Results 51 to 60 of about 525,062 (261)
A Comprehensive Systematic Review of Data Linkage Publications on Diabetes in Australia
Frontiers in Public Health, 2022 AimsOur study aimed to identify the common themes, knowledge gaps and to evaluate the quality of data linkage research on diabetes in Australia.MethodsThis systematic review was developed in accordance with the Preferred Reporting Items for Systematic ...
Ngan T. T. Dinh +7 more
doaj +1 more source
Health Literacy, Self‐Efficacy and Knowledge of Sickle Cell Disease Among Caregivers
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Sickle cell disease (SCD) is a hereditary blood disorder in which abnormal haemoglobin leads to severe anaemia, painful crises and organ failure. Caregivers’ health literacy (HL) – their ability to assess, understand and apply information, and interact with healthcare professionals – is crucial for managing children with SCD, yet ...
Melanie Bruinooge +6 more
wiley +1 more source
International Journal of Population Data Science, 2017 Objective The linking of multiple (three or more) health databases is challenging because of the increasing sizes of databases, the number of parties among which they are to be linked, and privacy concerns related to the use of personal data such as ...
Thilina Ranbaduge +3 more
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Leukemia is the most common childhood cancer in Mexico, and acute lymphoblastic leukemia (ALL) is the most frequent subtype. Exposure to high concentrations of benzene has been associated with ALL incidence, particularly in urban areas. This study evaluated the relationship between distance to benzene emission sources and the number
Orlando Rivera Zurita +5 more
wiley +1 more source
The importance of including aliases in data linkage with vulnerable populations
BMC Medical Research Methodology, 2018 Background Records pertaining to individuals whose identity cannot be verified with legal documentation may contain errors, or be incorrect by intention of the individual.
Holly Tibble +7 more
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Pediatric bone sarcoma patients and survivors may experience psychosocial challenges related to childhood cancer after their intensive, body‐altering treatment. This cross‐sectional study aimed to evaluate generic and survivor‐specific psychosocial outcomes in a national cohort of pediatric bone sarcoma patients and survivors, and ...
Hinke van der Hoek +14 more
wiley +1 more source
International Journal of Population Data Science, 2017 ABSTRACT Objectives Sharing of health data, including linkage of research with administrative and health records, is crucial in order to reduce waste and inefficiency as well as to maximise the scientific potential of data. However, there is a well-recognised need to protect the privacy and confidentiality of participant’s and their data.
Turner, Andrew +2 more
openaire +5 more sources
An [Imperfect] Case for Dyadic Research in Pediatric Psychosocial Oncology
Pediatric Blood &Cancer, EarlyView.
Stephanie M. Nanos +2 more
wiley +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Adolescents with haematological malignancies face significant emotional and relational challenges, often accompanied by difficulties in communicating their needs within the healthcare context. To address these issues, a narrative‐based psycho‐educational intervention based on the creation and prescription of Ironic Medications was ...
Marta Stoppa +7 more
wiley +1 more source
The Lancet Public Health, 2017 Summary: Background: The health risks associated with living in houses insulated with asbestos are unknown. Loose-fill asbestos was used to insulate some houses in the Australian Capital Territory (ACT).
Rosemary J Korda, Dr, PhD +7 more
doaj +1 more source