Results 11 to 20 of about 2,644,827 (313)

Governing Researchers through Public Involvement [PDF]

Journal of Social Policy, 2021
AbstractThis paper focuses on recent developments in UK health research policy, which place new pressures on researchers to address issues of accountability and impact through the implementation of patient and public involvement (PPI). We draw on an in-depth interview study with 20 professional researchers, and we analyse their experiences of competing
ARIS KOMPOROZOS-ATHANASIOU, JONATHAN PAYLOR, CHRISTOPHER MCKEVITT   +2 more
openaire   +3 more sources

Research Commentary: A Carer’s Roadmap for Research, Practice, and Policy on Suicide, Homicide, and Self-Harm

Behavioral Sciences, 2019
Academic researchers are increasingly asked to engage with the wider world, both in terms of creating impact from their work, and in telling the world what goes on in university research departments.
Anonymous Members of the Peninsula Public Involvement Group, Kristin Liabo, Siobhan O’Dwyer   +2 more
doaj   +1 more source

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Research Involvement and Engagement, 2021
Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small, Bie Nio Ong, Annmarie Lewis, Dawn Allen, Nigel Bagshaw, Papreen Nahar, Caroline Sanders, the DEPEND team   +7 more
doaj   +1 more source

The public and patient involvement imperative in Ireland: Building on policy drivers

Frontiers in Public Health, 2022
What can we learn from the history of Public and Patient Involvement (PPI) in healthcare and research across global jurisdictions? Depending on region and context, the terminology and heritage of involvement in research vary.
Meghan Gilfoyle, Meghan Gilfoyle, Anne MacFarlane, Anne MacFarlane, Ailish Hannigan, Ailish Hannigan, Vikram Niranjan, Zoe Hughes, Jon Salsberg, Jon Salsberg   +9 more
doaj   +1 more source

Incorporating usability evaluation into iterative development of an online platform to support research participation in Parkinson’s disease: a mixed methods protocol

BMJ Open, 2023
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin, Edward Meinert, Camille B Carroll, John Whipps, Sue Whipps, Rebecca Chapman, Marie-Louise Zeissler, Kate Hockey, Philip Hockey   +8 more
doaj   +1 more source

Correction to: Abstracts from the NIHR INVOLVE Conference 2017

Research Involvement and Engagement, 2018
Correction After publication of this supplement [1], it was brought to our attention that errors were apparent in the following abstracts and are included in this correction.
Elspeth Mathie, Helena Wythe, Diane Munday, Paul Millac, Graham Rhodes, Nick Roberts, Jean Simpson, Nat Barden, Penny Vicary, Amander Wellings, Fiona Poland, Julia Jones   +11 more
doaj   +1 more source

Innovative Patient Involvement During Covid-19: Keeping Patients at the Heart of HTA

Frontiers in Medical Technology, 2021
The COVID-19 pandemic and lockdown measures in the United Kingdom resulted in significant challenges and created opportunities for innovation to keep patients at the heart of HTA.
Mark Rasburn, Helen Crosbie, Amanda Tonkinson, David Chandler, Tasneem Dhanji, Stephen Habgood, Stella O'Brien   +6 more
doaj   +1 more source

Co-creation of a complex, multicomponent rehabilitation intervention and feasibility trial protocol for the PostUraL tachycardia Syndrome Exercise (PULSE) study

Pilot and Feasibility Studies, 2023
Background There is a dearth of research to support the treatment of people with postural tachycardia syndrome (PoTS). Despite expert consensus suggesting exercise is recommended for this patient group, there are no randomised control trials examining ...
Gemma Pearce, Nikki Holliday, Harbinder Sandhu, Helen Eftekhari, Julie Bruce, Emma Timms, Laura Ablett, Lesley Kavi, Jane Simmonds, Rebecca Evans, Paul Magee, Richard Powell, Shane Keogh, Gordon McGregor   +13 more
doaj   +1 more source

Co-creation of a Patient-Reported Outcome Measure for Older People Living with Frailty Receiving Acute Care (PROM-OPAC)

Journal of Patient Experience, 2023
Older people living with frailty emphasize autonomy and function as acute healthcare outcome goals. Existing Patient-Reported Outcome Measures (PROMs) measure function but do not comprehensively address autonomy.
James D. van Oppen MRes, Timothy J. Coats MD, Simon P. Conroy PhD, Jagruti Lalseta, Vivien Richardson, Peter Riley, Jose M. Valderas PhD, Nicola Mackintosh PhD   +7 more
doaj   +1 more source

Reflections and Experiences of a Co-Researcher involved in a Renal Research Study [PDF]

, 2018
Background Patient and Public Involvement (PPI) is seen as a prerequisite for health research. However, current Patient and public involvement literature has noted a paucity of recording of patient and public involvement within research studies.
A Simpson, C Bradbury-Jones, C Mockford, C. Gamble, D Rose, David Evans, DN Wright, DS Pushparajah, E Mathie, F Loud, GL The, H McLaughlin, INVOLVE, J Bindels, J Brett, K Bergström, Kristina Staley, Laura J.E. Brown, M Fredriksson, Nicola Thomas, NIHR, Patricia Wilson, PM Wilson, R Littlechild, RE Glasgow, S Staniszewska, SR Arnstein   +26 more
core   +3 more sources