Effectiveness of Thrombectomy in Stroke According to Baseline Prognostic Factors: Inverse Probability of Treatment Weighting Analysis of a Population-Based Registry [PDF]
Journal of Stroke, 2021 Background and Purpose In real-world practice, the benefit of mechanical thrombectomy (MT) is uncertain in stroke patients with very favorable or poor prognostic profiles at baseline.
Salvatore Rudilosso +42 more
doaj +1 more source
BMC Medical Research Methodology, 2019 Background The Norwegian Tonsil Surgery Register (NTSR) was launched in January 2017. The purpose of the register is to present data on tonsil surgery to facilitate improvements in patient care.
Siri Wennberg +4 more
doaj +1 more source
BMJ Open Quality, 2022 Objective Data from the Norwegian Tonsil Surgery Register (NTSR) showed large differences between the hospitals in Norway in the readmission rate due to post-tonsillectomy haemorrhage (rrPTH; range, 0%–25%; national average, 8%).
Vegard Bugten +3 more
doaj +1 more source
An assessment of the quality of the I-DSD and the I-CAH registries - international registries for rare conditions affecting sex development [PDF]
, 2017 With the proliferation of rare disease registries, there is a need for registries to undergo an assessment of their quality against agreed standards to ensure their long-term sustainability and acceptability.This study was performed to evaluate the I-DSD
Ahmed, S.F. +5 more
core +1 more source
The experience of accommodating privacy restrictions during implementation of a large-scale surveillance study of an osteoporosis medication. [PDF]
, 2016 PurposeTo explore whether privacy restrictions developed to protect patients have complicated research within a 15-year surveillance study conducted with US cancer registries.MethodsData from enrolling 27 cancer registries over a 10-year period were ...
Andrews, Elizabeth B +6 more
core +1 more source
Rare lysosomal disease registries: lessons learned over three decades of real-world evidence
Orphanet Journal of Rare Diseases, 2022 Lysosomal storage disorders (LSD) are rare diseases, caused by inherited deficiencies of lysosomal enzymes/transporters, that affect 1 in 7000 to 1 in 8000 newborns.
P. K. Mistry +6 more
doaj +1 more source
EFORT Open Reviews, 2019 Clinical registries are health information systems, which have the mission to collect multidimensional real-world data over the long term, and to generate relevant information and actionable knowledge to address current serious healthcare problems. This article provides an overview of clinical registries and their relevant stakeholders, focussing on ...
Lübbeke, A, Carr, AJ, Hoffmeyer, P
openaire +4 more sources
Journal of Epidemiology, 2018 Background: Survival rate is used to develop cancer control plans. However, there are limitations and biases when interpreting patient survival rate data.
Ayako Okuyama +2 more
doaj +1 more source
Web Service Discovery in a Semantically Extended UDDI Registry: the Case of FUSION [PDF]
, 2007 Service-oriented computing is being adopted at an unprecedented rate, making the effectiveness of automated service discovery an increasingly important challenge.
A Alazcib +13 more
core +1 more source
Impact of lymphadenectomy on the treatment of endometrial cancer using data from the JSOG cancer registry [PDF]
Obstetrics & Gynecology Science, 2021 Objective Regional lymph node (LN) dissection is a standard surgical procedure for endometrial cancer, but there is currently no clear consensus on its therapeutic significance. We aimed to determine the impact of regional LN dissection on the outcome of
Keiko Saotome +10 more
doaj +1 more source