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Development, implementation, and scalability of the Family Engagement in Research Course: a novel online course for family partners and researchers in neurodevelopmental disability and child health

Research Involvement and Engagement
Background Since 2011 when the Canadian Institutes of Health Research launched the Strategy for Patient Oriented Research, there has been a growing expectation to embed patient-oriented research (POR) in the health research community in Canada.
Andrea Cross, Alice Kelen Soper, Donna Thomson, Connie Putterman, Dayle McCauley, Samantha K. Micsinszki, Rachel Martens, Patricia Solomon, Lorraine Carter, James N. Reynolds, Olaf Kraus de Camargo, Jan Willem Gorter   +11 more
doaj   +1 more source

Rights and knowledge-based approach to aging and disability: an overview of issues and approaches

Social Welfare: Interdisciplinary Approach, 2012
This analysis paper is part of a larger project led by the Canadian Centre on Disability Studies (CCDS) and funded by Human Resources and Social Development Canada (HRSDC), called “From Research and Knowledge to Better Practice: Building Strategies and ...
Olga Krassioukova-Enns, Laurie Ringaert
doaj   +1 more source

Prevalence of LGBTQ+ identity among people with disabilities and long-term services and supports needs in the United States

BMC Public Health
Background People with disabilities and sexual orientation and gender identity minority individuals are both considered health disparity populations, but there has been limited work assessing the prevalence of lesbian, gay, bisexual, transgender, and ...
Ian Moura, Kaitlin Stober, Joseph Caldwell, Teresa Nguyen   +3 more
doaj   +1 more source

Understanding the Impact of Assistive Technology on Users’ Lives in England: A Capability Approach

Bioengineering
This study presents an analysis of England’s 2023 national assessment of assistive technology (AT) access and use, with a particular focus on the qualitative impact of AT as described by users.
Rebecca Joskow, Dilisha Patel, Anna Landre, Kate Mattick, Catherine Holloway, Jamie Danemayer, Victoria Austin   +6 more
doaj   +1 more source

Correction to: Assessment of Autism Spectrum Disorder in Deaf Adults with Intellectual Disability: Feasibility and Psychometric Properties of an Adapted Version of the Autism Diagnostic Observation Schedule (ADOS-2) [PDF]

, 2021
Daniel Holzinger, Chantal Weber, Sven Bölte, Johannes Fellinger, Johannes Hofer   +4 more
openalex   +1 more source

Equitable inclusion of people with disabilities in clinical trials: a scoping review

BMJ Open
Objectives People with disabilities are underrepresented in clinical trials, which impacts generalisability and ethical integrity of results. Despite international mandates to diversify participants, there is a lack of guidance on how to make trials ...
Lori Rosman, Kaloyan Kamenov, Franz Castro, Bonnielin Swenor, Grace Jo, Caroline Cerilli, Varshini Varadaraj, Darryl Barrett   +7 more
doaj   +1 more source

Memory performance on the Auditory Inference Span Test is independent of background noise type for young adults with normal hearing at high speech intelligibility

Frontiers in Psychology, 2014
Listening in noise is often perceived to be effortful. This is partly because cognitive resources are engaged in separating the target signal from background noise, leaving fewer resources for storage and processing of the content of the message in ...
Niklas eRönnberg, Niklas eRönnberg, Mary eRudner, Mary eRudner, Thomas eLunner, Thomas eLunner, Thomas eLunner, Thomas eLunner, Stefan eStenfelt, Stefan eStenfelt   +9 more
doaj   +1 more source

Deaf people's employment and workplaces – similarities and differences in comparison with a reference population

Scandinavian Journal of Disability Research, 2010
This study aims to describe and analyze the characteristics of deaf people in employment and their workplaces in Sweden. A population of 2144 people born 1941–80 who attended a school for the deaf was compared to 100,000 randomly chosen individuals from ...
Emelie Rydberg, Lotta Coniavitis Gellerstedt, Berth Danermark   +2 more
doaj   +1 more source

Arachnodactyly-abnormal ossification-intellectual disability syndrome [PDF]

, 2020
INSERM
openalex   +1 more source

Intellectual disability-facial dysmorphism syndrome due to SETD5 haploinsufficiency [PDF]

, 2020
INSERM
openalex   +1 more source