Results 21 to 30 of about 3,513,756 (283)

Methodology for eliciting consensus on high-level concepts in rare connective tissue and musculoskeletal diseases (ReCONNET-ELICIT) [PDF]

Orphanet Journal of Rare Diseases
Abstract The ReCONNET-ELICIT methodology represents an innovative and systematic approach to gather expert consensus on complex, high-level concepts related to rare connective tissue and musculoskeletal diseases (rCTDs). Developed within the framework of European Reference Networks (ERNs) ReCONNET, this methodology aims to overcome ...
Laurent Arnaud, Guillermo Pons-Estel, Mariele Gatto, Chiara Tani, Hervé Devilliers, Rosaria Talarico, Giuseppe Turchetti, Marta Mosca   +7 more
openaire   +2 more sources

Understanding treatment burden in hemophilia: development and validation of the Hemophilia Treatment Experience Measure (Hemo-TEM)

Journal of Patient-Reported Outcomes, 2023
Background To capture the broad range of treatment burden issues experienced by adolescent and adult people with hemophilia (PWH), the Hemophilia Treatment Experience Measure (Hemo-TEM) was developed.
Meryl Brod, Donald M. Bushnell, Jesper Skov Neergaard, Laura Tesler Waldman, Anne Kirstine Busk   +4 more
doaj   +1 more source

Postharvest Ultraviolet Radiation in Fruit and Vegetables: Applications and Factors Modulating Its Efficacy on Bioactive Compounds and Microbial Growth

Foods, 2022
Ultraviolet (UV) radiation has been considered a deleterious agent that living organisms must avoid. However, many of the acclimation changes elicited by UV induce a wide range of positive effects in plant physiology through the elicitation of secondary ...
Magalí Darré, Ariel Roberto Vicente, Luis Cisneros-Zevallos, Francisco Artés-Hernández   +3 more
doaj   +1 more source

Patient experience of moderate asthma attacks: qualitative research in the USA and Germany

Journal of Patient-Reported Outcomes, 2022
Background There is limited information available on the impact of moderate asthma exacerbations, often called “asthma attacks” (i.e., those not requiring hospitalisation or treatment with systemic corticosteroids) on patients’ lives.
Maggie Tabberer, Jane R. Wells, Dale Chandler, Linda Abetz-Webb, Shiyuan Zhang, Wilhelmine Meeraus, Andy Fowler, David Slade   +7 more
doaj   +1 more source

Prior distribution elicitation [PDF]

, 2007
An overview of key issues associated with the elicitation of a prior probability distribution is provided. The nature of subjective probability is discussed, and the main causes of biased assessments are identified.
Lesley Walls, Stefano Peluso, John Quigley, Quigley, J.L., Bedford, T.J., Antonietta Mira, Tim Bedford, Walls, L.A., Peluso, Stefano, Mira, Antonietta, Fabrizio Ruggeri, Fred Faltin, Ron Kenett   +12 more
core   +1 more source

Development of a patient-reported outcome measure for neck pain in military aircrew: qualitative interviews to inform design and content

BMJ Open, 2021
Introduction The prevalence of flight-related neck pain is 70% in UK fast jet pilots; much higher than the general population. The Aircrew Conditioning Programme and direct access physiotherapy exist to minimise the impact on military capability, but a ...
Nicola R Heneghan, Anna Dowling, Ellen Slungaard   +2 more
doaj   +1 more source

Content validation of the SF-36v2® health survey with AL amyloidosis patients

Journal of Patient-Reported Outcomes, 2017
Background This study examined the content validity of the SF-36v2® Health Survey (SF-36v2) in patients with AL amyloidosis using qualitative interviews with physicians and patients.
Michelle K. White, Martha S. Bayliss, Spencer D. Guthrie, Kimberly P. Raymond, Avery A. Rizio, Kristen L. McCausland   +5 more
doaj   +1 more source

Concept Mapping [PDF]

Qualitative Health Research, 2015
The purpose of this theoretical article is to explore the use of concept mapping as a qualitative research method that is represented as a form of multimodal communication. This framework strives to move mapping beyond quantitative analysis by inserting art and humanness into the process.
Wilson, Jessie, Mandich, Angie, Magalhães, Lilian   +2 more
openaire   +3 more sources

Development of the Diabetes Injection Device Experience Questionnaire (DID-EQ) and Diabetes Injection Device Preference Questionnaire (DID-PQ)

Journal of Patient-Reported Outcomes, 2018
Background Previous research has examined patient perceptions of insulin injection devices. However, injectable medications other than insulin are increasingly used to treat type 2 diabetes, including GLP-1 receptor agonists. No patient-reported outcome (
Louis S. Matza, Kristina S. Boye, Katie D. Stewart, Rosirene Paczkowski, Jessica Jordan, Lindsey T. Murray   +5 more
doaj   +1 more source

Evaluation of elicitation methods to quantify Bayes linear models [PDF]

, 2010
The Bayes linear methodology allows decision makers to express their subjective beliefs and adjust these beliefs as observations are made. It is similar in spirit to probabilistic Bayesian approaches, but differs as it uses expectation as its primitive ...
T Bedford, M Revie, Bedford, T.J., L Walls, Walls, L.A., Revie, Matthew   +5 more
core   +3 more sources