Results 81 to 90 of about 22,513 (247)
Symptoms, Diagnosis, and Treatment for Women and Girls With Hemophilia: A Narrative Review
Haemophilia, EarlyView.ABSTRACT Introduction Hemophilia is an X‐linked bleeding disorder previously thought to present only in men. This sentiment is rapidly changing as the information around women and girls’ experiences of bleeding symptoms has evolved, sparking intense discussion among researchers, clinicians, patients, and patient advocates regarding appropriate ...
Sam Hirniak +6 more
wiley +1 more source
Haemophilia, EarlyView.ABSTRACT Objectives To examine the association between patient‐reported outcome measures (PROMs) and objective measures of clinical performance in children, adolescents, and adults with haemophilia, highlighting their implications for person‐centered care.
Tatyane Oliveira Rebouças Brito +6 more
wiley +1 more source
Current State of Moderate Congenital Haemophilia A and the Need for Preventive Treatment
Haemophilia, EarlyView.ABSTRACT Introduction The severity of haemophilia A is classified by the degree of factor VIII (FVIII) deficiency, rather than by clinical manifestations. However, FVIII activity alone does not necessarily accurately reflect clinical severity such as bleeding tendency, and patients with mild‐to‐moderate haemophilia A can experience significant disease ...
Masahiro Takeyama +6 more
wiley +1 more source
The XX Factor in Hemophilia: Diagnostic, Therapeutic, and Research Gaps for Women and Girls
Haemophilia, EarlyView.ABSTRACT Introduction Hemophilia has traditionally been viewed as an X‐linked disorder affecting men and boys, with women and girls labeled as “carriers”, presumed to be clinically unaffected. This paradigm has contributed to under‐recognition, delayed diagnosis, and undertreatment of females with hemophilia‐associated genotypes despite an increasingly
Kelsey Uminski, Ellen Cusano
wiley +1 more source
Understanding the Experiences of Young People Living With Haemophilia—A UK Social Media Study
Haemophilia, EarlyView.ABSTRACT Introduction Haemophilia is a rare congenital bleeding disorder that presents significant physical and psychological challenges, especially for young people, with limited real‐world evidence about their experiences in the UK. Aim This study sought to understand the perspectives and challenges of young people living with haemophilia in the UK ...
Emma Gayton +6 more
wiley +1 more source
Khyber Medical University JournalOBJECTIVE: To investigate the association between coping strategies, meaning in life, and health-related quality of life (HRQoL) among young adults with haemophilia. METHODS: This cross-sectional study was conducted from February 2023 to August 2023 at
Zoya Zeeshan Rao, Saima Ahmad
doaj +1 more source
Publishing in Haemophilia [PDF]
Haemophilia, 2019 Mike Makris, Craig Kessler
openaire +2 more sources