Results 61 to 70 of about 1,249,672 (297)

Assessment of Long-term Follow-up of Randomized Trial Participants by Linkage to Routinely Collected Data: A Scoping Review and Analysis: A Scoping Review and Analysis [PDF]

, 2018
IMPORTANCE Follow-up of participants in randomized trials may be limited by logistic and financial factors. Some important randomized trials have been extended well beyond their original follow-up period by linkage of individual participant information ...
Cairncross, Zoe, Fitzpatrick, Tiffany, Henry, David, Lix, Lisa, Perrier, Laure, Rosella, Laura, Shakik, Sharara, Tricco, Andrea C, Zwarenstein, Merrick   +8 more
core   +1 more source

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

The Fate (Outcome) of Clinically Apparent Single Lesion and Oligofocal Nephroblastomatosis Treated According to SIOP/GPOH Protocols for Wilms Tumor

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The management of clinically apparent single lesions or oligofocal nephroblastomatosis, a facultative precursor of nephroblastoma, remains debated. Methods We retrospectively analyzed 37 patients with clinically apparent single or oligofocal nephroblastomatosis (two to three lesions per kidney) among 2347 patients registered between
Nils Welter, Jens‐Peter Schenk, Jenny Wegert, Manfred Gessler, Leo Kager, Stefan Wagenpfeil, Marina Müller, Jean‐Michel Wolff, Joerg Fuchs, Steven W. Warmann, Clemens‐Magnus Meier, Jochen Hubertus, Christian Rübe, Christian Vokuhl, Patrick Melchior, Lena Tschirner, Norbert Graf, Rhoikos Furtwängler   +17 more
wiley   +1 more source

Data linkage to national Australian health insurance data to investigate exposure to environmental hazards: the example of residential asbestos

International Journal of Population Data Science, 2018
Introduction The enrolment data for Medicare, the Australian universal health insurance provider, covers almost the entire population. Medicare data are commonly used for data linkage, usually to access national medical and pharmaceutical data.
Phil Anderson, Rosemary Korda, Hsei Di Law, Martyn Kirk, Tenniel Guiver   +4 more
doaj   +1 more source

Views of healthcare professionals to linkage of routinely collected healthcare data : a systematic review [PDF]

, 2013
Peer reviewedPublisher ...
Bond, C, Francis, J, Haughney, J, Helms, P J, Hopf, Y M   +4 more
core   +2 more sources

Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles, Greg Russell, Leila H. DeWitt, Kimberly Montez, Callie L. Brown   +4 more
wiley   +1 more source

Evaluation of advanced techniques for multi-party privacy-preserving record linkage on real-world health databases

International Journal of Population Data Science, 2017
Objective The linking of multiple (three or more) health databases is challenging because of the increasing sizes of databases, the number of parties among which they are to be linked, and privacy concerns related to the use of personal data such as ...
Thilina Ranbaduge, Dinusha Vatsalan, Sean Randall, Peter Christen   +3 more
doaj   +1 more source

A Comprehensive Systematic Review of Data Linkage Publications on Diabetes in Australia

Frontiers in Public Health, 2022
AimsOur study aimed to identify the common themes, knowledge gaps and to evaluate the quality of data linkage research on diabetes in Australia.MethodsThis systematic review was developed in accordance with the Preferred Reporting Items for Systematic ...
Ngan T. T. Dinh, Ngan T. T. Dinh, Ingrid A. Cox, Barbara de Graaff, Julie A. Campbell, Brian Stokes, Andrew J. Palmer, Andrew J. Palmer   +7 more
doaj   +1 more source

Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan, Lydie Da Costa, Ludivine David Nguyen, Heloise Chosseler, Audrey Riquet, Benedicte Bruno, Melissa Barbati   +6 more
wiley   +1 more source

The importance of including aliases in data linkage with vulnerable populations

BMC Medical Research Methodology, 2018
Background Records pertaining to individuals whose identity cannot be verified with legal documentation may contain errors, or be incorrect by intention of the individual.
Holly Tibble, Hsei Di Law, Matthew J. Spittal, Rosemary Karmel, Rohan Borschmann, Katie Hail-Jares, Laura A. Thomas, Stuart A. Kinner   +7 more
doaj   +1 more source