Results 1 to 10 of about 2,048,172 (389)

Building a culture of engagement at a research centre for childhood disability

Research Involvement and Engagement, 2021
Plain English summary More and more patients and family members are getting involved in health research studies as partners. However we do not know much about what happens after the research study ends.
Kinga Pozniak, Francine Buchanan, Andrea Cross, Jennifer Crowson, Barb Galuppi, Danijela Grahovac, Jan Willem Gorter, Oksana Hlyva, Marjolijn Ketelaar, Olaf Kraus de Camargo, Manda Krpan Mesic, Rachel Martens, Dayle McCauley, Linda Nguyen, Robert J. Palisano, Michelle Phoenix, Connie Putterman, Peter Rosenbaum, Jennifer Sprung, Sonya Strohm, Rachel Teplicky, Donna Thomson, Marilyn Wright   +22 more
doaj   +1 more source

‘Nothing About Us Without Us’: exploring benefits and challenges of peer support for people with disability in peer support organisations – protocol paper for a qualitative coproduction project

BMJ Open, 2023
Introduction One in six people live with disability in Australia with higher levels of disability of people from diverse communities, such as those with culturally and linguistically diverse (CALD) backgrounds.
Catherine Walsh, David Yang, Meredith Tavener, Julie Duong, Shaylie Pryer, Arron Fitzpatrick, Julie Magill, Sarah Simmonds, Owen Baird-Peddie, Farhana Rahman, Carrie Hayter   +10 more
doaj   +1 more source

Lived Expertise and the Development of a Framework for Tracking the Social Determinants, Health, and Wellbeing of Australians with Disability

Scandinavian Journal of Disability Research, 2020
There is increasing recognition of the value of coproduction and inclusion of people with disability in research, and a growing literature on inclusive methods, particularly involving people with intellectual disability.
Shane Clifton, Nicola Fortune, Gwynnyth Llewellyn, Roger J. Stancliffe, Paul Williamson   +4 more
doaj   +1 more source

‘Get Healthy!’ physical activity and healthy eating intervention for adults with intellectual disability: results from the feasibility pilot

Pilot and Feasibility Studies, 2023
Background People with intellectual disabilities (ID) experience high rates of lifestyle related morbidities, in part due to lack of access to tailored health promotion programmes.
Carmela Salomon, Jessica Bellamy, Elizabeth Evans, Renae Reid, Michelle Hsu, Scott Teasdale, Julian Trollor   +6 more
doaj   +1 more source

COVID-19-related prescribing challenge in intellectual disability

BJPsych Open, 2021
Background The COVID-19 pandemic and associated restrictions are expected to affect the mental health of the population, especially people with intellectual disability and/or autism spectrum disorder, because of a variety of biological and psychosocial ...
Bushra Rauf, Hafsa Sheikh, Hassan Majid, Ashok Roy, Rani Pathania   +4 more
doaj   +1 more source

The impact of COVID-19 on people ageing with an intellectual disability in Ireland: Protocol for a follow-up survey [version 2; peer review: 2 approved]

HRB Open Research, 2021
Background:  The COVID-19 pandemic and associated lockdowns have had a dramatic impact on many people, but individuals with an intellectual disability, given the prevalence of congregate living and high levels of co-morbid conditions, may be particularly
Mary McCarron, Andrew Allen, Darren McCausland, Margaret Haigh, Retha Luus, Fathima Rosmin Bavussantakath, Fintan Sheerin, Niamh Mulryan, Eilish Burke, Eimear McGlinchey, Fidelma Flannery, Philip McCallion   +11 more
doaj   +1 more source

Promoting equity in health emergencies through health systems strengthening: lessons learned from disability inclusion in the COVID-19 pandemic

International Journal for Equity in Health, 2022
Discriminatory health systems and inequalities in service provision inevitably create barriers for certain populations in a health emergency. Persons with disabilities have been disproportionately affected by the COVID-19 pandemic.
Emma Pearce, Kaloyan Kamenov, Darryl Barrett, Alarcos Cieza   +3 more
doaj   +1 more source

Being an Inclusive Researcher in a National Consultation Exercise—A Case Study

Social Sciences, 2022
This paper presents a case study of the Inclusive Research Network (IRN), an inclusive research group founded by the Centre for Disability Studies, contributing to a National Disability Research Agenda (NDRA) setting project.
Greta Westermann, Erin Louise Whittle, Susan Adrian, Suzanne Jessep, Melanie Nolan, Bruce O’Brien, Jasamit Pannu, Elizabeth Young, Mary-Ann O’Donovan   +8 more
doaj   +1 more source

Tradeoffs in Visual Impairment Rehabilitation: Hearing Service User Accounts of Rehabilitative Relationships and Organisational Culture in South Africa

Scandinavian Journal of Disability Research, 2022
In order to access skills for adjusting to visual impairment (VI), individuals are drawn into the fabric of rehabilitation organisations and into relationships with rehabilitation workers.
Michelle Botha, Brian Watermeyer
doaj   +1 more source

Sexual activity and sexual health among young adults with and without mild/moderate intellectual disability

BMC Public Health, 2018
Background There is widespread concern about the sexual ‘vulnerability’ of young people with intellectual disabilities, but little evidence relating to sexual activity and sexual health.
Susannah Baines, Eric Emerson, Janet Robertson, Chris Hatton   +3 more
doaj   +1 more source