Results 11 to 20 of about 3,513,756 (283)

Patient experience of spontaneous intracranial hypotension (SIH): qualitative interviews for concept elicitation [PDF]

Journal of Patient-Reported Outcomes, 2023
Background & objectives Spontaneous intracranial hypotension (SIH) is an underdiagnosed and debilitating condition caused by a spinal cerebrospinal fluid (CSF) leak.
Timothy J. Amrhein, Molly McFatrich, Kate Ehle, Michael D. Malinzak, Linda Gray, Peter G. Kranz, E. Hope Weant, Christina K. Zigler   +7 more
doaj   +2 more sources

Symptom burden in multiple long-term conditions: An AI-supported, mixed-methods concept elicitation study [PDF]

JRSM Open
Summary Objective To develop the conceptual framework for an MLTC-specific patient-reported outcome measure (PROM), the Symptom Burden Questionnaire™ for MLTC (SBQ™-MLTC).
Sarah E Hughes, Benjamin M A Hughes, Shamil Haroon, Eleanor Hathaway, Nicola Anderson, Christel McMullan, Michael Newnham, Clare Taylor, Alastair Denniston, Steven Backhouse, Andrew Filer, Karim Raza, Julia Scarisbrick, Clare Anderson, Matthew Lee, Lee Watts, Victoria Hodgetts Morton, Sarah Hillman, Faraz Mughal, Ed Day, Tariq Sami, Aliza Jesani, Thomas Jackson, Philip Collis, John Devin Peipert, Melanie Calvert   +25 more
doaj   +2 more sources

Content validity of the Scoliosis Research Society questionnaire (SRS-22r): A qualitative concept elicitation study. [PDF]

PLoS ONE, 2023
IntroductionScoliosis Research Society-22 revised (SRS-22r) is the common questionnaire used to evaluate health related quality of life (HRQOL) for young people with adolescent idiopathic scoliosis (AIS).
Samia Alamrani, Adrian Gardner, Deborah Falla, Emily Russell, Alison B Rushton, Nicola R Heneghan   +5 more
doaj   +2 more sources

Same same-but different: using qualitative studies to inform concept elicitation for quality of life assessment in telemedical care: a request for an extended working model [PDF]

Health and Quality of Life Outcomes, 2021
Background Although telemedical applications are increasingly used in the area of both mental and physical illness, there is no quality of life (QoL) instrument that takes into account the specific context of the healthcare setting. Therefore, the aim of
Klara Greffin, Silke Schmidt, Neeltje van den Berg, Wolfgang Hoffmann, Oliver Ritter, Michael Oeff, Georg Schomerus, Holger Muehlan   +7 more
doaj   +2 more sources

Adolescents’ understanding of chemotherapy-related adverse events: a concept elicitation study [PDF]

Revista Latino-Americana de Enfermagem, 2022
Abstract Objective: to document adolescents’ understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool’s items with Brazilian adolescents.
Fernanda Machado Silva-Rodrigues, Pamela S. Hinds, Lucila Castanheira Nascimento   +2 more
openaire   +4 more sources

Unit culture and respectful care in obstetric care settings: a qualitative concept elicitation study [PDF]

Frontiers in Global Women's Health
IntroductionUnit culture and respectful care in hospital obstetric care settings are associated with patient outcomes and satisfaction. However, the definition and determinants of these concepts from the perspective of staff remain underexplored.
M. Takenoshita, S. L. Perez, A. J. Jethwa, R. Nath, E. K. Main, P. Sultan   +5 more
doaj   +2 more sources

Measurement of acute postoperative pain intensity in orthopedic trials: a qualitative concept elicitation study [PDF]

Acta Orthopaedica
Background and purpose: Pain intensity is an important outcome in clinical trials of surgery because pain relief is important to patients. Currently, recommended scales are the numeric rating scale 0–10 and visual analogue scale.
Karen T Bjørnholdt, Carina W G Andersen
doaj   +2 more sources

A Systematic Review of the Use and Quality of Qualitative Methods in Concept Elicitation for Measures with Children and Young People. [PDF]

Patient, 2020
Background: Qualitative research is recommended in concept elicitation for patient reported outcome measures to ensure item content validity, and those developing measures are encouraged to report qualitative methods in detail.
Husbands S, Mitchell PM, Coast J.
europepmc   +2 more sources

Understanding polycystic ovary syndrome from the patient perspective: a concept elicitation patient interview study [PDF]

Health and Quality of Life Outcomes, 2017
Background The aim of this study was to explore the need for a new disease-specific patient reported outcome (PRO) measure for use in clinical trials of drugs designed to target the underlying causes of polycystic ovary syndrome (PCOS), and in the ...
Mona L. Martin, Katarina Halling, Daniel Eek, Meaghan Krohe, Jean Paty   +4 more
doaj   +2 more sources

Understanding the adult and adolescent patient experience with cyclic vomiting syndrome: a concept elicitation study [PDF]

BMC Gastroenterology
Background Cyclic vomiting syndrome (CVS) is a phasic disorder of gut–brain interaction characterized by episodes of severe nausea and vomiting. In-depth qualitative research on phase-specific CVS symptoms and impacts is lacking.
Katja Karrento, Melody Wu, Danielle Rodriguez, Karin S. Coyne, Muna J. Tahir, Camilla A. Richmond, Yaozhu J. Chen, James Williams, Thangam Venkatesan   +8 more
doaj   +2 more sources