Results 51 to 60 of about 240,622 (166)

Communication and eating data collected by cerebral palsy registries [PDF]

, 2011
Purpose: Motor impairments in cerebral palsy (CP) can disrupt communication and eating. CP registries were asked for communication and eating definitions and data collection methods. Methods: CP registries staff answered a 21-question survey.
Hidecker, Mary Josephine Cooley
core   +1 more source

EVALUATION OF BETA-ADRENOBLOCKERS TREATMENT IN CARDIOVASCULAR DISEASES COMORBID WITH DIABETES IN OUTPATIENT SETTING

Кардиоваскулярная терапия и профилактика, 2017
2 FSBEIHEI.P. PavlovRyazanskyStateMedicalUniversity. Ryazan,RussiaAim. To evaluate the practice of beta-blockers (BB) usage in cardiovascular disease (CVD) patients with diabetes (DM) in two outpatient registries.Material and methods. Registry PROFILE is
N. A. Komkova, A. V. Zagrebelny, Yu. V. Lukina, M. M. Lukyanov, A. N. Vorobyov, К. G. Pereverzeva, N. P. Kutishenko, N. V. Kiseleva, S. Yu. Martsevich   +8 more
doaj   +1 more source

The Danish Schizophrenia Registry [PDF]

Clinical Epidemiology, 2016
To systematically monitor and improve the quality of treatment and care of patients with schizophrenia in Denmark. In addition, the database is accessible as a resource for research.Patients diagnosed with schizophrenia and receiving mental health care in psychiatric hospitals or outpatient clinics.
Baandrup, Lone, Cerqueira, Charlotte, Haller, Lea, Korshoej, Lene, Voldsgaard, Inge, Nordentoft, Merete   +5 more
openaire   +7 more sources

Local recurence of rectal cancer in patients with nonmetastatic disease, diagnosed in 2003 - 2005

Zdravniški Vestnik, 2015
Background: In the last decades outcomes of rectal cancer treatment are improving due to better understanding of tumor biology, neoadjuvant and adjuvant treatment and precise surgical technique, considering pathologic anatomical lines.
Miran Rems, Katja Jarm, Vesna Zadnik, Maja Primic-Žakelj   +3 more
doaj  

A National Registry of Thalassemia in Turkey: Demographic and Disease Characteristics of Patients, Achievements, and Challenges in Prevention

Turkish Journal of Hematology, 2018
Objective: The Turkish Society of Pediatric Hematology set up a National Hemoglobinopathy Registry to demonstrate the demographic and disease characteristics of patients and assess the efficacy of a hemoglobinopathy control program (HCP) over 10 years in
Yeşim Aydınok, Yeşim Oymak, Berna Atabay, Gönül Aydoğan, Akif Yeşilipek, Selma Ünal, Yurdanur Kılınç, Banu Oflaz, Mehmet Akın, Canan Vergin, Melike Sezgin Evrim, Ümran Çalışkan, Şule Ünal, Ali Bay, Elif Kazancı, Talia İleri, Didem Atay, Türkan Patıroğlu, Selda Kahraman, Murat Söker, Mediha Akcan, Aydan Akdeniz, Mustafa Büyükavcı, Güçhan Alanoğlu, Özcan Bör, Nur Soyer, Nihal Özdemir Karadaş, Ezgi Uysalol, Meral Türker, Arzu Akçay, Süheyla Ocak, Adalet Meral Güneş, Hüseyin Tokgöz, Elif Ünal, Naci Tiftik, Zeynep Karakaş   +35 more
doaj   +1 more source

Registries supporting new drug applications [PDF]

, 2017
Purpose: Knowledge of the benefits and risks of new drugs is incomplete at the time of marketing approval. Registries offer the possibility for additional, post-approval, data collection.
Arno W. Hoes, Carla J. Jonker, Mol, Peter G. M.; id_orcid, van den Berg, H. Marijke, Mol, Peter G M, Peter G.M. Mol, Kwa, Marcel S. G., Marcel S.G. Kwa, Jonker, Carla J., H. Marijke van den Berg, Hoes, Arno W., Kwa, Marcel S.G., Mol, Peter G. M., General Practice & Nursing Science, JC onderzoeksprogramma Cardiovascular Health, Circulatory Health, Epidemiology & Health Economics, Datamanagement 1   +17 more
core   +1 more source

Registries and databases A European perspective

, 2020
Registries will enable cohort studies to be performed, which are usually considered to be the best quality of observational studies. The quality of data of registries can be increased if is it possible to merge results ('crosstalk') between registries. A
Ljung, Rolf C R,, Lund University.
core   +2 more sources

Progress against lung cancer, Denmark, 2008–2022

Acta Oncologica
Background and purpose: There has been marked progress against lung cancer in Denmark. To gain further insight into the different aspects of the improvement, we examined the stage-specific incidence rates, stage-specific survival and mortality rates ...
Marianne Steding-Jessen, Henriette Engberg, Erik Jakobsen, Torben Riis Rasmussen, Henrik Møller   +4 more
doaj   +1 more source

Rare disease registries: A call to action [PDF]

, 2017
When registries collect accurate clinical data over time, they can act as fundamental support structures for patients and their families and powerful cost-effective instruments to support clinical trials and translational research to improve quality of ...
Fookes, M, John McNeil, McNeil, J, Megan Fookes, Fookes, M., Zurynski, Y., Bellgard, Matthew I., Yvonne Zurynski, McNeil, John J., Winship, Ingrid, Millis, Nicole, Alan H. Bittles, Paul Lacaze, Zurynski, Y, Bittles, A.H., Matthew Bellgard, Fookes, Megan, Bellgard, M, Millis, N., Winship, Ingrid M., Lacaze, Paul, Jaffe, A., Nicole Millis, Adam Jaffe, Ingrid Winship, Jaffe, Adam, Lacaze, P, Winship, I., Zurynski, Yvonne A., Millis, N, Bittles, AH, Lacaze, P., Zurynski, Yvonne, Bellgard, M., Jaffe, A, Bittles, Alan H., Bellgard, Matthew, Winship, I, McNeil, J., McNeil, John; id_orcid, Lacaze, Paul; id_orcid   +40 more
core   +1 more source

Value of Registries for EVAR [PDF]

European Journal of Vascular and Endovascular Surgery, 2005
There is no doubt we live in the era of evidence-based medicine. The call for evidence in any part of medical practice is nowadays stronger than ever. In contrast, however, to what happened with carotid endarterectomy, the rapid increase in the performance of which followed the publication of the randomised trials, the endovascular revolution in the ...
Liapis, CD, Kakisis, JD
openaire   +3 more sources