Results 21 to 30 of about 4,197,993 (309)

Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement

open access: yesResearch Involvement and Engagement, 2020
Background There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative ...
Andrea Heckert   +7 more
doaj   +1 more source

Assessing patients’ acceptance of their medication to reveal unmet needs: results from a large multi-diseases study using a patient online community

open access: yesHealth and Quality of Life Outcomes, 2018
Background Patients with chronic conditions are required to take long-term treatments for their disease itself or to prevent any potential health risks.
Jérémy Lambert   +4 more
doaj   +1 more source

Patient‐Reported Outcome Measures for Severe Recurrent Bilateral Nasal Polyps: Psychometric Evaluation and Content Validity

open access: yesOTO Open, 2023
Objective To date, no patient‐reported outcome measures have been specifically developed to assess pharmacological treatment effect in participants with severe chronic rhinosinusitis (CRS) with recurrent bilateral nasal polyps (NP).
Adam Gater   +10 more
doaj   +1 more source

The impact of facilities management on patient outcomes [PDF]

open access: yes, 2008
Purpose – The purpose of this paper is to investigate the extent to which practicing National Health Service (NHS) facilities managers thought that the contribution of facilities management (FM) could be measured in terms of health outcomes.
May, D., Pinder, J.
core   +1 more source

Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research. [PDF]

open access: yes, 2014
The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials.
Andrew A. Nierenberg   +24 more
core   +1 more source

Psychometric validation and testing of the 10-item pediatric daily chest-related electronic patient reported outcome (ePRO) diary

open access: yesJournal of Patient-Reported Outcomes, 2023
Background and objective The chest-related electronic patient reported outcome (ePRO) diary was recently developed to assess chest-related symptoms experienced by pediatric and adolescent populations during upper respiratory tract infections (URTI).
Rob Arbuckle   +6 more
doaj   +1 more source

Assessing and enhancing quality through outcomes-based continuing professional development (CPD): a review of current practice [PDF]

open access: yes, 2016
Numerous professional bodies have questioned whether traditional input-based continuing professional development (CPD) schemes are effective at measuring genuine learning and improving practice performance and patient health.
May, S A, Wallace, S
core   +2 more sources

Effectiveness of delayed-release dimethyl fumarate on patient-reported outcomes and clinical measures in patients with relapsing-remitting multiple sclerosis in a real-world clinical setting: PROTEC. [PDF]

open access: yes, 2019
Ensaio clínico PROTEC, Protocolo nº 109MS408Abstract BACKGROUND: Patient-reported outcomes (PRO) and clinical outcomes give a broad assessment of relapsing-remitting multiple sclerosis (RRMS) disease.
Berger, T   +5 more
core   +1 more source

Patient-reported Outcomes (PROs) [PDF]

open access: yesMedical Care, 2013
Patient-centered outcomes research (PCOR) aims to improve care quality and patient outcomes by providing information that patients, clinicians, and family members need regarding treatment alternatives, and emphasizing patient input to inform the research process.
Claire F, Snyder   +3 more
openaire   +2 more sources

Understanding key symptoms, side effects, and impacts of HR+/HER2- advanced breast cancer: qualitative study findings

open access: yesJournal of Patient-Reported Outcomes, 2019
Background Patients with breast cancer experience a variety of disease symptoms and treatment-related side effects that can adversely affect functioning. The breast cancer experience may differ across disease stages and biomarker subtypes.
Nina Galipeau   +5 more
doaj   +1 more source

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