Results 61 to 70 of about 214,875 (289)

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim, Natalie Bradford, David Brain, Sameera Senanayake, Sanjeewa Kularatna, Kate Young, Christine Cashion, Tim Hassall, Susanna Cramb   +8 more
wiley   +1 more source

Inpatient Food Insecurity and Pediatric Hematology Oncology Hospitalization Outcomes

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Children with cancer and blood disorders are at risk for food insecurity (FI). We aimed to describe the association of inpatient food insecurity (IFI) and hospitalization outcomes among patients admitted to the pediatric hematology oncology service. Of 325 caregivers screened for IFI, 60 (18.6%) screened positive.
Joanna M. Robles, Greg Russell, Leila H. DeWitt, Kimberly Montez, Callie L. Brown   +4 more
wiley   +1 more source

Pulmonary embolism and mortality following total ankle replacement: a data linkage study using the NJR data set [PDF]

, 2016
OBJECTIVE: To determine the mortality rate following total ankle replacement (TAR) and incidence of 90 day pulmonary embolism (PE) along with the associated risk factors.
Cro, Suzie, Goldberg, Andy, MacGregor, Alexander, Zaidi, Razi   +3 more
core   +1 more source

Linkja: Open Source Privacy-Preserving Record Linkage Tool

International Journal of Population Data Science
Objective To introduce Linkja, an open-source, certified, Privacy-Preserving Record Linkage (PPRL) tool with the primary objective of facilitating secure and efficient record linkage across diverse datasets, while preserving individual privacy ...
Kruti Doshi, William Trick, Keiki Hinami
doaj   +1 more source

Germline TP53 Mutations Causing Diamond–Blackfan Anemia: A French Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Diamond–Blackfan anemia is a rare congenital erythroblastopenia typically caused by mutations in ribosomal protein genes. Recently, gain‐of‐function mutations in TP53 have been identified as a novel cause of Diamond–Blackfan anemia. We report two French patients who both harbored a heterozygous TP53 deletion (NM_000546.5: c.1077delA; p ...
Rafael Moisan, Lydie Da Costa, Ludivine David Nguyen, Heloise Chosseler, Audrey Riquet, Benedicte Bruno, Melissa Barbati   +6 more
wiley   +1 more source

Visualising linked health data to explore health events around preventable hospitalisations in NSW Australia [PDF]

, 2016
Objective: To explore patterns of health service use in the lead-up to, and following, admission for a ‘preventable’ hospitalisation. Setting: 266 950 participants in the 45 and Up Study, New South Wales (NSW) Australia Methods: Linked data on ...
Falster, Michael O., Jorm, Louisa R., Leyland, Alastair H.   +2 more
core   +1 more source

The nature and extent of the literature on linked reproductive health datasets in the UK: a scoping review

International Journal of Population Data Science
Introduction Data linkage methodologies are increasingly being utilised across research, but there is currently no evidence on the extent and nature of studies that have used linked reproductive health data.
Jennifer Hall, Lois Harvey-Pescott, Sum Yue (Jessica) Ko, Rose Stevens, Neha Pathak, Ifra Ali, Geraldine Barrett, Jenny Shand, Kelly Dickson   +8 more
doaj   +1 more source

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee, Holly Evans, Claire E. Wakefield, Antoinette Anazodo, Richard J. Cohn, Brittany C. McGill, Elizabeth A. Lobb, Lori Wiener, Madeleine L. Juhrmann, Ursula M. Sansom‐Daly   +9 more
wiley   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

Home Not Found: The Cost of Homelessness In Silicon Valley [PDF]

, 2015
This report analyzes comprehensive cross-sector information about the entire population of residents who experienced homelessness in Santa Clara County at any point during a six year period -- a total of 104,206 individuals. This information includes the
Daniel Flaming, Halil Toros, Patrick Burns   +2 more
core