the N3C Consortium and RECOVER-EHR   +13 more
doaj   +1 more source

Mental health of Irish students: Self-criticism as a complete mediator in mental health attitudes and caregiver identity [PDF]

, 2020
Mental health is a concern in the Republic of Ireland, and in particular mental health of higher education students is challenging. Further, their poor mental health may be negatively impacted by their negative mental health attitudes and caregiver ...
Kotera, Yasuhiro, Maughan, Geraldine
core   +1 more source

Effectiveness of a grief intervention for caregivers of people with dementia [PDF]

, 2016
In this article, we report on the structure and effectiveness of a grief management coaching intervention with caregivers of individuals with dementia.
Krawczyk, Marian, MacCourt, Penny, McLennan, Marianne, Somers, Sandie   +3 more
core   +1 more source