Results 131 to 140 of about 50,045 (313)

florio HAEMO—A Digital Medical Device for Monitoring of Treatment, Symptoms and Physical Activities for People Living With Haemophilia

Haemophilia, EarlyView.
ABSTRACT Introduction Despite therapeutic achievements in haemophilia care, there is still the need to monitor and define personal treatment outcomes and document results to achieve the best possible care. Hence, a need for unbiased, timely and comprehensive real‐world information exists to support informed shared decision‐making regarding treatment ...
Christoph Königs, Jan Astermark, Jan Blatny, Jamie O´Hara, Allfonso Iorio, Claude Negrier, Flora Peyvandi, Katharina Steinitz, Armin J. Reininger, Santiago Bonanad   +9 more
wiley   +1 more source

Reference Values for the Haemophilia Joint Health Score in Patients With Severe Haemophilia Derived From the Canadian Bleeding Disorder Registry

Haemophilia, EarlyView.
ABSTRACT Background People with haemophilia (PwH) are at increased risk of joint bleeding, often leading to haemophilic arthropathy. The Haemophilia Joint Health Score (HJHS) is widely used to evaluate joint health, but its interpretability is limited by the lack of age‐based reference values.
Khang T. Nguyen, Anthony K. C. Chan, Davide Matino, Emma Iserman, Arun Keepanasseril, Karen Strike   +5 more
wiley   +1 more source

Clinical audit of inherited bleeding disorders in a developing country

Indian Journal of Pathology and Microbiology, 2010
Objective: We did a clinical audit to determine the status of coagulation disorders in a hemophilia care center in Pakistan. Setting: Fatimid foundation blood bank and hematological diseases center, Lahore.
Sajid Raihan, Khalid Safoorah, Mazari Nazish, Azhar Waleed, Khurshid Mohammad   +4 more
doaj  

Direct detection of hemophilia B F9 gene mutation using multiplex PCR and conformation sensitive gel electrophoresis

, 2010
Ki Young Yoo, Hee‐Jin Kim, Kwang Chul Lee   +2 more
openalex   +1 more source

RESULTS OF AN OPEN, PROSPECTIVE, MULTICENTER, NONCOMPARATIVE STUDY OF THE PHARMACOKINETICS, EFFICACY AND SAFETY OF NONACOG ALFA IN PATIENTS AGED 6–12 YEARS WITH SEVERE AND MODERATE HEMOPHILIA B

, 2020
T. A. Andreeva, В. В. Лебедев, Vladimír Vdovin, Margarita Timofeeva, И. Л. Давыдкин, И. А. Лавриченко, O.A. Krasheninnikova, T.V. Asekretova, Pavel Svirin, V.Yu. Petrov, И. В. Куртов, E.E. Shiller, И.С. Тарасова, D.А. Kudlаy, E.V. Gapchenko, О. А. Markova, A.Yu. Borozinets   +16 more
openalex   +1 more source

Immunologic aberrations, HIV seropositivity and seroconversion rates in patients with hemophilia B [PDF]

, 1987
DB Brettler, F Brewster, Pascale Levine, A Forsberg, Sharon M. Baker, JL Sullivan   +5 more
openalex   +1 more source

Enhancing the Evidence for Care in Underserved Bleeding Disorders Communities

Haemophilia, EarlyView.
ABSTRACT Background Major advances in haemophilia care have not translated equitably across all populations. Individuals with rare bleeding disorders (RBDs), people living in low‐ and lower‐middle‐income countries (LMICs) and women and girls with inherited bleeding disorders (WGWBD) continue to face significant diagnostic, therapeutic and research ...
Johnny Mahlangu
wiley   +1 more source

Measurement of basal levels of factor VIIa in hemophilia A and B patients [see comments] [PDF]

, 1992
P Wildgoose, Yale Nemerson, L. L. Hansen, FE Nielsen, S Glazer, Ulla Hedner   +5 more
openalex   +1 more source

The Trust‐Link Relational Transition Model: A Unitary Caring Framework for Youth With HIV Transitioning to Adult Healthcare

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aims To develop a conceptual model integrating Robinson's Theory of Trust and Watson's Caritas Processes to guide trust‐building approaches and caring practices that support adolescents and young adults with HIV during the healthcare transition from paediatric to adult care.
Emily Anne Barr, Sara Horton‐Deutsch
wiley   +1 more source

Use of Fidanacogene Elaparvovec, a Gene Therapy Vector, to Deliver a Stable, Fully Functional Human Factor IX Transgene for the Treatment of Hemophilia B: A Combined Analysis of Safety [PDF]

Ben Samelson-Jones, Laurent Frenzel, Kaan Kavaklı, Adam Cuker, Jerome Teitel, Pengling Sun, Lisa J. Wilcox, Francesca Biondo, Benjamin Hutter, John McKay, Delphine Agathon, Frank Plonski   +11 more
openalex   +1 more source