Results 1 to 10 of about 2,639,699 (314)

How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

BMC Palliative Care, 2023
Background Advance care planning (ACP) is the process supporting individuals with life-limiting illness to make informed decisions about their future healthcare.
Jodie Crooks, Sophie Trotter, Patient Public Involvement Consortium, Gemma Clarke   +3 more
doaj   +1 more source

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

Frontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan, Kevin Foley, Jessica Gough, Sarah Harrington, Éabha Wall, Fiona Weldon, Jennifer M. Ryan, Jennifer M. Ryan, Claire Kerr, Aisling Walsh, Jennifer Fortune   +10 more
doaj   +1 more source

Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review

Systematic Reviews, 2022
Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle, Anne MacFarlane, Jon Salsberg   +2 more
doaj   +1 more source

Personal assistants in England and the factors associated with absenteeism

Frontiers in Public Health, 2022
Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland, Stephen Allan, Eleni Chambers, Eleni Chambers, Debs Smith, Debs Smith, Katerina Gousia   +6 more
doaj   +1 more source

Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

Research Involvement and Engagement, 2021
Plain English Summary Involving patients, family carers and members of the public in research is known as patient and public involvement, or PPI. In health and social care research, PPI is considered important by many, including patients and research ...
Julia Jones, Marion Cowe, Sue Marks, Tony McAllister, Alex Mendoza, Carole Ponniah, Helena Wythe, Elspeth Mathie   +7 more
doaj   +1 more source

Patient and public involvement [PDF]

Annals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart, R, Wilson, P, Selby, J, Darbyshire   +3 more
openaire   +2 more sources

Maternal mental health: a key area for future research among women with congenital heart disease

Open Heart, 2023
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift, Nigel E Drury, Karin Eli, Caroline E Fox, Lucy E Hudsmith, Anna Lavis, James S Castleman, Donna Giles, Laura Grocott, Kirsty Harrison, Katharina Kaplan, Heather McDougall, Charlene Powell   +12 more
doaj   +1 more source

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Research Involvement and Engagement, 2021
Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small, Bie Nio Ong, Annmarie Lewis, Dawn Allen, Nigel Bagshaw, Papreen Nahar, Caroline Sanders, the DEPEND team   +7 more
doaj   +1 more source

The public and patient involvement imperative in Ireland: Building on policy drivers

Frontiers in Public Health, 2022
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle, Meghan Gilfoyle, Anne MacFarlane, Anne MacFarlane, Ailish Hannigan, Ailish Hannigan, Vikram Niranjan, Zoe Hughes, Jon Salsberg, Jon Salsberg   +9 more
doaj   +1 more source

Governing Researchers through Public Involvement [PDF]

Journal of Social Policy, 2021
AbstractThis paper focuses on recent developments in UK health research policy, which place new pressures on researchers to address issues of accountability and impact through the implementation of patient and public involvement (PPI). We draw on an in-depth interview study with 20 professional researchers, and we analyse their experiences of competing
ARIS KOMPOROZOS-ATHANASIOU, JONATHAN PAYLOR, CHRISTOPHER MCKEVITT   +2 more
openaire   +3 more sources