Results 81 to 90 of about 240,622 (166)

High risk device registries: Global value, costs, and sustainable funding [PDF]

open access: yes, 2018
BackgroundWell-designed implant registries have been shown to be a worthwhile investment, from both a health and economic perspective. However, many registries do not attain desirable capture rates or lack sufficient funding, potentially leading to ...
Stephen Mulgrew   +36 more
core   +1 more source

Comparison of the American PPCM Registry Data With International Registries

open access: yesJournal of the American College of Cardiology, 2016
We congratulate McNamara et al. [(1)][1] for these exciting new data on a cohort of 100 women diagnosed with peripartum cardiomyopathy (PPCM). This study adds important information with regard to ethnic differences and prognosis as the current management allows it.
Hilfiker-Kleiner, Denise   +2 more
openaire   +4 more sources

Patient registries for substance use disorders

open access: yes, 2014
Betty Tai,1 Lian Hu,2 Udi E Ghitza,1 Steven Sparenborg,1 Paul VanVeldhuisen,2 Robert Lindblad2 1Center for the Clinical Trials Network, National Institute on Drug Abuse, National Institutes of Health, Bethesda, MD, USA; 2The EMMES Corporation, Rockville,
Tai B   +5 more
core  

Coding practice in national and regional kidney biopsy registries

open access: yes, 2022
Background: Kidney biopsy registries all over the world benefit research, teaching and health policy. Comparison, aggregation and exchange of data is however greatly dependent on how registration and coding of kidney biopsy diagnoses are performed.
Tri Q Nguyen (14138317)   +22 more
core  

Psoriatic Arthritis Registries

open access: yesThe Journal of Rheumatology Supplement, 2015
The introduction of new biological drugs for the treatment of rheumatoid arthritis and spondyloarthritis has led to the creation of a number of registries in Europe and the United States. Most of them are sponsored by national rheumatology societies, and provide information that is useful in clinical practice concerning the clinical characteristics ...
Sarzi-Puttini, Piercarlo   +4 more
openaire   +3 more sources

Linked Registries: Connecting Rare Diseases Patient Registries through a Semantic Web Layer [PDF]

open access: yes, 2017
Patient registries are an essential tool to increase current knowledge regarding rare diseases. Understanding these data is a vital step to improve patient treatments and to create the most adequate tools for personalized medicine.
Kaliyaperumal, Rajaram   +6 more
core   +1 more source

Development and Validation of a Minimum Dataset for a Pediatric Septic Shock Registry: A Descriptive and Cross‐Sectional Study

open access: yesHealth Science Reports
Background and Aims Septic shock is the most severe form of sepsis in children, characterized by circulatory problems, cellular and metabolic damage, and a high risk of mortality. Managing data through a registry can enhance care and treatment follow‐up.
Fariba Shabani   +5 more
doaj   +1 more source

Public credit registries as a tool for bank regulation and supervision [PDF]

open access: yes
This paper is about the importance of the information in Public Credit Registries (PCRs) for supporting and improving banking sector regulation and supervision, particularly in the light of the new approach embodied in Basel III.
Girault, Matias Gutierrez, Hwang, Jane
core  

Patient registries

open access: yes, 2016
Patient registries can be either disease-based or medication-based, and have a wide range of objectives, such as describing the natural history of disease, determining clinical effectiveness or cost-effectiveness of treatments, safety monitoring, and ...
Elisabeth Lie   +2 more
core   +1 more source

National Program of Cancer Registries cancer surveillance system rationale and approach [PDF]

open access: yes
The Centers for Disease Control and Prevention (CDC) funds state and territorial health agencies to collect data on cancer. This document outlines the rationale and approach for receiving, assessing, enhancing, aggregating, and disseminating these cancer

core  

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