Results 191 to 200 of about 3,280,213 (229)

Using experience-based co-design to explore care experiences and identify practice change priorities for children with medical complexity in the paediatric intensive care unit. [PDF]

BMJ Open
Rennick JE, Southall K, Carnevale F, Dryden-Palmer K, Patel H, Dagenais M, Buchanan F, Avery S, Razack S, St-Sauveur I, Cohen E, Fontela P, Law S.   +12 more
europepmc   +1 more source

Movement Disorders in Aicardi–Goutières Syndrome and Response to Immunomodulation

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT This study characterizes movement disorders and treatment responses in seven children with Aicardi–Goutières syndrome (AGS). We retrospectively evaluated motor phenotypes, neuroimaging, and interferon signatures in patients treated with baricitinib or anifrolumab. Spasticity affected all patients, while dystonia was present in 4/7.
Enrique Gonzalez Saez‐Diez, Monica Ferrer Socorro, Kathryn Yang, Nicole Battaglia, Zainab Zaman, Mariko Bennett, Adeline Vanderver, Pui Y. Lee, Lauren A. Henderson, Milena M. Andzelm, Darius Ebrahimi‐Fakhari   +10 more
wiley   +1 more source

Teaching writing through co-design with rural teachers: An arts-based collaborative autoethnographic reflection

This chapter presents a collaborative autoethnography from two writing professional learning projects conducted in rural schools in Queensland, Australia, and Wyoming, USA.
Brock, C., Pommarane, S., Barton, G., Fanshawe, M.   +3 more
core  

The development of the PET@home toolkit: An experience-based co-design method study. [PDF]

Int J Nurs Stud Adv
Reniers PWA, Hediger K, Declercq IJN, Enders-Slegers MJ, Leontjevas R, Gerritsen DL.   +5 more
europepmc   +1 more source

Persistent Bilateral [18F]THK5351 and Migrating Unilateral [18F]FDG Uptake in Anti‐LGI1 Encephalitis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Anti–leucine‐rich glioma‐inactivated 1 encephalitis (LGI1‐E) can cause persistent cognitive deficits, but the mechanisms remain unclear. A 40‐year‐old woman with LGI1‐E presented with subacute cognitive deficits and showed mild left medial temporal lobe (MTL) swelling and fluid‐attenuated inversion recovery (FLAIR) hyperintensity on initial ...
Yusuke Akitomi, Kenichiro Taira, Masanori Kurihara, Kenji Ishibashi, Kenji Ishii, Fumio Suzuki, Aya Midori Tokumaru, Makoto Hara, Atsushi Iwata   +8 more
wiley   +1 more source

Cocreation of a Video Feedback Tool for Managing Self-Care at Home With Pairs of Older Adults: Remote Experience-Based Co-Design Study. [PDF]

JMIR Form Res
Strandberg S, Ekstedt M, Fagerström C, Backåberg S.   +3 more
europepmc   +1 more source

Designing a Library of Lived Experience for Mental Health: integrated realist synthesis and experience-based co-design study

, 2023
Marshall P, Lobban F, Barbrook J, Collins G, Foster S, Glossop Z, Inkster C, Jebb P, Johnston R, Khan H, Lodge C, Machin K, Michalak EE, Powell S, Russell S, Rycroft-Malone J, Slade M, Whittaker L, Jones S.   +18 more
europepmc   +1 more source

Comparative Effectiveness and Safety of Inebilizumab Versus Rituximab in AQP4‐IgG‐Positive NMOSD

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Rituximab (anti‐CD20, RTX) and inebilizumab (anti‐CD19, INE) represent B‐cell‐depleting therapies used for aquaporin‐4 antibody‐positive (AQP4‐IgG+) neuromyelitis optica spectrum disorder (NMOSD); however, direct comparative evidence remains limited.
Jie Lin, Binbin Xue, Dewei Xie, Jia Li, Juyuan Pan, Lanbing Zhu, Qiaowen Tong, Jing Lin, Ruofan Zhu, Xu Zhang, Junhui Xia, Xiang Li   +11 more
wiley   +1 more source

Using an experience-based co-design approach to develop strategies for implementing an intravenous iron intervention to treat moderate and severe anemia in pregnancy in Malawi. [PDF]

Implement Sci Commun
Mamani-Mategula E, Von-Dinklage N, Sabanovic H, Verbunt E, Prang KH, Chipeta E, Manda-Taylor L.   +6 more
europepmc   +1 more source

Anti‐CD19 CAR T Cells in Autoimmune Encephalitis: Inflammation Controlled, Neurodegeneration Unchecked?

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Just recently, successful chimeric antigen receptor (CAR) T cell therapy was reported in the first patient with refractory, anti‐diacylglycerol lipase alpha (DAGLA) antibody‐mediated autoimmune encephalitis, achieving partial clinical remission.
Dimitrios Mougiakakos, Marwa Al‐Dubai, Denise Walther, Dominic Borie, Jan D. Lünemann, Marc Pawlitzki, Sven G. Meuth, Solveig Henneicke, Stefan Vielhaber, Stefanie Schreiber   +9 more
wiley   +1 more source