Results 61 to 70 of about 975,488 (355)

Older care-home residents as collaborators or advisors in research: a systematic review [PDF]

, 2016
Background: patient and public involvement (PPI) in research can enhance its relevance. Older care-home residents are often not involved in research processes even when studies are care-home focused.
Andrea Kenkmann, Anne Killett, Bridget Penhale, Dewar, Fiona Poland, Froggatt, Gordon, Hewitt, Kathleen Lane, Killett, Tamara Backhouse   +10 more
core   +1 more source

The development of the People with Aphasia and Other Layperson Involvement (PAOLI) framework for guiding patient and public involvement (PPI) in aphasia research

Research Involvement and Engagement, 2023
Background Patient and Public Involvement (PPI) in aphasia research requires researchers to include people with aphasia as research partners from the beginning of the study.
M. Charalambous, Alexia Kountouri, J. Schwyter, J. Annoni, M. Kambanaros   +4 more
semanticscholar   +1 more source

Real‐World Pediatric Blinatumomab Administration: Access to Outpatient Care Delivery and Impact of a Hospital‐Dispensed Model

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Blinatumomab has been shown to be highly effective for patients with pediatric B‐ALL and has recently become standard of care therapy. Due to its past use in the clinical trial setting, there is limited information available about real‐world administration.
Katelyn Oranges, Kelly A. Duffy, Sara McDonough, Evelyn Kurpiewski, R. Jennifer Randall, Allison Barz Leahy, Haley M. Newman, Joyce P. Lee, Stephen P. Hunger, Anne F. Reilly, David T. Teachey, Susan R. Rheingold, Daniel J. Zheng   +12 more
wiley   +1 more source

Evaluating public involvement in research design and grant development: Using a qualitative document analysis method to analyse an award scheme for researchers [PDF]

, 2016
Background A regional Research Design Service, funded by the National Institute for Health Research, introduced a small grant in 2008, to support public involvement (often known as patient and public involvement [PPI]) activities during the ...
Allmark, C., Baird, W., Barber, R., Baxter, S.K., Brereton, M.L., Harris, L, Hodges, B., Khan, S., Muir, D.   +8 more
core   +3 more sources

Maximizing the value of patient and public involvement in the digital health co-design process: A qualitative descriptive study with design leaders and patient-public partners

PLOS Digital Health, 2023
Digital health interventions have enormous potential to support patients and the public in achieving their health goals. Nonetheless, many digital health interventions are failing to effectively engage patients and the public.
Paula Voorheis, J. Petch, Quynh Pham, K. Kuluski   +3 more
semanticscholar   +1 more source

Clinical Insights Into Hypercalcemia of Malignancy in Childhood

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Hypercalcemia of malignancy (HCM) is a rare but life‐threatening metabolic emergency in children that occurs in less than 1% of pediatric cancer cases, with a reported incidence ranging from 0.4% to 1.0% across different studies. While it is observed in 10%–20% of adult malignancies, pediatric HCM remains relatively uncommon.
Hüseyin Anıl Korkmaz
wiley   +1 more source

Childbearing women's experiences of midwives’ workplace distress: Patient and Public Involvement [PDF]

, 2018
BackgroundSome midwives experience work-related psychological distress. This can reduce the quality and safety of maternity services, yet there are few interventions to support midwives.
Bailey, Elizabeth, Pearce, Gemma, Pezaro, Sally   +2 more
core   +1 more source

Patient and public involvement to build trust in artificial intelligence: A framework, tools, and case studies

Patterns, 2022
Summary Artificial intelligence (AI) is increasingly taking on a greater role in healthcare. However, hype and negative news reports about AI abound.
Soumya Banerjee, Philip H Alsop, Linda A Jones, R. Cardinal   +3 more
semanticscholar   +1 more source

Survival Outcomes and Complications Among Canadian Children With Retinoblastoma: A Population‐Based Report From CYP‐C

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Retinoblastoma (RB) is the most common pediatric ocular cancer, yet population‐based data on survival and risk factors remain limited. This study aimed to describe survival in a large national RB cohort and identify predictors of death and complications.
Samuel Sassine, Ofélie Trudeau‐Ferrin, Caroline Laverdière, Patrick Hamel, Rosanne Superstein, Bénédicte Koukoui, Carole Provost, Paul C. Nathan, Vijay Ramaswamy, Furqan Shaikh, Brenda Gallie, Ashwin Mallipatna, Stephanie Kletke, Helen Dimaras, Hallie Coltin   +14 more
wiley   +1 more source

More than just ticking a box...how patient and public involvement improved the research design and funding application for a project to evaluate a cycling intervention for hip osteoarthritis [PDF]

, 2015
Background Involving patients and the public in research is an essential activity to ensure relevant, accessible, and appropriate research. There is increasing obligation from funding bodies on researchers to have well thought through plans for ...
A Bandura, BA Evans, J Dawson, K Kline Mangione, KF Koltyn, R Gooberman-Hill, S McConnell, S Staniszewska, TW Wainwright   +8 more
core   +1 more source