Results 21 to 30 of about 224,959 (261)

The Ethical Imperative And Moral Challenges Of Engaging Patients And The Public With Evidence [PDF]

Health Affairs, 2016
Engaging patients and the public with evidence is an ethical imperative because engagement is central to respect for persons and will likely improve health outcomes, facilitate the stewardship of resources, enhance prospects for justice, and build public trust.
Mildred Z, Solomon, Michael K, Gusmano, Karen J, Maschke   +2 more
openaire   +2 more sources

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Bridging the Loneliness Gap: Depression, Connectivity, and Isolation in Pediatric Oncology Patients and Their Peers

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Loneliness is associated with adverse physical and mental health outcomes and remains understudied in children and adolescents undergoing cancer therapy. Pediatric oncology patients may be at increased risk due to medical isolation and disruption of social networks.
Charlotte N. Stahlfeld, Scott H. Maurer, Michelle D. Watkinson, John Nury, Elise Barberis, Molly C. Mack   +5 more
wiley   +1 more source

“We’re all in this together”: patient and public involvement and engagement in developing a new psychosocial intervention for adults with an intellectual disability who display aggressive challenging behaviour

Research Involvement and Engagement
Background Although there is consensus regarding the added value of adults with an intellectual disability and family carers as Patient and Public Involvement and Engagement (PPIE) members in research studies, there is limited reporting on the practice ...
Connor Clarke, Athanasia Kouroupa, Rachel Royston, Angela Hassiotis, Yufei Jin, Vivien Cooper, Robert Daniels, Lisa Grimley, Sue Hay, Louise Marston, Olawole Odeyemi, Ian Penfold, Claire Pullar, Penny Rapaport, Kate Sanger, Adam Southworth, Laurence Taggart, Afia Ali   +17 more
doaj   +1 more source

Impact of Radiation Therapy on Physical and Psychosocial Health of Adolescents and Young Adults: A Joint Report From the Children's Oncology Group AYA and Radiation Oncology Committees

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Rates of cancer among adolescents and young adults (AYA), age 15–39 years, are increasing. Consequently, radiation oncologists are treating more AYAs who have diagnoses spanning both pediatric and adult practices. Compared to pediatric and older adult patients, AYAs face a unique set of challenges.
Hesham Elhalawani, Rachel K. Peterson, Avani D. Rao, Laurie J. McKenzie, Ahmed Magdy Elmotayam, Leslie Chang, Michael Roth, Susan L. McGovern   +7 more
wiley   +1 more source

Exploring patient and caregiver perceptions of the meaning of the patient partner role: a qualitative study

Research Involvement and Engagement, 2023
Background The re-conceptualization of patients’ and caregivers’ roles in research from study participants to co-researchers (“patient partners”) has led to growing pains within and outside the research community, such as how to effectively engage ...
Anna Maria Chudyk, Roger Stoddard, Nicola McCleary, Todd A. Duhamel, Carolyn Shimmin, Serena Hickes, Pan-Canadian group of patient and public advisors, Annette S. H. Schultz   +7 more
doaj   +1 more source

Exercise Capacity, Physical Activity, Fatigue, and Neurocognitive Function in Adult Survivors of Childhood Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adult survivors of childhood acute lymphoblastic leukemia (ALL) are at risk of reduced exercise capacity, decreased physical activity levels, persistent fatigue, and neurocognitive deficits. The aim was to investigate exercise capacity and physical activity levels of adult survivors of childhood ALL and their associations with ...
Laura Jess, Gustaf Glavå, Simon Skau, Hans‐Georg Kuhn, Maria Bäck, Marianne Jarfelt   +5 more
wiley   +1 more source

A study of the reporting of patient and public involvement and engagement (PPIE) in orthodontic research [PDF]

Journal of Orthodontics, 2020
Introduction: Patient and public involvement and engagement (PPIE) in research is an essential component of high-quality research. Patients and the public can identify which research topics are most relevant to them, contribute to study design, and interpretation and dissemination of findings.
Veena A Patel, Jonathan Shelswell, Neil Hillyard, Sue Pavitt, Sophy K Barber   +4 more
openaire   +4 more sources

Uncovering Inequities: The Role of Social Determinants of Health in Hospitalized Adolescents and Young Adults With Heavy Menstrual Bleeding

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Heavy menstrual bleeding (HMB) is a common condition among adolescents and young adults (AYAs) and is the leading cause of iron deficiency anemia (IDA) in this population. Growing evidence suggests that social determinants of health (SDOH) influence menstrual bleeding patterns, access to care, and treatment. However, no studies have
Maria Carter‐Febres, Cristina Tarango, Ashley Childress, Chunyan Liu, Evan Thomas, Jennifer Pomales, Eric S. Mullins   +6 more
wiley   +1 more source

From patient to partner: Bridging the divide from laboratory to patient through a “Dragons' Den” style model of co-creation in cancer research

Technical Innovations & Patient Support in Radiation Oncology
Patient and public involvement and engagement (PPIE) in cancer research is increasingly recognised as valuable; yet meaningful participation early in the cancer research pathway remains less common, particularly in pre-clinical science [1] .
Ashwini Job, Beverly Agass, Charlotte E. Coles, Helene Judge, Andrew Land, Deborah Pitfield, Hilary Stobart, Amy Tang, Rhys Grant, Nicola Le Blond, Neil G. Burnet   +10 more
doaj   +1 more source