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Building a culture of engagement at a research centre for childhood disability

Research Involvement and Engagement, 2021
Plain English summary More and more patients and family members are getting involved in health research studies as partners. However we do not know much about what happens after the research study ends.
Kinga Pozniak +22 more
doaj +1 more source

Cancer Incidence, Mortality, Years of Life Lost, Years Lived With Disability, and Disability-Adjusted Life Years for 29 Cancer Groups From 2010 to 2019

JAMA Oncology, 2021
Key Points Question What was the burden of cancer globally and across Sociodemographic Index (SDI) groupings in 2019, and how has incidence, morbidity, and mortality changed since 2010?
Jonathan M Kocarnik +499 more
semanticscholar +1 more source

Lived Expertise and the Development of a Framework for Tracking the Social Determinants, Health, and Wellbeing of Australians with Disability

Scandinavian Journal of Disability Research, 2020
There is increasing recognition of the value of coproduction and inclusion of people with disability in research, and a growing literature on inclusive methods, particularly involving people with intellectual disability.
Shane Clifton +4 more
doaj +1 more source

‘Nothing About Us Without Us’: exploring benefits and challenges of peer support for people with disability in peer support organisations – protocol paper for a qualitative coproduction project

BMJ Open, 2023
Introduction One in six people live with disability in Australia with higher levels of disability of people from diverse communities, such as those with culturally and linguistically diverse (CALD) backgrounds.
Catherine Walsh +10 more
doaj +1 more source

‘Get Healthy!’ physical activity and healthy eating intervention for adults with intellectual disability: results from the feasibility pilot

Pilot and Feasibility Studies, 2023
Background People with intellectual disabilities (ID) experience high rates of lifestyle related morbidities, in part due to lack of access to tailored health promotion programmes.
Carmela Salomon +6 more
doaj +1 more source

BJPsych Open, 2021
Background The COVID-19 pandemic and associated restrictions are expected to affect the mental health of the population, especially people with intellectual disability and/or autism spectrum disorder, because of a variety of biological and psychosocial ...
Bushra Rauf +4 more
doaj +1 more source

Physicians' Perceptions Of People With Disability And Their Health Care.

Health Affairs, 2021
More than sixty-one million Americans have disabilities, and increasing evidence documents that they experience health care disparities. Although many factors likely contribute to these disparities, one little-studied but potential cause involves ...
L. Iezzoni +7 more
semanticscholar +1 more source

Promoting equity in health emergencies through health systems strengthening: lessons learned from disability inclusion in the COVID-19 pandemic

International Journal for Equity in Health, 2022
Discriminatory health systems and inequalities in service provision inevitably create barriers for certain populations in a health emergency. Persons with disabilities have been disproportionately affected by the COVID-19 pandemic.
Emma Pearce +3 more
doaj +1 more source

‘Get Healthy!’ A physical activity and nutrition program for older adults with intellectual disability: pilot study protocol

Pilot and Feasibility Studies, 2018
Background Older adults with intellectual disability have high rates of lifestyle-related illness yet remain poorly engaged in physical activity and nutrition interventions.
Carmela Salomon +6 more
doaj +1 more source

Being an Inclusive Researcher in a National Consultation Exercise—A Case Study

Social Sciences, 2022
This paper presents a case study of the Inclusive Research Network (IRN), an inclusive research group founded by the Centre for Disability Studies, contributing to a National Disability Research Agenda (NDRA) setting project.
Greta Westermann +8 more
doaj +1 more source

medicine
humans
persons with disabilities

10. no inequality
intellectual disability
sociology

3. good health
child
psychology