Patient and public involvement and engagement in clinical trials at scale: Analysis of the first 3250 responses on the POrtal for Patient and Public Engagement in Dementia (POPPED). [PDF]
Abstract INTRODUCTION Patient and public involvement and engagement (PPIE) improves research quality but is often limited in scale. This study explored the potential for large‐scale PPIE using a Web‐based approach. METHODS
Qin H +13 more
europepmc +6 more sources
Patient and public involvement and engagement with cardiac arrest survivors
Background: Patient and public involvement and engagement (PPIE) with cardiac arrest survivors is an essential component of research to strengthen development, design, delivery and dissemination to ensure research priorities are in the public interest and patient friendly.
Alison Coppola +8 more
openaire +3 more sources
Using Virtual Worlds for Patient and Public Engagement [PDF]
Patient and public involvement is fundamental in healthcare and many methods attempt to facilitate this engagement. The present study investigated use of computer-generated environments known as 'virtual worlds' (VW) as an involvement method. The VW used in the present research was Second Life, which is 3-dimensional, publically accessible and internet-
Michael J, Taylor +5 more
openaire +2 more sources
Sustaining patient and public involvement and engagement in research [PDF]
Editorial briefing.
openaire +2 more sources
Important Considerations for ADHD ‘Patient and Public’ Involvement and Engagement in Research
In this letter, we summarise key points of learning from research projects on attention deficit hyperactivity disorder (ADHD) that have had patient and public involvement and engagement (PPIE) as a key part of the research process. We share learning from our experiences in delivering research working with PPIE groups with ADHD, as top tips for ...
French, B +3 more
openaire +3 more sources
Patient and public engagement in clinical trials
Abstract Clinical research involves the study of people, data or human tissue samples in order to understand health and disease while seeking new and better ways to detect, diagnose, treat and prevent disease. Current global statements support patient and public involvement (also known as PPI or patient engagement) in a range of research activities ...
Kaori Muto, Jin Higashijima
openaire +1 more source
Patient and Public Involvement and Engagement (PPIE): first steps in the process of the engagement in research projects in Brazil [PDF]
Patient and Public Involvement and Engagement (PPIE) - sometimes called Community Engagement and Involvement (CEI) - comes as a big challenge but one that can be very helpful for health care professionals and stakeholders in planning better health policies for attending to the main needs of the community. PPIE involves three pillars: public involvement,
Bensenor, IM +54 more
openaire +4 more sources
Background Surveys of patients suggest many want to be actively involved in treatment decisions for acute coronary syndromes. However, patient experiences of their engagement and participation in early phase decision-making have not been well described ...
Todd Wilson +12 more
doaj +1 more source
Assessment of Public Perception Regarding Patient Engagement for Patient Safety in Korea
Objectives This study conducted a survey to examine how the general public in Korea perceives patient engagement for patient safety and to identify vulnerable groups and contents priorities of patient engagement education for the general public.
Lee, Hyeon-Jeong +6 more
openaire +4 more sources
Background Patient and public involvement and engagement (PPIE) in research is a collaboration between researchers, patients, and the public, enhancing research acceptability, relevance, and impact.
Monaza Khan +11 more
doaj +1 more source

