Results 121 to 130 of about 64,613,075 (301)
Research Data Management Services of German U15
Zhishi guanli luntan[Purpose/Significance] The German U15 Alliance has paid much attention to research data management and has taken measures to achieve good results. It is worth learning the experience from what U15 has done.
Liu Yueru, Yuan Jinbo, Hua Zhiying
doaj +1 more source
Research Data Alliance Pathways: RDA 20th Plenary Synopsis
, 2023 About the RDA Pathways The Research Data Alliance (RDA) Pathways were created by the RDA’s Technical Advisory Board to help community members navigate all RDA activities. This synopsis enhances the RDA’s 20th Plenary experience by providing an overview of all pathways plus their relevant Plenary sessions, RDA groups, recommendations and outputs, and ...
Connie Clare, Fares Dhane
openaire +1 more source
Arthritis Care &Research, EarlyView.Objective To assess the validity of the Patient‐Reported Outcomes Measurement Information System (PROMIS) Pediatric measures in patients with chronic nonbacterial osteomyelitis (CNO). Methods Within the longitudinal patient registry of CNO, English‐speaking patients aged 8 years and older self‐reported PROMIS Pediatric measures of fatigue, pain ...
Mary M. Eckert +43 more
wiley +1 more source
BMJ OpenObjectives The COVID-19 pandemic disrupted healthcare services, leading to the cancellation of non-urgent tests, screenings and procedures, a shift towards remote consultations, stalled childhood immunisations and clinic closures which had detrimental ...
Zahra Movahedi Nia +7 more
doaj +1 more source
, 2009 UbuntuNet Alliance is the regional Research and Education Networking organization for Eastern and Southern Africa. Updated membership shows that UbuntuNet Alliance is the regional network backbone that interconnects National Research and Education ...
UbuntuNet Alliance
core
, 2015 The purpose of this paper is less to answer questions than to ask them, and less to define ‘carers’ than to understand who they are. In particular, its purpose is to ask why the label ‘family carer’ may be rejected by some of them, or by particular ...
Care Alliance Ireland
core +1 more source
Arthritis Care &Research, EarlyView.Objective Our objective was to describe the social networks of Black individuals with rheumatic and musculoskeletal conditions and understand the clustering of health‐related behaviors to inform future community‐based, peer‐led interventions. Methods We used an adapted Personal Network Survey for Clinical Research (PERSNET) to map the personal social ...
Taussia Boadi +27 more
wiley +1 more source
The Research Data Alliance: Building Bridges to Enable Scientific Data Sharing
, 2017 The Research Data Alliance is an international organization which aims at building the technical and sociological bridges that enable the open sharing of scientific data. It is a remarkable forum to discuss all the aspects of scientific data sharing with colleagues from all around the world: in November 2016, it has 4 500 members from 115 countries ...
openaire +3 more sources
Arthritis Care &Research, Accepted Article.Objective We describe the frequency, risk factors, severity, and management of actionable and serious adverse events (AAE and SAE) in children with newly diagnosed Juvenile Idiopathic Arthritis (JIA) in Canada. Methods We enrolled patients within 3 months of JIA diagnosis in the Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) Registry,
Bashayer Alnuaimi +10 more
wiley +1 more source
What is the Research Data Alliance and how can it benefit you?
, 2019 This is a collection of slides presented at the first event organized by the Danish node of the Research Data Alliance: "What is the Research Data Alliance and how can it benefit you?" which took place on June 14, 2019 at Copenhagen Business School, Frederiksberg, Denmark Consult the program below for links to the slides presented at the event ...
Fink, Anne Sofie +5 more
openaire +2 more sources