Results 221 to 230 of about 205,224 (316)

Serious Illness Conversation in the Care of Atypical Parkinsonian Disorders: A Practical Guide for Neurology Clinicians

open access: yesMovement Disorders Clinical Practice, EarlyView.
Abstract Background Compared to Parkinson's disease, atypical parkinsonian disorders (APD) are characterized by a more rapidly progressive course, often leading to profound disability. Effective communication between clinicians, patients, and care partners is essential to support patient‐centered care and shared decision‐making.
Michiko K. Bruno   +7 more
wiley   +1 more source

Discrepant Views of Apathy in Patients and Caregivers: the Role of Cognitive Deficits in Parkinson's Disease

open access: yesMovement Disorders Clinical Practice, EarlyView.
Abstract Background Apathy is a common early symptom of Parkinson's disease (PD), often co‐occurring with cognitive decline and associated with fronto‐striatal and mesocortico‐limbic dysfunctions. Discrepancies between self‐ and caregiver‐reported apathy have been preliminarily associated with cognitive impairments affecting patients’ awareness and ...
Giulia Funghi   +13 more
wiley   +1 more source

“It's just us”: Families' experiences with temporary tube feeding

open access: yesNutrition in Clinical Practice, EarlyView.
Abstract Background Children with temporary feeding tubes are discharged home with increasing frequency, yet little is known about how families adapt and manage in their home environment. Whereas the physical side effects of temporary feeding tubes are well documented, the psychosocial impact on families remains underresearched. Understanding families'
Claire Reilly   +4 more
wiley   +1 more source

More than meets the eye: The hidden burden of temporary feeding tubes on children and their families

open access: yesNutrition in Clinical Practice, EarlyView.
Abstract Background Although pediatric temporary (e.g., nasogastric) feeding tubes are widely used for short‐term nutrition support, family impacts remain poorly defined. Research from long‐term (e.g., gastrostomy) feeding tubes does not generalize because management and burdens differ. This study aimed to explore the financial, time and family burdens
Claire Reilly   +5 more
wiley   +1 more source

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