Results 111 to 120 of about 69,645 (303)

THE CONDITION OF THE BLOOD IN HEMOPHILIA, THROMBOSIS AND PURPURA [PDF]

, 1914
W. H. Howell
openalex   +1 more source

Factor VIII-Mimetic Function of Humanized Bispecific Antibody in Hemophilia A.

New England Journal of Medicine, 2016
BACKGROUND In patients with severe hemophilia A, standard treatment is regular prophylactic and episodic intravenous infusions of factor VIII. However, these treatments are burdensome, especially for children, and may lead to the formation of anti-factor
M. Shima, H. Hanabusa, M. Taki, T. Matsushita, Tetsuji Sato, K. Fukutake, Naoki Fukazawa, K. Yoneyama, Hiroki Yoshida, K. Nogami   +9 more
semanticscholar   +1 more source

European Principles of Nursing Care for Persons With Inherited Bleeding Disorders

Haemophilia, EarlyView.
ABSTRACT Introduction A nurse is one of the core members of the multidisciplinary haemophilia team. However, what people with inherited bleeding disorders (PwBD) can expect from them has not yet been formally defined. Aim This project, initiated by the EAHAD Nurses Committee, aimed to establish Principles of Nursing Care (PoNC) for PwBD to promote high‐
Nanda Uitslager, Mary Kavanagh, Maj Birkedal, Linda Myrin‐Westesson, the EAHAD Nurses Committee   +4 more
wiley   +1 more source

The Health-Related Quality of Life scores and joint health in children and young adults with hemophilia

The Turkish Journal of Pediatrics
Background. Patients with hemophilia should be evaluated for joint health and overall health in their visits. The aims of this study were to evaluate joint health and health-related quality of life (HRQoL) in patients with mild, moderate, and severe ...
Buse Günyel, Mesut Bulakçı, Gamze Başkent, Ayşegül Ünüvar   +3 more
doaj   +1 more source

Combined Hemophilia and PTC Deficiency [PDF]

, 1955
Joseph M. Hill, R. J. Speer
openalex   +1 more source

Systemic lupus erythematosus caused acquired hemophilia B without evidence of factor IX inhibitors

Rheumatology &Autoimmunity, EarlyView.
Lifang Wang, Yan Ding, Lei Wang, Lianjie Shi   +3 more
wiley   +1 more source

Enhancing Engagement to Support Shared Decision Making Within Haemophilia: Development of Materials for People With Haemophilia, Caregivers and Healthcare Professionals

Haemophilia, EarlyView.
ABSTRACT Introduction Treatment decision making can be complex and challenging for people with haemophilia (PwH) and their caregivers. A shared decision‐making (SDM) approach can ensure that decisions about treatment and care incorporate patients’ beliefs, values, and preferences.
Laura Meade, Haowei (Linda) Sun, Robert J. Klaassen, Roxana Bahar, Shade Olatunde, Michelle Santos, Sheri vanGunst   +6 more
wiley   +1 more source

Acquired hemophilia A

Hematology, 2006
Acquired hemophilia A is a rare but severe autoimmune bleeding disorder, resulting from the presence of autoantibodies directed against clotting factor VIII. The etiology of the disorder remains obscure, although approximately half of all cases are associated with other underlying conditions.
openaire   +3 more sources

Developing a Two‐Sided Decision Box to Facilitate Shared Decision‐Making for Switching From Conventional to Pharmacokinetic‐Tailored Prophylaxis in Haemophilia

Haemophilia, EarlyView.
ABSTRACT Introduction Decision‐making in haemophilia is challenging due to the small evidence base, disease heterogeneity, and inter‐patient variability. Shared decision‐making (SDM) supports patient‐clinician decisions. Aim Creation of a two‐sided decision box facilitating SDM for haemophilia patients switching from conventional (weight‐based) to ...
Arun Keepanasseril, Athena Mancini, Megan S. Lowe, Noella Noronha, Alfonso Iorio   +4 more
wiley   +1 more source

Treatment and Disease Burden in a Cohort of People With Haemophilia Without Inhibitors in the United States

Haemophilia, EarlyView.
ABSTRACT Introduction Haemophilia is a bleeding disorder caused by a deficiency in coagulation factors VIII or IX. Great advances in haemophilia treatment have been achieved in recent decades, with a range of products for prophylaxis now available, the ability to individualise therapy, and resultant improvements in life expectancy and quality of life ...
Allison P. Wheeler, Emily Cibelli, Gillian Hanson, Cléa Percier, Thomas Porstmann, Naveen Shridhar, Amy Shapiro   +6 more
wiley   +1 more source