Results 61 to 70 of about 860,404 (335)

Implementing Health‐Related Quality of Life Assessment in Pediatric Oncology: A Feasibility Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background There is growing interest in embedding health‐related quality of life (HRQoL) assessment and patient‐reported outcome measures (PROMs) within clinical cancer care. This study evaluated the feasibility, acceptability, and usability of implementing an electronic PROM (ePROM) platform to measure HRQoL in children with cancer ...
Mikaela Doig, Sophie Jessop, Jordan R. Hansford, Hien Le, Matthew O'Connor, Peter Gorayski, Andrew Cunningham, Amanda Hutchinson, Victoria Bedford, Eva Bezak, Nayana Parange, Kelly Skelton, Timothy Price, Michala Short   +13 more
wiley   +1 more source

Caracterização de protocolos de pesquisa: um estudo na Paraíba, Brasil

Revista Bioética
Resumo O artigo apresenta a caracterização da totalidade dos protocolos de pesquisa apreciados pelo Comitê de Ética em Pesquisa do Instituto Federal da Paraíba (CEP/IFPB), desde sua fundação, em 2008, até 2014. Trata-se de estudo descritivo e documental,
Genésio José da Silva, Maria Luiza da Costa Santos   +1 more
doaj   +1 more source

Expert perspectives on ethics review of international data-intensive research:Working towards mutual recognition [PDF]

, 2017
Life sciences research is increasingly international and data-intensive. Researchers work in multi-jurisdictional teams or formally established research consortia to exchange data and conduct research using computation of multiple sources and volumes of
Dove, Edward S., Garattini, Chiara
core   +3 more sources

The dual use of research ethics committees: why professional self-governance falls short in preserving biosecurity

BMC Medical Ethics, 2018
Dual Use Research of Concern (DURC) constitutes a major challenge for research practice and oversight on the local, national and international level.
Sabine Salloch
semanticscholar   +1 more source

Parent Quality of Life at Two Years Following Their Child's Completion of Acute Lymphoblastic Leukemia Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Parents of children treated for acute lymphoblastic leukemia (ALL) often experience significant caregiver burden and disruption to their well‐being. While parent quality of life (QoL) during treatment is well characterized, little is known about outcomes during early survivorship.
Sara Dal Pra, Maria McCarthy, Michael Takagi, Cinzia De Luca   +3 more
wiley   +1 more source

Ethical review and children’s research in Ireland. [PDF]

, 2010
A substantial increase in research into the lives of children has been experienced over the last 20 years in many countries, including Ireland. This increase is not only in the amount of research undertaken, but also in the multidisciplinary range of ...
Felzmann, Heike, Ni Chonnachtaigh, Sorcha, Nic Gabhainn, Saoirse, O’Higgins, Siobhan, Sixsmith, Jane   +4 more
core   +1 more source

Taking stock of the availability and functions of National Ethics Committees worldwide

BMC Medical Ethics, 2021
National Ethics Committees (NECs) offer important oversight and guidance functions and facilitate public debate on bioethical issues. In an increasingly globalized world where technological advances, multi-national research collaborations, and pandemics ...
P. Hummel, T. Adam, A. Reis, K. Littler
semanticscholar   +1 more source

A PRSZT Registry Analysis of Prognostic Factors Influencing Survival and Relapse Rates After Second Allogeneic Hematopoietic Stem Cell Transplantation in Pediatric Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT A second allogeneic (allo‐)hematopoietic stem cell transplantation (HSCT2) is a potential curative option for pediatric patients with acute lymphoblastic leukemia (ALL) following relapse after first allogeneic transplantation (HSCT1), but its efficacy is limited by high relapse rates and transplant‐related toxicity in highly pretreated ...
Ava Momm, Imme Haubitz, Rita Beier, Martin Zimmermann, Andrej Lissat, Peter Bader, Matthias Eyrich, Jan‐Henning Klusmann, Matthias Wölfl, Paul‐Gerhardt Schlegel, Verena Wiegering   +10 more
wiley   +1 more source

Analysis of ethics dumping and proposed solutions in the field of biomedical research in China

Frontiers in Pharmacology, 2023
As international academic exchanges and cooperation deepen, China has actively engaged in international biomedical research collaboration and achieved significant success.
Bohua Liao, Yonghui Ma, Ruipeng Lei, Ruipeng Lei   +3 more
doaj   +1 more source

Research ethics capacity building in Sub-Saharan Africa: a review of NIH Fogarty-funded programs 2000–2012 [PDF]

, 2014
The last fifteen years have witnessed a significant increase in investment in research ethics capacity development throughout the world. We examine nine research ethics training programs that are focused on Sub-Saharan Africa and supported by the US ...
Adebamowo, Clement, Benatar, Solomon, Fleischer, Theodore, Hyder, Adnan A., Kass, Nancy, Kruger, Mariana, Meslin, Eric M., Ndebele, Paul, Wassenaar, Douglas   +8 more
core   +1 more source