Results 21 to 30 of about 8,587,641 (307)

Qualitative study to characterize patient experience and relevance of patient-reported outcome measures for patients with metastatic synovial sarcoma

Journal of Patient-Reported Outcomes, 2022
Background The outlook for patients with metastatic synovial sarcoma (mSS) is poor. Better understanding of patient experience in this setting, beyond clinical measures, may guide improvements in management.
Laurie Eliason, Laura Grant, Anya Francis, Anna Cardellino, Ken Culver, Sant P. Chawla, Rob Arbuckle, Shibani Pokras   +7 more
doaj   +1 more source

Call for Submissions Special Issue - July 2020: Patient & Family Experience in Behavioral Health [PDF]

, 2019
Patient Experience Journal (PXJ) is excited to announce the call for submissions for its July 2020 special issue on the topic of patient & family experience in behavioral health. With a continued focus on the critical role of behavioral health in society
Journal, Patient Experience, Patient Experience Journal   +1 more
core   +1 more source

Patient Experience Journal Awards: Celebrating our 2019 Recipients [PDF]

, 2020
In association with The Beryl Institute, Patient Experience Journal introduced the inaugural Patient Experience Journal (PXJ) Awards. The annual awards celebrate important contributions to the literature and articles of impact in research and practice ...
Journal, Patient Experience, Patient Experience Journal   +1 more
core   +1 more source

Electronic patient-reported monitoring of symptoms during follow-up of ovarian cancer patients: a feasibility study

BMC Cancer, 2022
Background Ovarian cancer patients require monitoring for relapse. Innovative follow-up methods are increasingly being explored. An electronic patient-reported outcome (ePRO) follow-up pathway was developed for women treated for ovarian cancer.
Fiona Kennedy, Leanne Shearsmith, Marie Holmes, Zoe Rogers, Rob Carter, Uschi Hofmann, Galina Velikova   +6 more
doaj   +1 more source

Heterogeneity in patient-reported outcomes following low-intensity mental health interventions:a multilevel analysis [PDF]

, 2014
BackgroundVariability in patient-reported outcomes of psychological treatments has been partly attributed to therapists ? a phenomenon commonly known as therapist effects.
Alfonso Miranda, Ali Shehzad, Simon Gilbody, Croudace, Tim; id_orcid, McMillan, Dean, Miranda Alfonso, Miranda, A., Tim Croudace, Croudace, T., McMillan Dean, Croudace Tim, Gilbody Simon, Miranda, Alfonso, Littlewood Elizabeth, Delgadillo, J., Delgadillo Jaime, Gilbody, Simon, Shehzad Ali, Delgadillo, Jaime, McMillan, D., Jaime Delgadillo, Ali, Shehzad, Gilbody, S., Littlewood, E., Ali, S., Littlewood, Elizabeth, Elizabeth Littlewood, Dean McMillan   +27 more
core   +1 more source

Patient Experience of Lichen Planus: A Qualitative Exploration of Signs, Symptoms, and Health-Related Quality of Life Impacts

Dermatology and Therapy, 2023
Introduction Lichen planus (LP) is an inflammatory skin disorder that can present in various forms across the body, including lesions on the skin (cutaneous LP [CLP]), scalp (lichen planopilaris [LPP]), and mucosal regions (mucosal LP [MLP]). Qualitative
Aoife Mahon-Smith, Molly Clifford, Anjali Batish, Rosie Sharp, Charlotte Panter, Christel Naujoks, Eva Schruf, Nicolò Compagno, Santiago G. Moreno   +8 more
doaj   +1 more source

So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research [PDF]

, 2015
This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts.
Kratchman, Amy, Norton, M.A., Christine K., Brodt, M.P.P., Amanda   +2 more
core   +1 more source

How to address the challenges of evaluating treatment benefits-risks in rare diseases? A convergent mixed methods approach applied within a Merkel cell carcinoma phase 2 clinical trial

Orphanet Journal of Rare Diseases, 2018
Background Demonstrating treatment benefits within clinical trials in the context of rare diseases is often methodologically and practically challenging. Mixed methods research offers an approach to overcome these challenges by combining quantitative and
Murtuza Bharmal, Isabelle Guillemin, Alexia Marrel, Benoit Arnould, Jérémy Lambert, Meliessa Hennessy, Fatoumata Fofana   +6 more
doaj   +1 more source

A qualitative exploration of the patient experience of erosive and non-erosive hand osteoarthritis

Journal of Patient-Reported Outcomes, 2021
Background Many patients with hand osteoarthritis (HOA) experience reduced health-related quality of life. This study sought to better understand the disease and treatment experience of individuals with HOA, explore any differences in experiences between
Charlotte Panter, Pamela Berry, Deven Chauhan, Sofia Fernandes, Sally Gatsi, Josephine Park, Jane R. Wells, Rob Arbuckle   +7 more
doaj   +1 more source

Generation of evidence supporting the content validity of SF-36, FACIT-F, and LupusQoL, and novel patient-reported symptom items for use in patients with systemic lupus erythematosus (SLE) and SLE with lupus nephritis (LN)

Lupus Science and Medicine, 2022
Objective SLE and lupus nephritis (LN) have significant impacts on the health-related quality of life of patients living with the condition, which are important to capture from the patient’s perspective using patient-reported outcomes (PROs).
Vibeke Strand, Anna Roberts, Zahi Touma, Amy Ward, Pamela Berry, Rebecca Williams-Hall, Nicola Williamson, Melissa Barclay, Adam Gater, Chloe Tolley, Helena Bradley, Elizabeth Hsia, Qing Zuraw, Patricia DeLong   +13 more
doaj   +1 more source