Results 151 to 160 of about 18,624 (215)

Enhancing the Evidence for Care in Underserved Bleeding Disorders Communities

Haemophilia, EarlyView.
ABSTRACT Background Major advances in haemophilia care have not translated equitably across all populations. Individuals with rare bleeding disorders (RBDs), people living in low‐ and lower‐middle‐income countries (LMICs) and women and girls with inherited bleeding disorders (WGWBD) continue to face significant diagnostic, therapeutic and research ...
Johnny Mahlangu
wiley   +1 more source

A Psychometric Analysis of the Haemophilia Quality of Life Questionnaire for Adults Physical Health Subscale and Total Scores: Data From the Phase 3 XTEND‐1 Trial in Patients With Severe Haemophilia A

Haemophilia, EarlyView.
ABSTRACT Introduction Bleeding episodes can impair physical functioning and cause chronic pain in haemophilia A. The Haemophilia Quality of Life Questionnaire for Adults (Haem‐A‐QoL) was administered in XTEND‐1; the Physical Health (PH) subscale evaluated Physical Health/Functioning. Aim To evaluate psychometric properties of Haem‐A‐QoL PH and estimate
Jérôme Msihid, Alfonso Iorio, Amanda Wilson, Nana Kragh, Lauren Nelson, Shanshan Qin, Annemieke Willemze   +6 more
wiley   +1 more source

Developing mapping algorithms to predict EQ-5D health utility values from Bath Ankylosing Spondylitis Disease Activity Index and Bath Ankylosing Spondylitis Functional Index among patients with Ankylosing Spondylitis

Health and Quality of Life Outcomes
Background Preference-based measures of health-related quality of life (HRQoL), such as the EQ-5D or the SF-6D, are essential for health economic evaluation. However, they are rarely included in clinical trials of ankylosing spondylitis (AS).
Lingjia Yu, Huizhi Yang, Liyong Lu, Yingying Fang, Xianyu Zhang, Shunping Li, Chaofan Li   +6 more
doaj   +1 more source

How to Analyze Longitudinal Patient‐Reported Outcomes in Populations With High Mortality Rates

Journal of the American Geriatrics Society, EarlyView.
ABSTRACT Background Analyzing longitudinal patient‐reported outcomes (PROs) remains methodologically challenging, particularly in populations with high mortality rates during follow‐up. Many PRO studies overlook this issue, potentially leading to biased estimates and limited clinical interpretability.
Joosje C. Baltussen, Nienke A. de Glas, Saskia le Cessie, Stella Trompet, Simon P. Mooijaart, Johanneke E. A. Portielje, Frederiek van den Bos   +6 more
wiley   +1 more source

Patient Engagement Interventions to Improve Medication Management of Older Patients Across Transitions of Care: A Mixed Methods Systematic Review

Journal of Clinical Nursing, EarlyView.
ABSTRACT Aims Identify and describe patient engagement interventions used to improve medication management in older adults during transitions of care. Design A mixed‐methods systematic review. Methods A comprehensive search of all study designs was conducted.
Kelly Ottosen, Stephanie Garratt, Kerry Hwang, Grace Marconi, Pauline Wong, Gillian Kilby, Maneesh Prasad, Caitlin Deery, Elizabeth Manias   +8 more
wiley   +1 more source

Health-state utility values and their time to deterioration in informal caregivers of older patients with chronic diseases

Frontiers in Public Health
ObjectivesThis study aimed to assess health state utility values (HSUVs) in caregivers of older patients with chronic diseases receiving or not receiving social worker support.MethodsThis multicentric open-label randomized study assigned caregivers to ...
Astrid Pozet, Antoine Falcoz, Cécile Roller, Taha Jai, Aurelia Meurisse, Virginie Nerich   +5 more
doaj   +1 more source

Non‐Pharmacological Interventions for Cough in Patients With Lung Cancer: A Systematic Review and Meta‐Analysis

Journal of Clinical Nursing, EarlyView.
ABSTRACT Background Cough, a prevalent and debilitating symptom of lung cancer, remains poorly managed. Accumulating evidence on non‐pharmacological interventions for lung cancer cough necessitates systematic evaluation to assess their efficacy. Aim To synthesise evidence on non‐pharmacological interventions for managing cough in lung cancer patients ...
Mengyao Cao, Xueyan Cheng, Victor Ho‐fun Lee, Chia‐Chin Lin, Denise Shuk Ting Cheung   +4 more
wiley   +1 more source

Multi-task learning for predicting quality-of-life and independence in activities of daily living after stroke : a proof-of-concept study [PDF]

A health-related (HR) profile is a set of multiple health-related items recording the status of the patient at different follow-up times post-stroke. In order to support clinicians in designing rehabilitation treatment programs, we propose a novel multi ...
Garcia-Rudolph, Alejandro, Kelleher, John D., Nguyen, Thi Nguyet Que, Saurí, Joan   +3 more
core   +1 more source

Sleep Improvement for Metabolic Health: A Feasibility Trial of a Digital Sleep Treatment in People With Insomnia and Non‐Diabetic Hyperglycaemia

Journal of Sleep Research, EarlyView.
ABSTRACT Insomnia may play a causal role in type 2 diabetes (T2D). Addressing insomnia through cognitive behavioural therapy (CBTi) in people with non‐diabetic hyperglycaemia could potentially reduce the risk of progression to T2D. To inform a future randomised trial, we performed a feasibility study of digital CBT (dCBTi) in individuals at increased ...
Rachel Sharman, David Ray, Andrew Farmer, Poppy C. E. Green, Victoria Harris, Fredrik Karpe, Colin A. Espie, Diana Mantripp, Thomas Marjot, Niall M. McGowan, Jeremy W. Tomlinson, Simon D. Kyle   +11 more
wiley   +1 more source

Impact of cardiovascular disease on health-related quality of life among older adults in eastern China: evidence from a national cross-sectional survey

Frontiers in Public Health
ObjectiveThis study explores the health-related quality of life (HRQoL) scores of Chinese older adults with Cardiovascular Disease(CVD) using the EQ-5D-3L, the aim of this study is to investigate the association between health and HRQoL in older adults ...
Leping Wan, Leping Wan, Guangmei Yang, Guangmei Yang, Haiying Dong, Xiaoxiao Liang, Yan He   +6 more
doaj   +1 more source