Results 31 to 40 of about 548,187 (314)

North American Association of Central Cancer Registries

Definitions, 2020
This information was prepared on behalf of NAACCR members by individuals active in national, state, regional and hospital cancer registry organizat ions in consultation with legal counsel and with information provided by US federal officials involved in ...
H. Howe
semanticscholar   +1 more source

Rare lysosomal disease registries: lessons learned over three decades of real-world evidence

Orphanet Journal of Rare Diseases, 2022
Lysosomal storage disorders (LSD) are rare diseases, caused by inherited deficiencies of lysosomal enzymes/transporters, that affect 1 in 7000 to 1 in 8000 newborns.
P. K. Mistry, P. Kishnani, C. Wanner, D. Dong, J. Bender, J. L. Batista, J. Foster   +6 more
doaj   +1 more source

Global surveillance of cancer survival 1995–2009: analysis of individual data for 25 676 887 patients from 279 population-based registries in 67 countries (CONCORD-2)

The Lancet, 2014
Summary Background Worldwide data for cancer survival are scarce. We aimed to initiate worldwide surveillance of cancer survival by central analysis of population-based registry data, as a metric of the effectiveness of health systems, and to inform ...
C. Allemani, H. Weir, H. Carreira, R. Harewood, D. Spika, Xiao-Si Wang, F. Bannon, Jane V Ahn, Christopher J. Johnson, A. Bonaventure, R. Marcos-Gragera, C. Stiller, G. A. E. Silva, Wanqing Chen, O. Ogunbiyi, B. Rachet, M. Soeberg, H. You, T. Matsuda, M. Bielska-Lasota, H. Storm, T. Tucker, M. Coleman   +22 more
semanticscholar   +1 more source

Successful weight loss maintenance: A systematic review of weight control registries

Obesity Reviews, 2020
Weight loss maintenance is a major challenge for obesity treatment. Weight control registries can be useful in identifying psychological and behavioural factors that could contribute to better long‐term success. The objective of this study is to describe
Catarina Paixão, C. Dias, Rui Jorge, E. Carraça, M. Yannakoulia, M. de Zwaan, S. Soini, James O Hill, P. Teixeira, I. Santos   +9 more
semanticscholar   +1 more source

Critical Points for Interpreting Patients’ Survival Rate Using Cancer Registries: A Literature Review

Journal of Epidemiology, 2018
Background: Survival rate is used to develop cancer control plans. However, there are limitations and biases when interpreting patient survival rate data.
Ayako Okuyama, Akiko Shibata, Hiroshi Nishimoto   +2 more
doaj   +1 more source

Establishing Patient Registries for Rare Diseases: Rationale and Challenges

Pharmaceutical Medicine, 2020
Globally, an estimated 350 million people are affected by a rare disease diagnosis. Knowledge limitations persist for the majority of rare conditions due to systemic and structural challenges in healthcare and research.
V. Boulanger, Marissa Schlemmer, S. Rossov, A. Seebald, P. Gavin   +4 more
semanticscholar   +1 more source

Impact of lymphadenectomy on the treatment of endometrial cancer using data from the JSOG cancer registry [PDF]

Obstetrics & Gynecology Science, 2021
Objective Regional lymph node (LN) dissection is a standard surgical procedure for endometrial cancer, but there is currently no clear consensus on its therapeutic significance. We aimed to determine the impact of regional LN dissection on the outcome of
Keiko Saotome, Wataru Yamagami, Hiroko Machida, Yasuhiko Ebina, Yoichi Kobayashi, Tsutomu Tabata, Masanori Kaneuchi, Satoru Nagase, Takayuki Enomoto, Daisuke Aoki, Mikio Mikami   +10 more
doaj   +1 more source

What Happened to the Participants of the Math Olympiad 1971? A Multiple-Case Study Concerning the Occupational Success of the Winning Team from Hungary, Math Olympiad–Occupational Success

Journal of Intelligence, 2019
The aim of this multiple-case study was to find out how the most successful team of the 1971 Mathematical Olympiad in Hungary developed professionally.
Benedikt Gasser
doaj   +1 more source

Preliminary report of Iranian Registry of Alzheimer's disease in Tehran province: A cross‐sectional study in Iran

Health Science Reports, 2022
Background and Aims Alzheimer's disease (AD) is the main cause of dementia and over the 55 million people live with dementia worldwide. We aimed to establish the first database called the Iranian Alzheimer's Disease Registry to create a powerful source ...
Javad Fahanik‐Babaei, Mohsen Sedighi, Soraya Mehrabi, Omid Pournik, Abbas Sheikh Taheri, Leila Kamalzadeh, Mahsa Zarei, Mehrdad Roghani, Fereshteh Golab, Mostafa Almasi, Afshin Etezadi, Siamak Afshin‐Majd, Seyed Kazem Malakouti, Majid Rajabi, Mehdi Moghaddasi, Gholamreza Hajati, Fatemeh Golmohammadi Khamne, Arzhang Jafari, Alireza Amanollahi, Tourandokht Baluchnejadmojarad   +19 more
doaj   +1 more source

Cardiac arrest and sudden cardiac death registries: a systematic review of global coverage

Open Heart, 2020
Background Sudden cardiac death (SCD) is a major global health problem, accounting for up to 20% of deaths in Western societies. Clinical quality registries have been shown in a range of disease conditions to improve clinical management, reduce variation
E. Paratz, L. Rowsell, D. Zentner, S. Parsons, N. Morgan, T. Thompson, P. James, A. Pflaumer, C. Semsarian, Karen Smith, D. Stub, A. La Gerche   +11 more
semanticscholar   +1 more source