Results 111 to 120 of about 64,613,075 (301)

From Adult to Adolescent: Alignment in Clinical Trials and Outcomes in Axial Spondyloarthritis

Arthritis Care &Research, EarlyView.
Spondyloarthritis (SpA) is a group of chronic inflammatory diseases encompassing axial and peripheral forms, with up to 20% of patients developing symptoms before age 16. Despite this substantial pediatric burden, treatment options for juvenile‐onset SpA (JSpA), particularly those with axial disease (axJSpA), remain limited.
Pamela F. Weiss, Judith A. Smith, Robert A. Colbert, Erin Treemarcki, Michael H. Weisman, Walter P. Maksymowych, Hermine I. Brunner, for the Childhood Arthritis and Rheumatology Research Alliance, Spondyloarthritis Research and Treatment Network, and Pediatric Rheumatology Collaborative Study Group Advisory Council   +9 more
wiley   +1 more source

NUANCE : Newsletter of UbuntuNet Alliance: Networks, Collaboration, Education, volume 3, issue 1, May 2010

, 2010
UbuntuNet is the regional network backbone that interconnects National Research and Education Networks (NRENs) to other regional networks in Africa. This issue marks the third year of publication for the e-newsletter NUANCE, and the fifth year for the ...
UbuntuNet Alliance
core   +1 more source

Understanding the Burden of Orofacial Involvement and Patient Treatment Preferences in Systemic Sclerosis: Results From a Large International Survey

Arthritis Care &Research, EarlyView.
Objective Orofacial manifestations are significantly impactful in patients with systemic sclerosis (SSc) yet remain understudied, with no dedicated clinical guidelines to inform their management. Methods An international online survey comprised38 questions addressing orofacial manifestations of SSc, including patients’ confidence in their treating ...
Eleni Deligianni, Lee Shapiro, Deana Gibbs, Zsuzsanna H. McMahan, Michael Hughes   +4 more
wiley   +1 more source

The Research Data Alliance: Building Bridges to Enable Scientific Data Sharing

, 2016
International audienceThe Research Data Alliance is an international organization which aims at building the technical and sociological bridges that enable the open sharing of scientific data.
Genova, Francoise
core   +3 more sources

Fostering global data sharing: highlighting the recommendations of the Research Data Alliance COVID-19 working group. [PDF]

Wellcome Open Res, 2020
Austin CC, Bernier A, Bezuidenhout L, Bicarregui J, Biro T, Cambon-Thomsen A, Carroll SR, Cournia Z, Dabrowski PW, Diallo G, Duflot T, Garcia L, Gesing S, Gonzalez-Beltran A, Gururaj A, Harrower N, Lin D, Medeiros C, Méndez E, Meyers N, Mietchen D, Nagrani R, Nilsonne G, Parker S, Pickering B, Pienta A, Polydoratou P, Psomopoulos F, Rennes S, Rowe R, Sansone SA, Shanahan H, Sitz L, Stocks J, Tovani-Palone MR, Uhlmansiek M, Research Data Alliance.   +36 more
europepmc   +1 more source

What can the Research Data Alliance do for the social sciences?

, 2019
Presentation from the kick-off workshop of the Danish National RDA node "What is the Research Data Alliance and how can it benefit you?" at Copenhagen Business School, Copenhagen, on Friday, 14th of June 2019. The presentation provides an overview of RDA interest and working groups that are useful for social science researchers.
Buss, Mareike, Fink, Anne Sofie
openaire   +1 more source

Research Data Alliance Pathways: RDA 21st Plenary Synopsis

, 2023
About the RDA Pathways The Research Data Alliance (RDA) Pathways were created by the RDA’s Technical Advisory Board to help community members navigate all RDA activities. This synopsis enhances the RDA's 21st Plenary experience by providing an overview of all pathways plus their relevant Plenary sessions, RDA groups, recommendations and outputs, and ...
Connie Clare, Fares Dhane
openaire   +1 more source

Salt Lake Climbers Alliance 2018 Dues at Work poster

, 2019
Poster with data on Salt Lake Climbers Alliance accomplishments with member ...
Salt Lake Climbers Alliance
core  

The Development of Rheumatoid Arthritis–Specific Ambulatory Care–Sensitive Conditions: Results of a Consensus Process

Arthritis Care &Research, EarlyView.
Objective Ambulatory care–sensitive conditions (ACSCs) serve as indicators of access, quality, and performance of the health system. This study aimed to determine rheumatoid arthritis (RA)‐specific ACSCs for use in the evaluation of care system access and quality.
Kara Irwin, Candace H. Feldman, Claire E. H. Barber, Gabriel Fabreau, Jake Jennings, Scott Patten, Cheryl Barnabe, Inflammatory Arthritis‐Specific ACSC Consensus Process Working Group   +7 more
wiley   +1 more source

NUANCE : Newsletter of UbuntuNet Alliance: Networks, Collaboration, Education, issue 11, March 2009

, 2009
UbuntuNet Alliance publishes a monthly e-bulletin, the key content of which is news from, about, or of interest to National Research and Education Networks (NRENs) in Africa.
UbuntuNet Alliance
core   +1 more source