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Regional working in the East of England: using the UK National Standards for Public Involvement [PDF]

open access: yesResearch Involvement and Engagement, 2018
Plain English summary Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK).
Elspeth Mathie   +6 more
doaj   +4 more sources

Doing Science: How to optimise patient and public involvement in your research [PDF]

open access: yes, 2015
This paper considers how best to achieve patient and public involvement in research and how to get the most out of it http://ow.ly ...
Bjerg, A   +4 more
core   +4 more sources

Research Commentary: A Carer’s Roadmap for Research, Practice, and Policy on Suicide, Homicide, and Self-Harm

open access: yesBehavioral Sciences, 2019
Academic researchers are increasingly asked to engage with the wider world, both in terms of creating impact from their work, and in telling the world what goes on in university research departments.
Anonymous Members of the Peninsula Public Involvement Group   +2 more
doaj   +1 more source

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

open access: yesBMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin   +8 more
doaj   +1 more source

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

open access: yesResearch Involvement and Engagement, 2018
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie   +11 more
doaj   +1 more source

Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA

open access: yesFrontiers in Medical Technology, 2021
The COVID-19 pandemic and lockdown measures in the United Kingdom resulted in significant challenges and created opportunities for innovation to keep patients at the heart of HTA.
Mark Rasburn   +6 more
doaj   +1 more source

Co-creation of a complex, multicomponent rehabilitation intervention and feasibility trial protocol for the PostUraL tachycardia Syndrome Exercise (PULSE) study

open access: yesPilot and Feasibility Studies, 2023
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce   +13 more
doaj   +1 more source

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

open access: yesJournal of Patient Experience, 2023
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes   +7 more
doaj   +1 more source

Reflections and Experiences of a Co-Researcher involved in a Renal Research Study [PDF]

open access: yes, 2018
Background Patient and Public Involvement (PPI) is seen as a prerequisite for health research. However, current Patient and public involvement literature has noted a paucity of recording of patient and public involvement within research studies.
A Simpson   +26 more
core   +3 more sources

Reducing health inequalities through general practice: protocol for a realist review (EQUALISE)

open access: yesBMJ Open, 2021
Introduction Healthcare organisations recognise the moral imperative to address inequalities in health outcomes but often lack an understanding of which types of interventions are likely to reduce them.
Geoff Wong   +10 more
doaj   +1 more source

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