Results 91 to 100 of about 240,622 (166)

Calmodulinopathies: the need for a registry

Europace
Abstract Calmodulinopathies are very rare genetic disorders associated with a high risk for sudden cardiac death. Disease-causing variants in 1 of the 3 identical CALM genes cause severe forms of long QT syndrome, catecholaminergic polymorphic ventricular tachycardia, or idiopathic ventricular fibrillation, and there are many ...
Peter J. Schwartz, Lia Crotti
openaire   +6 more sources

A Review of Major Danish Biobanks: Advantages and Possibilities of Health Research in Denmark

Clinical Epidemiology, 2023
Kristina Laugesen,1 Jonas Mengel-From,2,3 Kaare Christensen,2– 4 Jørn Olsen,1 David M Hougaard,5,6 Lasse Boding,7 Anja Olsen,8,9 Christian Erikstrup,10 Merete Lund Hetland,11,12 Estrid Høgdall,12,13 Alisa D Kjaergaard,14 Erik Sørensen,15 Anja Brügmann,16
Laugesen K, Mengel-From J, Christensen K, Olsen J, Hougaard DM, Boding L, Olsen A, Erikstrup C, Hetland ML, Høgdall E, Kjaergaard AD, Sørensen E, Brügmann A, Petersen ERB, Brandslund I, Nordestgaard BG, Jensen GB, Skajaa N, Troelsen FS, Fuglsang CH, Svingel LS, Sørensen HT   +21 more
doaj  

National Program of Cancer Registries Program Standards, 2017 to 2022 [PDF]

The following strategies are CDC\u2019s Program Standards for the National Program of Cancer Registries (NPCR). These standards are based on authority provided to the CDC under the Public Health Service Act (Title 42, Chapter 6A, Sub-Chapter II, Part M, \

core  

Cancer registries and data protection in the age of health digital interoperability in Europe: The perspective of the Italian Network of Cancer Registries (AIRTUM)

Frontiers in Oncology, 2022
Walter Mazzucco, Walter Mazzucco, Walter Mazzucco, Fabrizio Stracci, Fabrizio Stracci, Gemma Gatta, Gemma Gatta, Angelo D’Argenzio, Angelo D’Argenzio, Ettore Bidoli, Ettore Bidoli, Simona Carone, Simona Carone, Susanna Vitarelli, Susanna Vitarelli, Maurizio Castelli, Maurizio Castelli, Santo Fruscione, Francesco Vitale   +18 more
doaj   +1 more source

The Validity of Registered Synchronous Peritoneal Metastases from Colorectal Cancer in the Danish Medical Registries

Clinical Epidemiology, 2020
Sissel Ravn,1 Christian F Christiansen,2 Rikke H Hagemann-Madsen,3 Victor J Verwaal,1 Lene H Iversen1,4 1Department of Surgery, Aarhus University Hospital, Aarhus, Denmark; 2Department of Clinical Epidemiology, Aarhus University Hospital, Aarhus, Denmark;
Ravn S, Christiansen CF, Hagemann-Madsen RH, Verwaal VJ, Iversen LH   +4 more
doaj  

Alteplase - analysis of clinical trial registries

, 2015
Alteplase ClinicalTrials.gov (completed before Jan 1, 2013) = 126 registries (NCT numbers) PubMed: Not found = 83 Found (registries matching an article indexed by PubMed) = 43 (73 PubMed articles) Alteplase database of clinical trial registries: open ...
Marc Casañas Escarré (769355), Jorge H Ramirez (587826), Gustavo Alonso Villegas (769356)   +2 more
core   +1 more source

Police Officers' Perceptions of Interviewing Offenders on Sex Offender Registries

, 2014
Police interviews with offenders form an important component of the sex offender registry monitoring process. This study provides an analysis of police professionals' perceptions of the benefits and process of interviewing offenders on sex offender ...
Benson, M, Graffam, J, Day, A, Powell, M, Vess, J   +4 more
core   +1 more source

Clinical and genetic registries in psoriatic disease

, 2008
Clinical and genetic registries are an important tool in studying psoriasis and psoriatic arthritis (PsA). They assist in delineating disease features and are crucial in defining phenotype and identifying genetic and other markers of disease expression ...
Helliwell, Philip S., Behrens, Frank, Mease, Philip J., Rahman, Proton, Ståhle, Mona, Krueger, Gerald G., Lindqvist, Ulla,, Dutz, Jan P., Qureshi, Abrar A., Gladman, Dafna D., Ujfalussy, Ilona, Carneiro, Sueli, Gottlieb, Alice B.   +12 more
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“Anything That Can Be a Danger to the Public”: Desire to Extend Registries Beyond Sex Offenses

, 2010
Registries are no longer limited to sex offenders, as other types of registries, such as a dangerous dog registry and a gun offender registry, have appeared.
N.K. Butler, Poco D. Kernsmith, Sarah W. Craun   +2 more
core   +1 more source

Linkage between the Danish National Health Service Prescription Database, the Danish Fetal Medicine Database, and other Danish registries as a tool for the study of drug safety in pregnancy

Clinical Epidemiology, 2016
Lars H Pedersen,1,2 Olav B Petersen,1,2 Mette Nørgaard,3 Charlotte Ekelund,4 Lars Pedersen,3 Ann Tabor,4 Henrik T Sørensen3 1Department of Clinical Medicine, Aarhus University, 2Department of Obstetrics and Gynecology, 3Department of ...
Pedersen LH, Petersen OB, Nørgaard M, Ekelund C, Pedersen L, Tabor A, Sørensen HT   +6 more
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