Results 11 to 20 of about 2,539,328 (219)

Patient experience of moderate asthma attacks: qualitative research in the USA and Germany

Journal of Patient-Reported Outcomes, 2022
Background There is limited information available on the impact of moderate asthma exacerbations, often called “asthma attacks” (i.e., those not requiring hospitalisation or treatment with systemic corticosteroids) on patients’ lives.
Maggie Tabberer, Jane R. Wells, Dale Chandler, Linda Abetz-Webb, Shiyuan Zhang, Wilhelmine Meeraus, Andy Fowler, David Slade   +7 more
doaj   +1 more source

Psychometric properties of the FACT-M questionnaire in patients with Merkel cell carcinoma

Health and Quality of Life Outcomes, 2017
Background No validated disease-specific questionnaires exist to capture health-related quality of life (HRQoL) in patients with Merkel cell carcinoma (MCC).
Murtuza Bharmal, Fatoumata Fofana, Carla Dias Barbosa, Paul Williams, Lisa Mahnke, Alexia Marrel, Michael Schlichting   +6 more
doaj   +1 more source

Correction to: Psychometric properties of the FACT-M questionnaire in patients with Merkel cell carcinoma

Health and Quality of Life Outcomes, 2019
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Murtuza Bharmal, Fatoumata Fofana, Carla Dias Barbosa, Paul Williams, Lisa Mahnke, Alexia Marrel, Michael Schlichting   +6 more
doaj   +1 more source

Use of the European Organisation for Research and Treatment of Cancer multiple myeloma module (EORTC QLQ-MY20): a review of the literature 25 years after development

Blood Cancer Journal, 2023
The European Organisation for Research and Treatment of Cancer Quality of Life Multiple Myeloma Questionnaire (EORTC QLQ-MY20) was developed in 1996 to assess health-related quality of life (HRQoL) in patients with multiple myeloma. Since its development
K. Forde, K. Cocks, J. R. Wells, I. McMillan, C. Kyriakou, EORTC Quality of Life Group   +5 more
doaj   +1 more source

To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases

Orphanet Journal of Rare Diseases, 2020
Background Over the past 30 years, the healthcare industry has increasingly turned its attention to rare diseases. Regulators have emphasized the need for clinical research in this area to be patient-centered.
Sally Lanar, Catherine Acquadro, James Seaton, Isabelle Savre, Benoit Arnould   +4 more
doaj   +1 more source

Development and content validity assessment of the Dry Eye Disease Questionnaire in patients with dry eye disease, meibomian gland dysfunction, and Sjögren’s syndrome dry eye disease

Journal of Patient-Reported Outcomes, 2023
Background Dry eye disease (DED), Meibomian gland dysfunction (MGD), and Sjögren’s syndrome dry eye disease (SS-DED) are eye dryness conditions that show significant overlap in various symptoms of ocular discomfort.
Brigitte Sloesen, Alyson Young, Katie Forde, Nicola Hodson, Sarah Bentley, Oonagh Walsh, Christel Naujoks, Paul O’Brien, Garima Sharma   +8 more
doaj   +1 more source

Assessing patients’ acceptance of their medication to reveal unmet needs: results from a large multi-diseases study using a patient online community

Health and Quality of Life Outcomes, 2018
Background Patients with chronic conditions are required to take long-term treatments for their disease itself or to prevent any potential health risks.
Jérémy Lambert, Michael Chekroun, Hélène Gilet, Catherine Acquadro, Benoit Arnould   +4 more
doaj   +1 more source

Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement

Research Involvement and Engagement, 2020
Background There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative ...
Andrea Heckert, Laura P. Forsythe, Kristin L. Carman, Lori Frank, Rachel Hemphill, Emily A. Elstad, Laura Esmail, Julie Kennedy Lesch   +7 more
doaj   +1 more source

Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

OTO Open, 2023
Objective To date, no patient‐reported outcome measures have been specifically developed to assess pharmacological treatment effect in participants with severe chronic rhinosinusitis (CRS) with recurrent bilateral nasal polyps (NP).
Adam Gater, Chloe Tolley, Rebecca Williams‐Hall, Claire Trennery, Helena Bradley, Mirko V. Sikirica, Linda Nelsen, Ana R. Sousa, Daniel J. Bratton, Robert Chan, Robyn vonMaltzahn   +10 more
doaj   +1 more source

Psychometric validation and testing of the 10-item pediatric daily chest-related electronic patient reported outcome (ePRO) diary

Journal of Patient-Reported Outcomes, 2023
Background and objective The chest-related electronic patient reported outcome (ePRO) diary was recently developed to assess chest-related symptoms experienced by pediatric and adolescent populations during upper respiratory tract infections (URTI).
Rob Arbuckle, Tim Shea, Kate Burrows, Chris Marshall, Andrew Trigg, Julia Stein, Helmut H. Albrecht   +6 more
doaj   +1 more source