Results 31 to 40 of about 4,197,993 (309)

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment

Journal of Patient-Reported Outcomes, 2020
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for
Leanne Shearsmith, Fiona Kennedy, Oana C. Lindner, Galina Velikova   +3 more
doaj   +1 more source

Integrating Patient-Reported Outcomes

Value in Health, 2004
This paper discusses the relations between different types of patient-reported outcomes that may be collected in clinical studies. Two models are presented that argue that there is a linear relation between the different outcomes. When needs-based quality of life (QoL) is incorporated into the model it is proposed that a two-dimensional relation is ...
McKenna, Stephen P., Doward, Lynda C.
openaire   +2 more sources

Correlated physical and mental health composite scores for the RAND-36 and RAND-12 health surveys: can we keep them simple?

Health and Quality of Life Outcomes, 2022
Background The RAND-36 and RAND-12 (equivalent to versions 1 of the SF-36 Health Survey and SF-12 Health Survey, respectively) are widely used measures of health-related quality of life.
John Roger Andersen, Kyrre Breivik, Inger Elise Engelund, Marjolein M. Iversen, Jorunn Kirkeleit, Tone Merete Norekvål, Kjersti Oterhals, Anette Storesund   +7 more
doaj   +1 more source

Codesigned Shared Decision-Making Diabetes Management Plan Tool for Adolescents With Type 1 Diabetes Mellitus and Their Parents: Prototype Development and Pilot Test [PDF]

, 2018
Background: Adolescents with type 1 diabetes mellitus have difficulty achieving optimal glycemic control, partly due to competing priorities that interfere with diabetes self-care.
Carroll, Aaron E., Cheng, Erika R., Claxton, Gina E. M., Hannon, Tamara S., Lynch, Dustin O., Moore, Courtney M., Wiehe, Sarah E., Yazel-Smith, Lisa G.   +7 more
core   +1 more source

Defining Patient-Reported Outcomes

Value in Health, 2004
This paper considers and defines the different types of patient-reported outcomes that can be collected in clinical studies. In particular, it argues that quality of life (QoL) is a distinctly different type of outcome from Health-Related Quality of Life (HRQL).
Doward, Lynda C., McKenna, Stephen P.
openaire   +2 more sources

Treatment Initiation, Program Attrition and Patient Treatment Outcomes associated with Scale-up and Decentralization of HIV care in rural Malawi [PDF]

, 2012
To describe patient antiretroviral therapy (cART) outcomes associated with intensive decentralization of services in a rural HIV program in ...
McGuire, Megan, Pinoges, Loretxu, Kanapathipillai, Rupa, Munyenyembe, Tamika, Huckabee, Martha, Makombe, Simon, Szumilin, Elisabeth, Heinzelmann, Annette, Pujades-Rodríguez, Mar   +8 more
core   +5 more sources

Patient Experience of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP): A Qualitative Exploration of Signs, Symptoms, and Health-Related Quality of Life Impacts

Neurology and Therapy
Introduction Chronic inflammatory demyelinating polyneuropathy (CIDP) is a rare type of autoimmune neuropathy, characterized by signs of distal and proximal weakness of the upper and lower limbs, sensory dysfunction, absent or diminished tendon reflexes,
Anna Roberts, Natasha Griffiths, Kieran Thiara, Sophie Wallace, Alyson L. Young, Nicola Williamson, Adam Gater, Omar Saeed, Charles Minor, Natalia Hawken   +9 more
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Development and evaluation of the Acromegaly Symptom Diary

Journal of Patient-Reported Outcomes, 2023
Background Patient-reported outcome (PRO) measures are important to consider when evaluating treatments, yet there are no PRO measures for patients with acromegaly that have been developed in accordance with US Food and Drug Administration guidance ...
Susan Martin, Randall H. Bender, Alan Krasner, Tonya Marmon, Michael Monahan, Lauren Nelson   +5 more
doaj   +1 more source

Miscommunication in Doctor-Patient Communication [PDF]

, 2018
The effectiveness of medical treatment depends on the quality of the patient–clinician relationship. It has been proposed that this depends on the extent to which the patient and clinician build a shared understanding of illness and treatment.
Bavelas, Bjørndahl, Blatt, Bolden, Brennan, Brennan, Britten, Brown, Colloca, Deppermann, Drew, Drew, Epstein, Fallowfield, Fisher, Freud, Gehrs, Goodwin, Hayashi, Healey, Healey, Healey, Heritage, Heritage, Hinshelwood, Holtedahl, Howes, Jaspers, Johansson, Kagawa-Singer, Kaplan, Kendrick, Kurtz, Lerner, Lerner, Levinson, Lieberman, McCabe, McCabe, McCabe, McCabe, McCabe, McCabe, McGuire-Snieckus, Mead, Michie, Moerman, Priebe, Rathert, Roter, Roter, Roter, Sacks, Schegloff, Schegloff, Schegloff, Schiffrin, Stewart, Stiles, Street, Tattan, Walach, Watzlawick, Weiss, Zolnierek   +64 more
core   +2 more sources