Registries - Open Access .click

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Differences in hip fracture care in Europe: a systematic review of recent annual reports of hip fracture registries

European Journal of Trauma and Emergency Surgery, 2021
Hip fractures are of growing interest due to their increasing number, subsequent functional decline and high institutionalization rate of patients, mortality, and costs. Several process measurements are essential for hip fracture care.
Maic Werner +4 more
semanticscholar +1 more source

Nine best practices for research software registries and repositories

PeerJ Computer Science, 2022
Scientific software registries and repositories improve software findability and research transparency, provide information for software citations, and foster preservation of computational methods in a wide range of disciplines.
Task Force on Best Practices for Software Registries Al Monteil +30 more
semanticscholar +1 more source

Global surveillance of trends in cancer survival: analysis of individual records for 37,513,025 patients diagnosed with one of 18 cancers during 2000–2014 from 322 population-based registries in 71 countries (CONCORD-3)

The Lancet, 2018
Background In 2015, the second cycle of the CONCORD programme established global surveillance of cancer survival, as a metric of the effectiveness of health systems and to inform global policy on cancer control.
C. Allemani +499 more
semanticscholar +1 more source

ART in Europe, 2016: results generated from European registries by ESHRE

Human Reproduction Open, 2020
STUDY QUESTION What are the reported data on cycles in ART, IUI and fertility preservation (FP) interventions in 2016 as compared to previous years, as well as the main trends over the years?
Orion Eduard Heinz Elena Oleg Kris Christine Devleta Ire Gliozheni Hambartsoumian Strohmer Petrovskaya Tish +70 more
semanticscholar +1 more source

Collection and Reporting of Patient-reported Outcome Measures in Arthroplasty Registries: Multinational Survey and Recommendations

Clinical Orthopaedics and Related Research, 2021
Background Patient-reported outcome measures (PROMs) are validated questionnaires that are completed by patients. Arthroplasty registries vary in PROM collection and use. Current information about registry collection and use of PROMs is important to help
E. Bohm +14 more
semanticscholar +1 more source

Effectiveness of Thrombectomy in Stroke According to Baseline Prognostic Factors: Inverse Probability of Treatment Weighting Analysis of a Population-Based Registry [PDF]

Journal of Stroke, 2021
Background and Purpose In real-world practice, the benefit of mechanical thrombectomy (MT) is uncertain in stroke patients with very favorable or poor prognostic profiles at baseline.
Salvatore Rudilosso +42 more
doaj +1 more source

Changing cancer survival in China during 2003-15: a pooled analysis of 17 population-based cancer registries.

Lancet Global Health, 2018
BACKGROUND From 2003 to 2005, standardised 5-year cancer survival in China was much lower than in developed countries and varied substantially by geographical area.
H. Zeng +43 more
semanticscholar +1 more source

Providing quality data in health care - almost perfect inter-rater agreement in the Norwegian tonsil surgery register

BMC Medical Research Methodology, 2019
Background The Norwegian Tonsil Surgery Register (NTSR) was launched in January 2017. The purpose of the register is to present data on tonsil surgery to facilitate improvements in patient care.
Siri Wennberg +4 more
doaj +1 more source

Reducing post-tonsillectomy haemorrhage: a multicentre quality improvement programme incorporating video-based cold technique instruction

BMJ Open Quality, 2022
Objective Data from the Norwegian Tonsil Surgery Register (NTSR) showed large differences between the hospitals in Norway in the readmission rate due to post-tonsillectomy haemorrhage (rrPTH; range, 0%–25%; national average, 8%).
Vegard Bugten +3 more
doaj +1 more source

The microRNA Registry [PDF]

Nucleic Acids Research, 2004
The miRNA Registry provides a service for the assignment of miRNA gene names prior to publication. A comprehensive and searchable database of published miRNA sequences is accessible via a web interface (http://www.sanger.ac.uk/Software/Rfam/mirna/), and all sequence and annotation data are freely available for download.
openaire +3 more sources

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