Results 71 to 80 of about 240,622 (166)

Predictors of uveitic macular edema and functional prognostic outcomes: real-life data from the international AIDA Network uveitis registry

Frontiers in Medicine
ObjectivesTo detect factors capable of predicting the development of macular edema (ME) throughout the disease course in patients affected by non-infectious uveitis (NIU).MethodsPredictive factors leading to the development of ME were analyzed through ...
Jurgen Sota, Germán Mejía-Salgado, Silvana Guerriero, Gaafar Ragab, Gaafar Ragab, Stefania Costi, Maria Pia Paroli, Andrea Hinojosa-Azaola, Giuseppe Lopalco, Luciana Breda, Henrique Ayres Mayrink Giardini, Alex Fonollosa, Maria Sole Chimenti, Antonio Vitale, Carla Gaggiano, Blanca Aguilar-Barrera, Laura Daniela Rodríguez-Camelo, Guillermo Arturo Guaracha-Basañez, Mohamed Tharwat Hegazy, Mohamed Tharwat Hegazy, Rosanna Dammacco, Valeria Albano, Eduardo Martín-Nares, Santiago Espinosa-Lugo, Mahmoud Ghanema, Maria Morrone, Saverio La Bella, Rafael Alves Cordeiro, Francesco Carubbi, Alessandro Conforti, Piero Ruscitti, Ibrahim AlMaglouth, Rosaria Talarico, Stefano Gentileschi, Petros P. Sfikakis, Valeria Caggiano, Matteo Piga, Adele Civino, Francesca Ricci, Maissa Thabet, Marcello Govoni, Abdurrahman Tufan, Francesca Crisafulli, Jessica Sbalchiero, Sulaiman M. Al-Mayouf, Angela Mauro, Angela Mauro, Soad Hashad, Soad Hashad, Francesca Minoia, Alma Nunzia Olivieri, Samar Tharwat, Samar Tharwat, Maria Cristina Maggio, Abdelhfeez Moshrif, Gian Domenico Sebastiani, Daniela Opris-Belinski, Gülen Hatemi, Gülen Hatemi, Haner Direskeneli, Fatma Alibaz-Öner, Lampros Fotis, José Hernández-Rodríguez, Giovanni Conti, Piercarlo Sarzi Puttini, Ombretta Viapiana, Annarita Giardina, Patrizia Barone, Kalpana Babu, Rana Hussein Amin, Perla Ayumi Kawakami-Campos, Vishali Gupta, Annamaria Iagnocco, Ali Şahin, Antonella Insalaco, Andrés González-García, Ezgi Deniz Batu, Ester Carreño, Emanuela Del Giudice, Cecilia Beatrice Chighizola, Cecilia Beatrice Chighizola, Fabrizio Conti, Alberto Balistreri, Bruno Frediani, Luca Cantarini, Alejandra de-la-Torre, Claudia Fabiani   +86 more
doaj   +1 more source

Registries

, 2017
Governments and international development agencies often fail in their efforts to build and reform property and company registries. They implement misguided policies rooted in a poor understanding of the role that registries play in the modern economy ...
Arruñada, Benito
core  

Pediatric kidney transplantation in Europe, a clinical snapshot pilot

Frontiers in Pediatrics
BackgroundPediatric kidney transplantations are rarely performed, and there is limited knowledge about the diversity in current clinical practices across Europe.
Loes Oomen, Charlotte M. H. H. T. Bootsma-Robroeks, Charlotte M. H. H. T. Bootsma-Robroeks, Antonia H. M. Bouts, Mar Carbonell Pradas, Romy Gander, Katrin Kienzl-Wagner, Paul König, Pedro Lopez Pereira, Olivier Dunand, Sara M. F. S. Mosca, Michal Pac, Ludmila Podracka, Agnieszka A. Prytula, Maria Sangermano, Renata Vitkevic, Jakub Zieg, Loes F. M. van der Zanden, Wout F. J. Feitz, Liesbeth L. de Wall   +19 more
doaj   +1 more source

