Results 91 to 100 of about 22,513 (247)

Healthcare Professional Identified Priorities for a New Musculoskeletal Examination Scoring System for People With Hemophilia—an International Consensus

Haemophilia, EarlyView.
ABSTRACT Introduction The accurate physical examination of musculoskeletal (MSK) health is an essential part of proactive best practice care of people with hemophilia and must be consistently monitored in clinic. In response to current MSK tool limitations, the Musculoskeletal Health Expert Working Group (MSKH EWG) of the International Prophylaxis ...
Lizabeth Teshler, Audrey Abad, Magnus Aspdahl, Laura Avila, Melanie Bladen, Sharon Funk, Pamela Hilliard, Judy Ann John, Marilyn Manco‐Johnson, Janjaap van der Net, David Stephensen, Jean St‐Louis, Merel Timmer, Beth Boulden Warren, F. Virginia Wright, Nichan Zourikian, Brian M. Feldman   +16 more
wiley   +1 more source

HAEMATURIA IN PATIENTS WITH HAEMOPHILIA

Zdravniški Vestnik, 2008
BACKGROUND A review article intends to discover a cause, frequency, treatment and complications ofhaematuria in patients with haemophilia. METHODS A review of PubMed (1969–2007) for key words haemophilia, haematuria and renaldisease. RESULTS Four studies
Majda Benedik Dolničar
doaj  

From Bleeding Control to Health: Implementing Multidimensional and Multidisciplinary Hemophilia Care Into the Era of Therapeutic Innovation

Haemophilia, EarlyView.
ABSTRACT Introduction Over the past decade, hemophilia management has been transformed by modern prophylactic strategies, achieving dramatic reductions in annualized bleeding rates (ABR), often approaching zero. However, the conceptual evolution of hemophilia care toward multidimensional health assessment and comprehensive multidisciplinary management ...
Nicolas Giraud, Yesim Dargaud
wiley   +1 more source

The Burden of Prior Authorizations in Bleeding Disorder Specialty Drugs

Haemophilia, EarlyView.
ABSTRACT Introduction Prior authorizations (PAs) are widely used to control healthcare costs and ensure appropriate use of high‐cost therapies, but they often create undue administrative burdens. In haemophilia care, timely access to specialty medications is critical, yet Haemophilia Treatment Centres (HTCs) must frequently navigate payer‐driven PA ...
Lisa Littner, Jami Jones, Trudie Milner, Elinor Borgert   +3 more
wiley   +1 more source

Impact of Haemophilia -A Disease on Social Life, Education and Employment   of Caregivers and Patients

Pakistan Armed Forces Medical Journal
  Objective: To determine the impact of Haemophilia-A disease on social life, education and employment of caregivers and patients Study Design: Cross-sectional study Place and Duration of Study: Hemophilia Patients Welfare Society Centre ...
Muhammad Arif Sadiq, Suhaib Ahmed, Sunila Tashfeen, Ayesha Ellahi   +3 more
doaj   +1 more source

The Haemophilia Health Journey: Experiences and Unmet Care Needs of Caregivers and Their Young Children

Haemophilia, EarlyView.
ABSTRACT Introduction Understanding patients’ and caregivers’ experiences, values and needs is essential to implement patient‐centred care. However, specific insights into how young children with haemophilia and their caregivers experience the entire care trajectory, from diagnosis onwards, remain limited.
Caroline M. A. Mussert, Eva K. Kempers, Evelien S. van Hoorn, Ekin Kerimoğlu, Marijke Melles, Mathieu A. Gielen, Armaĝan Albayrak, Kees T. B. Ahaus, Simone H. Reitsma, Samantha C. Gouw, Marjon H. Cnossen, the PARTITURA study group and SYMPHONY consortium   +11 more
wiley   +1 more source

Public health assistance for people with haemophilia in Brazil (PATCH study): a cross-sectional study protocol

BMJ Open
Introduction Haemophilia is a rare inherited bleeding disorder with complex support and costly treatment. Comprehensive care for people with haemophilia (PwH) must take place in structured and continuously evaluated treatment centres.
Sandro Rogerio Rodrigues Batista, Maria do Rosário Ferraz Roberti, Yasmin Ricarda e Azevedo Géa, Isadora Almeida Marinho, Pollyana Pinheiro Inácio, Ricardo Mesquita Camelo, Thiago Figueiredo de Castro   +6 more
doaj   +1 more source

The history of haemophilia*,† [PDF]

Haemophilia, 1976
openaire   +3 more sources

A Unique Comparison of Tooth Extraction Before and After Emicizumab Prophylaxis in a Patient With Haemophilia A and Inhibitors

Case Reports in Dentistry
Haemophilia A is an inherited X-linked bleeding disorder caused by Factor VIII deficiency; approximately 30% of the patients with haemophilia A develop inhibitors against Factor VIII.
Miki Zaizen, Takahiro Yagyuu, Sachiko Yata, Hiroshi Nakamura, Mitsuhiko Imada, Nobuhiro Yamakawa   +5 more
doaj   +1 more source

Population‐Level Real‐World Healthcare Costs in Men and Women With Haemophilia A

Haemophilia, EarlyView.
ABSTRACT Introduction Even with modern prophylaxis options, people living with haemophilia have significantly lower quality of life and joint health outcomes than those without. Aim Our goal was to determine if real‐world health‐system costs are higher for people living with haemophilia A compared to those without and determine how joint‐health state ...
Sam Hirniak, Samantha S. M. Drover, Andrea N. Edginton, Dagmar M. Hajducek, Alfonso Iorio, Mhd. Wasem Alsabbagh, William W. L. Wong   +6 more
wiley   +1 more source