Results 201 to 210 of about 85,540 (347)
An Approach to GDPR Based on Object Role Modeling [PDF]
António Gonçalves+2 more
openalex +1 more source
Ethical Biobanking in Extremely Preterm Infants: Lessons From the EPITOP Study
ABSTRACT Aim The Extremely Preterm Infant Target Optimise and Prevent (EPITOP) study aimed to develop an ethical and practical approach to biobanking salvaged residual blood samples from extremely preterm infants (< 28 weeks gestational age, GA) for biomarker research while minimising clinical risks and addressing ethical concerns. Methods Initiated in
Ulrika Sjöbom+7 more
wiley +1 more source
Six solutions for clinical study data sharing in Germany. [PDF]
Bobrov E+4 more
europepmc +1 more source
Life Outcomes in Young Adults With Early Language Difficulties: A County‐Based Register Study
ABSTRACT Aim Our aim was to explore life outcomes in young adulthood (late twenties) for children who screened positive and negative, respectively, for language difficulties at the routine visit to the Child Health Services (CHS) at 2.5 years of age.
Carmela Miniscalco+4 more
wiley +1 more source
GDPR Myopia: how a well-intended regulation ended up favouring large online platforms - the case of ad tech [PDF]
Damien Géradin+2 more
openalex +1 more source
Resurrected analysis: Navigating time between two environmental projects in Finland
Short Abstract This paper considers the ways in which research projects linger beyond their ‘official’ endings, and how to deal with this. Building on conversations on slow research, performed endings, and the complexities of data storage and analysis over time, I relate some experiences with my research on the Finnish Saimaa Ringed Seal, which ...
Katja Garson
wiley +1 more source
Case study on challenges in research with public partners: A personal data incident during recruitment for a survey study on ageing and housing. [PDF]
Zingmark M, Iwarsson S.
europepmc +1 more source