Results 101 to 110 of about 548,187 (314)

Risk Prediction Models for Recurrence After Curative Treatment of Early‐Stage or Locally Advanced Lung Cancer: A Systematic Review

Aging and Cancer, EarlyView.
This systematic review synthesizes prognostic models for survival and recurrence in resected non‐small cell lung cancer. While many models demonstrate moderate to good discrimination, few are externally validated and reporting quality is variable, limiting clinical applicability and highlighting the need for robust, transparent model development ...
Evangeline Samuel, S. Tissera, E. Paul, J. Zalcberg, R. G. Stirling   +4 more
wiley   +1 more source

Patient-reported outcome measures in arthroplasty registries

Acta Orthopaedica, 2016
The International Society of Arthroplasty Registries (ISAR) Steering Committee established the Patient-Reported Outcome Measures (PROMs) Working Group to convene, evaluate, and advise on best practices in the selection, administration, and interpretation
O. Rolfson, Kate Eresian Chenok, E. Bohm, A. Lübbeke, Geke A W Denissen, J. Dunn, S. Lyman, P. Franklin, M. Dunbar, S. Overgaard, G. Garellick, J. Dawson   +11 more
semanticscholar   +1 more source

Pediatric kidney transplantation in Europe, a clinical snapshot pilot

Frontiers in Pediatrics
BackgroundPediatric kidney transplantations are rarely performed, and there is limited knowledge about the diversity in current clinical practices across Europe.
Loes Oomen, Charlotte M. H. H. T. Bootsma-Robroeks, Charlotte M. H. H. T. Bootsma-Robroeks, Antonia H. M. Bouts, Mar Carbonell Pradas, Romy Gander, Katrin Kienzl-Wagner, Paul König, Pedro Lopez Pereira, Olivier Dunand, Sara M. F. S. Mosca, Michal Pac, Ludmila Podracka, Agnieszka A. Prytula, Maria Sangermano, Renata Vitkevic, Jakub Zieg, Loes F. M. van der Zanden, Wout F. J. Feitz, Liesbeth L. de Wall   +19 more
doaj   +1 more source

Super‐Refractory Status Epilepticus (SRSE) in a Patient With Compound Heterozygous OPA1 Variants: Case Report and Literature Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Super‐Refractory Status Epilepticus (SRSE) is a rare, life‐threatening neurological emergency with unclear etiology in many cases. Mitochondrial dysfunction, often due to disease‐causing genetic variants, is increasingly recognized as a cause, with each gene producing distinct pathophysiological mechanisms.
Pouria Mohammadi, Lara Basovic, Christopher Michael McGraw   +2 more
wiley   +1 more source

Patient Registries in Idiopathic Pulmonary Fibrosis

American Journal of Respiratory and Critical Care Medicine, 2019
Over the past decade, several large registries of patients with idiopathic pulmonary fibrosis (IPF) have been established. These registries are collecting a wealth of longitudinal data on thousands of patients with this rare disease.
D. Culver, J. Behr, J. Belperio, T. Corte, J. D. de Andrade, K. Flaherty, M. Gulati, T. Huie, L. Lancaster, J. Roman, C. Ryerson, Hyun J. Kim   +11 more
semanticscholar   +1 more source

Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research

Research and Practice in Thrombosis and Haemostasis
Background: People with hemophilia in the Netherlands log bleeds and infusions through a digital treatment diary. With the current innovations in hemophilia treatments, the use of patient-reported bleeding data will become increasingly important ...
Martijn R. Brands, Elisabeth M. Taal, Martijn Oude Voshaar, Mariëtte H.E. Driessens, Caroline M.E. van Veen, Marieke J.H.A. Kruip, Paul L. den Exter, Britta A.P. Laros-van Gorkom, Marjet A. Stein-Wit, Kathelijn Fischer, Stephan Meijer, Karina Meijer, Marlène Beijlevelt, Karin Fijnvandraat, Samantha C. Gouw   +14 more
doaj   +1 more source

High Validity of the Danish National Patient Registry for Systemic Anticancer Treatment Registration from 2009 to 2019

Clinical Epidemiology, 2021
Charles Vesteghem,1– 3 Rasmus Froberg Brøndum,1– 3 Ursula G Falkmer,1,3,4 Anton Pottegård,5 Laurids Østergaard Poulsen,1,3,4 Martin Bøgsted1– 3 1Department of Clinical Medicine, Aalborg University, Aalborg, Denmark; 2Department of Hematology, Aalborg ...
Vesteghem C, Brøndum RF, Falkmer UG, Pottegård A, Poulsen LØ, Bøgsted M   +5 more
doaj  

Brainstem and Cerebellar Volume Loss and Associated Clinical Features in Progressive Supranuclear Palsy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Introduction Progressive Supranuclear Palsy (PSP) is a neurodegenerative ‘tauopathy’ with predominating pathology in the basal ganglia and midbrain. Caudal tau spread frequently implicates the cerebellum; however, the pattern of atrophy remains equivocal.
Chloe Spiegel, Timothy P. Siejka, Cassandra Marotta, Josh J. Y. Lee, Kelly Bertram, Terence J. O'Brien, Meng Law, Lucy Vivash, Ian H. Harding   +8 more
wiley   +1 more source

Learning from registries in pulmonary arterial hypertension: pitfalls and recommendations

European Respiratory Review, 2019
Pulmonary arterial hypertension is a rare and incurable chronic disease characterised by a progressive increase in pulmonary vascular resistance and right heart failure.
K. Swinnen, R. Quarck, L. Godinas, C. Belge, M. Delcroix   +4 more
semanticscholar   +1 more source

Comparison of the American PPCM Registry Data With International Registries

Journal of the American College of Cardiology, 2016
We congratulate McNamara et al. [(1)][1] for these exciting new data on a cohort of 100 women diagnosed with peripartum cardiomyopathy (PPCM). This study adds important information with regard to ethnic differences and prognosis as the current management allows it.
Hilfiker-Kleiner, Denise, Sliwa-Hahnle, Karen, Bauersachs, J.   +2 more
openaire   +4 more sources