Results 11 to 20 of about 4,579,575 (247)

Outcome indistinguishability [PDF]

Proceedings of the 53rd Annual ACM SIGACT Symposium on Theory of Computing, 2021
Prediction algorithms assign numbers to individuals that are popularly understood as individual "probabilities" -- what is the probability of 5-year survival after cancer diagnosis? -- and which increasingly form the basis for life-altering decisions. Drawing on an understanding of computational indistinguishability developed in complexity theory and ...
Dwork, Cynthia, Kim, Michael P., Reingold, Omer, Rothblum, Guy N., Yona, Gal   +4 more
openaire   +5 more sources

Research priority-setting for human, plant, and animal virology: an online experience for the Virology Institute of the Philippines

Health Research Policy and Systems, 2021
Background Viral pandemics have had catastrophic consequences on population health and economies. The Philippine government intends to establish the Virology Institute of the Philippines, one of the key areas of which will be virology research.
Reneepearl Kim Sales, Joseph Oraño, Rafael Deo Estanislao, Alfredo Jose Ballesteros, Ma. Ida Faye Gomez   +4 more
doaj   +1 more source

A qualitative study to explore symptoms and impacts of pediatric and adolescent Crohn’s disease from patient and caregiver perspective

Journal of Patient-Reported Outcomes, 2021
Background Crohn’s disease (CD) is a chronic inflammatory condition of the gastrointestinal tract that affects people across the age spectrum but often starts in childhood or early adulthood.
Louise Newton, Laure Delbecque, Ufuk Coşkun, Tara Symonds, Jennifer Clegg, Theresa Hunter   +5 more
doaj   +1 more source

Outcome harvesting, outcome evidencing, outcome trajectories…. Navigating complexity by evaluating outcomes

, 2023
A powerpoint summarizing three outcome evaluation approaches: Outcome Harvesting, Outcome Evidencing, Outcome Trajectory Evaluation.
Blundo Canto, Genowefa, CIRAD-ES-UMR INNOVATION-FRA   +1 more
openaire   +3 more sources

Understanding the patient experience of Classic Galactosemia in pediatric and adult patients: increased disease burden, challenges with daily living, and how they evolve over time

Journal of Patient-Reported Outcomes, 2023
Background Classic Galactosemia (CG) is a rare, autosomal recessive condition. Newborn screening and a timely galactose-restricted diet can resolve acute symptoms and decrease fatalities, but significant chronic, progressive morbidities remain and ...
Jason A. Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Evan Bailey, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge   +7 more
doaj   +1 more source

Outcomes and outcome measures

Haemophilia
AbstractIntroductionAdvances in haemophilia treatment have resulted in a near‐normal life expectancy, lower burden of bleeding and treatment, and improved quality of life in high‐income countries. Bleeding rate is approaching zero and novel parameters should be evaluated to assess the efficacy of treatment not only from the clinical point of view by ...
Giancarlo Castaman, Victor Jimenez‐Yuste, Samanta Gouw, Roseline D'Oiron   +3 more
openaire   +2 more sources

Outcomes Standardisation Project (OSP) for Continuing Medical Education (CE/CME) Professionals: Background, Methods, and Initial Terms and Definitions

Journal of European CME, 2020
Despite an increased focus and urgency for CE/CME professionals to effectively and systematically assess the impact of their educational interventions, the community has struggled to do so. This struggle is in large part due to the lack of a standardised
Brian S. McGowan, Anthia Mandarakas, Sue McGuinness, Jason Olivieri, Karyn Ruiz-Cordell, Greg Salinas, Wendy Turell   +6 more
doaj   +1 more source

The effect of delaying initiation with umeclidinium/vilanterol in patients with COPD: an observational administrative claims database analysis using marginal structural models

Multidisciplinary Respiratory Medicine, 2018
Background Chronic obstructive pulmonary disease (COPD) is associated with high clinical and economic burden. Optimal pharmacological therapy for COPD aims to reduce symptoms and the frequency and severity of exacerbations.
Ami R. Buikema, Lee Brekke, Amy Anderson, Eleena Koep, Damon Van Voorhis, Lucie Sharpsten, Beth Hahn, Riju Ray, Richard H. Stanford   +8 more
doaj   +1 more source

Qualitative interviews with adults with Classic Galactosemia and their caregivers: disease burden and challenges with daily living

Orphanet Journal of Rare Diseases, 2022
Background Classic Galactosemia is a rare, autosomal recessive disease in which galactose is not metabolized properly due to severe deficiency/absence of the galactose-1-phosphate uridylyltransferase (GALT) enzyme, converting to an aberrant and toxic ...
Jason A. Randall, Carolyn Sutter, Stella Wang, Evan Bailey, Lydia Raither, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge   +7 more
doaj   +1 more source

A Predictable Outcome [PDF]

Significance, 2015
Abstract Gianluca Baio and Roberto Cerina used a modified version of a dynamic Bayesian forecasting model to “predict” the 2014 US Senate elections.
Baio, G, Cerina, R
openaire   +2 more sources