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Recommendations on priorities for integrated palliative care: transparent expert consultation with international leaders for the InSuP-C project

open access: yesBMC Palliative Care, 2019
Background The World Health Organisation (WHO) endorses integrated palliative care which has a significant impact on quality of life and satisfaction with care.
Sheila Payne   +4 more
doaj   +1 more source

Preferences of Pediatric Patients and Their Caregivers for Chemotherapy‐Induced Nausea and Vomiting Control Endpoints: A Mixed Methods Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Although not always achieved, complete chemotherapy‐induced nausea and vomiting (CINV) control is the conventional goal of CINV prophylaxis. In this two‐center, mixed‐methods study, we sought to understand the preferences of adolescent patients and family caregivers for CINV control endpoints.
Haley Newman   +8 more
wiley   +1 more source

Persons, Agents, and the End-of-life Decisions [PDF]

open access: yes, 2002
Extensive discussions about the nature and value of personhood, of metaphysical and normative aspects of becoming a person and ceasing to be one, having been conducted at the very center of the debates on abortion, therapeutic human cloning, embryo ...
Klampfer, Friderik
core  

Which patients received a ReSPECT form, what was documented and what were the patient outcomes? A protocol for a retrospective observational study investigating the impact of the COVID-19 pandemic on the implementation of the ReSPECT process

open access: yesBMJ Open, 2022
Introduction Recommended Summary Plan for Emergency Care and Treatment (ReSPECT) is a UK advance care planning (ACP) initiative aiming to standardise the process of creating personalised recommendations for a person’s clinical care in a future emergency ...
Lucy Selman   +4 more
doaj   +1 more source

End-of-Life Discussion

open access: yesVoices in Bioethics, 2014
The discussion around end-of-life issues largely centers on the right of the patient to choose (to refuse life sustaining treatment, or, in some cases, to end his or her life through physician assisted suicide or euthanasia where it has been legalized) or to preserve life through invasive treatment.
openaire   +2 more sources

Pediatric Oncology Nursing Competencies in Latin America and the Caribbean: A Scoping Review to Inform Practice, Education, and Research

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Nurses are central to cancer care for children and adolescents, yet no comprehensive synthesis has defined essential core competencies for pediatric oncology nursing (PON) practice internationally, particularly in Latin America and the Caribbean (LAC).
Luís Carlos Lopes‐Júnior   +7 more
wiley   +1 more source

EoL: Towards Quality Care at the End of Life [PDF]

open access: yes, 2009
Palliative and end-of-life care must be available to all who require it, regardless of location, age, income, diagnosis or prognosis, and social and cultural background.

core  

Influence of health interventions on quality of life in seriously ill children at the end of life: a systematic review protocol

open access: yesSystematic Reviews, 2019
Background Seriously ill children suffer from numerous symptoms at the end of their lives, including pain, anxiety, and restricted communication. There are currently no comprehensive overviews of which health interventions have proven benefits and which ...
Veerle E. Piette   +5 more
doaj   +1 more source

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright   +13 more
wiley   +1 more source

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