Results 41 to 50 of about 7,135 (173)

Health-Related Quality of Life in Children With Earlier Surgical Repair for Right Ventricular Outflow Tract Anomalies and the Agreement Between Children and Their Parents

Frontiers in Cardiovascular Medicine, 2020
Background: Children diagnosed with right ventricle outflow tract (RVOT) anomalies require surgical repair early in life, reoperations and lifelong follow-up.
Birgitta Svensson, Ewa Idvall, Fredrik Nilsson, Petru Liuba   +3 more
doaj   +1 more source

Agreement and 2‐year trajectories of youth‐ and parent‐reported health‐related quality of life in youth with epilepsy treated with surgery vs medical therapy

Epilepsia, EarlyView.
Abstract Objective This cohort study examined the agreement between youth‐ and parent‐reported health‐related quality of life (HRQOL) of children treated with epilepsy surgery compared to medical therapy. A second aim was to evaluate whether changes in HRQOL over 2 years differed between the two groups, and to determine whether these trajectories ...
Mary Lou Smith, Klajdi Puka, Elysa Widjaja   +2 more
wiley   +1 more source

Impacto negativo da obesidade sobre a qualidade de vida de crianças

Revista Brasileira de Obesidade, Nutrição e Emagrecimento, 2018
A obesidade infantil é um dos mais sérios desafios de saúde pública do século. No Brasil, um em cada cinco estudantes apresenta sobrepeso ou obesidade.
Louise Menezes da Cunha, Matheus de Sousa Pantoja, Márcia Bitar Portella, Ismari Perini Furlaneto, Ana Victória Martins Lima   +4 more
doaj  

Evaluating Brief Behavioural Activation for depression in adolescents with acquired brain injury using a single‐case experimental design

JCPP Advances, EarlyView.
Abstract Background Adolescents who have had an acquired brain injury (ABI) commonly experience depression. Brief Behavioural Activation (Brief BA) is a successful, values‐based intervention for managing depression in neurotypical adolescents. This study investigated the effectiveness of Brief BA, using a single‐case experimental design, with ...
Conor R. O’Brien, Jenny Limond, Shirley Reynolds, Laura Pass, Anna‐Lynne R. Adlam   +4 more
wiley   +1 more source

Development and Evaluation of an Electronic Patient‐Reported Outcome Platform for Children Undergoing Radiation Therapy

Journal of Medical Radiation Sciences, EarlyView.
An electronic platform for routine health‐related quality of life assessment in paediatric radiation therapy was developed and evaluated through user‐centred design and iterative testing. The platform was found to be intuitive and child‐friendly, with participants successfully completing tasks and offering feedback to guide refinement and future ...
Mikaela Doig, Andrew Cunningham, Victoria Bedford, Hien Le, Matthew O'Connor, Sophie Jessop, Eva Bezak, Nayana Parange, Amanda Hutchinson, Peter Gorayski, Michala Short   +10 more
wiley   +1 more source

Healthcare Professional Perspectives on Digital Health‐Related Quality‐of‐Life Assessment in Paediatric Radiation Therapy: A Qualitative Study

Journal of Medical Radiation Sciences, EarlyView.
This study examined the barriers and facilitators to incorporating health‐related quality of life (HRQoL) assessment into routine paediatric radiation therapy practice from the perspectives of healthcare professionals. Key requirements for a digital patient‐reported outcome measure platform and recommendations for clinical implementation were ...
Mikaela Doig, Andrew Cunningham, Victoria Bedford, Hien Le, Matthew O'Connor, Eva Bezak, Nayana Parange, Amanda Hutchinson, Peter Gorayski, Michala Short   +9 more
wiley   +1 more source

Quality of Life Outcomes for Patients Who Underwent Conventional Resection and Liver Transplantation for Locally Advanced Hepatoblastoma

Children, 2023
Hepatoblastoma is the most common malignant liver tumor of childhood, with liver transplant and extended resection used as surgical treatments for locally advanced tumors. Although each approach has well-described post-operative complications, quality-of-
Zishaan Farooqui, Michael Johnston, Emily Schepers, Nathalie Brewer, Stephen Hartman, Todd Jenkins, Alexander Bondoc, Ahna Pai, James Geller, Gregory M. Tiao   +9 more
doaj   +1 more source

Quality of life for pediatric patients with short bowel syndrome‐associated intestinal failure treated with teduglutide

Journal of Pediatric Gastroenterology and Nutrition, EarlyView.
Abstract Objectives The complex care needs of pediatric patients with short bowel syndrome‐associated intestinal failure (SBS‐IF) can negatively impact the health‐related quality of life (HRQoL) of patients and their caregivers. We assessed the impact of teduglutide on HRQoL of pediatric patients with SBS‐IF.
Danielle Wendel, Paul W. Wales, Samuel Kocoshis, Robert Venick, Beth Carter, Valeria Cohran, Cheney Matthews, Bram P. Raphael, Ian Robinson, Susan Hill   +9 more
wiley   +1 more source

Comparison of child and family reports of health-related quality of life in pediatric acute lymphoblastic leukemia patients after induction therapy

BMC Pediatrics, 2020
Background This study aims at determining the health-related quality of life (HRQOL) of children with acute lymphoblastic leukemia (ALL) after the induction therapy, assessing the agreement between child self-reports and family proxy-reports HRQOL, and ...
Shohei Nakajima, Iori Sato, Takafumi Soejima, Katsuyoshi Koh, Motohiro Kato, Yasuhiro Okamoto, Toshihiko Imamura, Miho Maeda, Yasushi Ishida, Atsushi Manabe, Kiyoko Kamibeppu   +10 more
doaj   +1 more source

The Brain‐Age Gap in Pediatric Dystonia: Neuroanatomical Deviations Inform Deep Brain Stimulation Outcomes

Movement Disorders, EarlyView.
Abstract Background Dystonia in children is a heterogeneous condition with variable response to deep brain stimulation (DBS). Brain‐age gap, a machine learning‐derived metric of structural deviation from norm, may capture signatures that differentiate underlying biotypes and predict outcomes.
Timur H. Latypov, Alexandre Berger, Manuela Mohareb, Karim Mithani, Sara Breitbart, Lindsey M. Vogt, Thiemo Dinger, Inge Meijer, Alexander G. Weil, Alfonso Fasano, Carolina Gorodetsky, George M. Ibrahim   +11 more
wiley   +1 more source