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Regional working in the East of England: using the UK National Standards for Public Involvement [PDF]

open access: yesResearch Involvement and Engagement, 2018
Plain English summary Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK).
Elspeth Mathie   +6 more
doaj   +4 more sources

Engaging adults with severe mental illness in research: considerations and practical recommendations for meaningful patient and public involvement [PDF]

open access: yesResearch Involvement and Engagement
Background Patient and public involvement (PPI) in mental health research is essential but presents unique challenges, particularly when engaging adults with severe mental illness (SMI).
Emily Shoesmith   +9 more
doaj   +2 more sources

How does ethnicity affect presence of advance care planning in care records for individuals with advanced disease? A mixed-methods systematic review

open access: yesBMC Palliative Care, 2023
Background Advance care planning (ACP) is the process supporting individuals with life-limiting illness to make informed decisions about their future healthcare.
Jodie Crooks   +3 more
doaj   +1 more source

Public and Patient Involvement in Doctoral Research During the COVID-19 Pandemic: Reflections on the Process, Challenges, Impact and Experiences From the Perspectives of Adults With Cerebral Palsy and the Doctoral Researcher

open access: yesFrontiers in Rehabilitation Sciences, 2022
IntroductionCerebral palsy (CP) is a lifelong condition, where people may experience complications as they age. Including the views of people with CP through Public and Patient Involvement (PPI) ensures that research into the condition is relevant and ...
Manjula Manikandan   +10 more
doaj   +1 more source

Conceptualising, operationalising, and measuring trust in participatory health research networks: a scoping review

open access: yesSystematic Reviews, 2022
Background There are many described benefits of community-based participatory research (CBPR), such as increased relevance of research for those who must act on its findings.
Meghan Gilfoyle   +2 more
doaj   +1 more source

Personal assistants in England and the factors associated with absenteeism

open access: yesFrontiers in Public Health, 2022
Personal assistants (PAs) have become an increasingly important element of long-term care (LTC) in England since the introduction of Direct Payments in 1996 and the Care Act 2014 legislation.
Daniel Roland   +6 more
doaj   +1 more source

Doing Science: How to optimise patient and public involvement in your research [PDF]

open access: yes, 2015
This paper considers how best to achieve patient and public involvement in research and how to get the most out of it http://ow.ly ...
Bjerg, A   +4 more
core   +4 more sources

Reporting on patient and public involvement (PPI) in research publications: using the GRIPP2 checklists with lay co-researchers

open access: yesResearch Involvement and Engagement, 2021
Plain English Summary Involving patients, family carers and members of the public in research is known as patient and public involvement, or PPI. In health and social care research, PPI is considered important by many, including patients and research ...
Julia Jones   +7 more
doaj   +1 more source

Patient and public involvement [PDF]

open access: yesAnnals of Oncology, 2011
The involvement of patients and the public in the development of clinical research initiatives in the UK has been central and is increasing. Whilst initially developed in relation to cancer research and cancer care, this activity has now generalized to all of healthcare research particularly through organizations such as INVOLVE (www.invo.org.uk ...
D, Stewart   +3 more
openaire   +2 more sources

Maternal mental health: a key area for future research among women with congenital heart disease

open access: yesOpen Heart, 2023
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift   +12 more
doaj   +1 more source

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