Integrating Knowledge Organization Systems Registries with Metadata Registries

, 2010
This research paper explores the integration of Knowledge Organization Systems (KOS) registries with Metadata Registries (MDR), aiming to leverage the information managed within KOS to enhance MDR capabilities.
Hugo Miguel Álvaro Manguinhas, José Borbinha   +1 more
core  

Real-world bleeding rates on emicizumab: the value of using nationwide digital treatment diary data in clinical research

Research and Practice in Thrombosis and Haemostasis
Background: People with hemophilia in the Netherlands log bleeds and infusions through a digital treatment diary. With the current innovations in hemophilia treatments, the use of patient-reported bleeding data will become increasingly important ...
Martijn R. Brands, Elisabeth M. Taal, Martijn Oude Voshaar, Mariëtte H.E. Driessens, Caroline M.E. van Veen, Marieke J.H.A. Kruip, Paul L. den Exter, Britta A.P. Laros-van Gorkom, Marjet A. Stein-Wit, Kathelijn Fischer, Stephan Meijer, Karina Meijer, Marlène Beijlevelt, Karin Fijnvandraat, Samantha C. Gouw   +14 more
doaj   +1 more source

High Validity of the Danish National Patient Registry for Systemic Anticancer Treatment Registration from 2009 to 2019

Clinical Epidemiology, 2021
Charles Vesteghem,1– 3 Rasmus Froberg Brøndum,1– 3 Ursula G Falkmer,1,3,4 Anton Pottegård,5 Laurids Østergaard Poulsen,1,3,4 Martin Bøgsted1– 3 1Department of Clinical Medicine, Aalborg University, Aalborg, Denmark; 2Department of Hematology, Aalborg ...
Vesteghem C, Brøndum RF, Falkmer UG, Pottegård A, Poulsen LØ, Bøgsted M   +5 more
doaj  

Online Tool: ‘Twin Registries Worldwide’

To accompany the publication of the special issue, ‘Population-Level Data Linkages in Worldwide Twin Registries’, an online, interactive tool titled ‘Twin Registries Worldwide’ has been developed to provide an overview of twin registries across the globe.
Dmitry V. Kuznetsov, Veronika V. Odintsova   +1 more
core   +1 more source

Challenges and opportunities for HSCT outcome registries: perspective from international HSCT registries experts.

, 2014
Patient registries, frequently referred to as outcome registries, are 'organized systems' that use observational study methods to collect uniform data.
Mohty M, Gratwohl A, Aljurf M, Hussain F, Chaudhri N, Passweg J, Rizzo JD, Madrigal A, Pasquini MC, Niederweiser D, Solh HE, Szer J, Horowitz MM, Atsuta Y, Kodera Y, Ghavamzadeh A   +15 more
core   +1 more source

Immunosuppressive therapy in patients with biopsy-proven inflammatory myocardial disease: a systematic review and meta-analysis

Scientific Reports
The aim of this study was to evaluate and update the effects of immunosuppressive therapy on heart failure outcomes in patients aged 16 years or older with biopsy-proven inflammatory myocardial disease.
Bruno Stautner, Michał Tkaczyszyn, Anne Sorg, Tomasz Suchocki, Ewa Anita Jankowska   +4 more
doaj   +1 more source

Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations

Frontiers in Genetics, 2019
Sickle cell disease (SCD) is one of the most prevalent genetic conditions in sub-Saharan Africa. It is a chronic, lifelong disease often characterized by severe pain.
Nchangwi Syntia Munung, Nchangwi Syntia Munung, Victoria Nembaware, Victoria Nembaware, Jantina de Vries, Daima Bukini, Furahini Tluway, Marsha Treadwell, Marsha Treadwell, Raphael Zozimus Sangeda, Raphael Zozimus Sangeda, Gaston Mazandu, Gaston Mazandu, Mario Jonas, Mario Jonas, Vivian Paintsil, Obiageli E. Nnodu, Emmanuel Balandya, Julie Makani, Ambroise Wonkam, Ambroise Wonkam   +20 more
doaj   +1 more source