Results 21 to 30 of about 2,861,427 (316)

Use of the European Organisation for Research and Treatment of Cancer multiple myeloma module (EORTC QLQ-MY20): a review of the literature 25 years after development

Blood Cancer Journal, 2023
The European Organisation for Research and Treatment of Cancer Quality of Life Multiple Myeloma Questionnaire (EORTC QLQ-MY20) was developed in 1996 to assess health-related quality of life (HRQoL) in patients with multiple myeloma. Since its development
K. Forde, K. Cocks, J. R. Wells, I. McMillan, C. Kyriakou, EORTC Quality of Life Group   +5 more
doaj   +1 more source

Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement

Research Involvement and Engagement, 2020
Background There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative ...
Andrea Heckert, Laura P. Forsythe, Kristin L. Carman, Lori Frank, Rachel Hemphill, Emily A. Elstad, Laura Esmail, Julie Kennedy Lesch   +7 more
doaj   +1 more source

Development and content validity assessment of the Dry Eye Disease Questionnaire in patients with dry eye disease, meibomian gland dysfunction, and Sjögren’s syndrome dry eye disease

Journal of Patient-Reported Outcomes, 2023
Background Dry eye disease (DED), Meibomian gland dysfunction (MGD), and Sjögren’s syndrome dry eye disease (SS-DED) are eye dryness conditions that show significant overlap in various symptoms of ocular discomfort.
Brigitte Sloesen, Alyson Young, Katie Forde, Nicola Hodson, Sarah Bentley, Oonagh Walsh, Christel Naujoks, Paul O’Brien, Garima Sharma   +8 more
doaj   +1 more source

Patient safety culture, compassion fatigue, compassion satisfaction: Impact on nurse-sensitive patient outcomes. [PDF]

Improved patient safety has been one of the most critical issues facing the healthcare industry. The 1999 IOM report To Err Is Human stated avoidable medical errors contributed to 44,000 to 98,000 deaths in the United States.
Anglade, Debbie, Cianelli, Rosina
core   +6 more sources

Heterogeneity in patient-reported outcomes following low-intensity mental health interventions:a multilevel analysis [PDF]

, 2014
BackgroundVariability in patient-reported outcomes of psychological treatments has been partly attributed to therapists ? a phenomenon commonly known as therapist effects.
Alfonso Miranda, Ali Shehzad, Simon Gilbody, Croudace, Tim; id_orcid, McMillan, Dean, Miranda Alfonso, Miranda, A., Tim Croudace, Croudace, T., McMillan Dean, Croudace Tim, Gilbody Simon, Miranda, Alfonso, Littlewood Elizabeth, Delgadillo, J., Delgadillo Jaime, Gilbody, Simon, Shehzad Ali, Delgadillo, Jaime, McMillan, D., Jaime Delgadillo, Ali, Shehzad, Gilbody, S., Littlewood, E., Ali, S., Littlewood, Elizabeth, Elizabeth Littlewood, Dean McMillan   +27 more
core   +1 more source

Informative material for patient empowerment in sensitive situations [PDF]

, 2023
Women diagnosed with HPV face a hard-to-understand disease that may impact their psychological and physical health and may pose challenges communicating with healthcare providers in sensitive settings.
Reychav, Iris, McHaney, Roger, Lauren Shapira, Amy, Zhu, Lin, Raban, Daphne R., Moshonov, Rami, Parush, Avi   +6 more
core   +2 more sources

Assessing patients’ acceptance of their medication to reveal unmet needs: results from a large multi-diseases study using a patient online community

Health and Quality of Life Outcomes, 2018
Background Patients with chronic conditions are required to take long-term treatments for their disease itself or to prevent any potential health risks.
Jérémy Lambert, Michael Chekroun, Hélène Gilet, Catherine Acquadro, Benoit Arnould   +4 more
doaj   +1 more source

To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases

Orphanet Journal of Rare Diseases, 2020
Background Over the past 30 years, the healthcare industry has increasingly turned its attention to rare diseases. Regulators have emphasized the need for clinical research in this area to be patient-centered.
Sally Lanar, Catherine Acquadro, James Seaton, Isabelle Savre, Benoit Arnould   +4 more
doaj   +1 more source

Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

OTO Open, 2023
Objective To date, no patient‐reported outcome measures have been specifically developed to assess pharmacological treatment effect in participants with severe chronic rhinosinusitis (CRS) with recurrent bilateral nasal polyps (NP).
Adam Gater, Chloe Tolley, Rebecca Williams‐Hall, Claire Trennery, Helena Bradley, Mirko V. Sikirica, Linda Nelsen, Ana R. Sousa, Daniel J. Bratton, Robert Chan, Robyn vonMaltzahn   +10 more
doaj   +1 more source

General practitioner empathy, patient enablement, and patient-reported outcomes in primary care in an area of high socio-economic deprivation in Scotland - a pilot prospective study using structural equation modelling [PDF]

, 2008
<b>Objective</b> The aim of this pilot prospective study was to investigate the relationships between general practitioners (GPs) empathy, patient enablement, and patient-assessed outcomes in primary care consultations in an area of high ...
Neumann, M., Fitzpatrick, B., Fitzpatrick, Bridie, Neumann, Melanie, Wirtz, Markus, Vojt, Gaby, Wirtz, M., Mercer , Stewart W., Mercer, S.W., Fitzpatrick , Bridie, Mercer, Stewart W., Vojt, G.   +11 more
core   +1 more source