An observational study of pediatric healthcare burden in Angelman syndrome: results from a real-world study. [PDF]
BACKGROUND:The objective of this study is to describe variations in the healthcare resource utilization (HRU) among individuals with Angelman syndrome (AS) over the first 12 years of life. Data for this study were drawn from the AS Natural History study (
Bird, Lynne M +4 more
core +1 more source
Burden associated with the presence of anosognosia in Alzheimer's disease
Objectives: Anosognosia is the lack of deficit awareness, and it is a common symptom in patients with Alzheimer¿s disease (AD). The objective of this study was to assess the relationship between anosognosia and caregiver burden. Methods: This was a cross-
Conde Sala, Josep Lluís +5 more
core +1 more source
Effectiveness of a grief intervention for caregivers of people with dementia [PDF]
In this article, we report on the structure and effectiveness of a grief management coaching intervention with caregivers of individuals with dementia.
Krawczyk, Marian +3 more
core +1 more source
Will Memantine Exacerbate Seizures in People With Epilepsy? A Prospective Cohort Study
ABSTRACT Objective To evaluate whether add‐on memantine would exacerbate seizures in people with epilepsy. Methods This was a prospective cohort study. People with epilepsy diagnosed with cognitive impairment were consecutively invited. Those who agreed were followed up for at least 24 weeks.
Peiyu Wang +7 more
wiley +1 more source
Stroke survivors’ health literacy is not associated with caregiver burden: a cross-sectional study
Caregivers to stroke survivors often experience a multifaceted strain defined as caregiver burden. Low health literacy among caregivers may contribute to increased caregiver burden but there is limited research specifically examining the association ...
Andrea Hess Engström +5 more
doaj +1 more source
Caring for Caregivers: Addressing Caregiver Burden in Newtown, Connecticut [PDF]
In 2015, thirty-four million Americans provided unpaid care to an adult 50 years or older. Due to an aging population and an increased number of individuals living with chronic disease, the niche that caregivers occupy in healthcare administration will ...
Wunrow, Zachary
core +1 more source
Association of Corticospinal Tract Asymmetry With Ambulatory Ability After Intracerebral Hemorrhage
ABSTRACT Background Ambulatory ability after intracerebral hemorrhage (ICH) is important to patients. We tested whether asymmetry between ipsi‐ and contra‐lesional corticospinal tracts (CSTs) assessed by diffusion tensor imaging (DTI) is associated with post‐ICH ambulation.
Yasmin N. Aziz +25 more
wiley +1 more source
Does family confidence bridge child functioning and caregiver burden in early intervention?
BackgroundEnhancing caregivers' confidence and competence in early childhood intervention is a priority, focusing on collaboration between professionals and families to improve family well-being and quality of life.
Gabriel Martínez-Rico +3 more
doaj +1 more source
Background: Stroke results in significant caregiver burden and strain. Objective: The main objectives of this study is to assess the burden and its consequences in caregivers of stroke patients and to determine the associated factors to caregivers ...
Bhavin Mandowara +4 more
doaj +1 more source
HUBUNGAN CAREGIVER BURDEN DENGAN QUALITY OF LIFE (QOL) ORANGTUA DENGAN ANAK AUTISME DAN ORANGTUA DENGAN ANAK DISABILITAS INTELEKTUAL [PDF]
Latar Belakang : Anak berkebutuhan khusus seperti autisme dan disabilitas intelektual memiliki masalah terkait tingkah laku penderitanya. Hal itu dapat menimbulkan munculnya beban pada pengasuh dalam merawat anak dengan kondisi-kondisi tersebut.
Litani, Liem Syeren, Winarni, Tri Indah
core

