Results 41 to 50 of about 288,121 (268)

Financial Burden Associated With Hospitalisation Among Families of Childhood Brain Tumours in Australia

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Families of children with cancer experience significant financial strain, even with universal healthcare. Indirect costs, such as productivity losses and non‐medical expenses, are rarely included in economic evaluations, and little is known about how effectively financial aid programmes alleviate this burden. Childhood brain tumours
Megumi Lim   +8 more
wiley   +1 more source

Fashioning cultural entrepreneurship. The role of heritage in dissemination, didactic and research activities among stakeholders

open access: yesEuropean Journal of Cultural Management and Policy
As a Cultural and Creative Industry (CCIs), Fashion promotes the establishment of cultural ecosystems, defined as environments in which different actors are driven to produce and consume artefacts, services, and strategies highly dependent on heritage ...
Federica Vacca, Angelica Vandi
doaj   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu   +8 more
wiley   +1 more source

The management of organisational culture [PDF]

open access: yes, 2000
Culture is a term that is used regularly in workplace discussions. It is taken for granted that we understand what it means. The purpose of this paper is to identify and discuss some of the significant issues relating to the management of an organisation'
Millett, Bruce, Willcoxson, Lesley
core  

‘They Need to Hear You Say It’: Healthcare Professionals’ Perspectives on Barriers and Enablers to End‐of‐Life Discussions With Adolescents and Young Adults With Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT End‐of‐life conversations with adolescents and young adults (AYAs) with cancer rarely occur without the guidance of healthcare professionals. As a part of the ‘Difficult Discussions’ study, focused on palliative care and advance care planning discussions with AYAs with cancer, we investigated the factors that healthcare professionals identify ...
Justine Lee   +9 more
wiley   +1 more source

Becoming a craft entrepreneur: reviving heritage through tradition, innovation, and community in the ceramic ecosystem of Nove

open access: yesEuropean Journal of Cultural Management and Policy
This paper focuses on the concept of craft entrepreneurship, focusing on the career trajectory of Pol Polloniato, an “artiere”—someone who merges artistic vision with traditional craftsmanship—and a renowned ceramist from Nove, Bassano del Grappa, Italy.
Francesca Leonardi, Luca Pareschi
doaj   +1 more source

Current Condition of the Student Loan Fund for Students in the Science and Technology Faculty Group at Mahasarakham University

open access: yesJournal of Organizational Innovation and Culture, 2023
The objective of this research is to study the current condition of the student loan fund for students in the Science and Technology Faculties group at Mahasarakham University and to explore guidelines for its development.
Ratchanoo Kanumarn
doaj  

A phenomenology of intra-play for sustainability research within heritage landscapes

open access: yesForskning og Forandring, 2020
In this article, we explore a phenomenology of intra-play for sustainability research, integral to the processes of transforming both cultural and natural heritage landscapes.
Benjamin Richards, Per Ingvar Haukeland
doaj   +1 more source

The institutional foundations of environmental governance regimes: The implications of Chinese practices [PDF]

open access: yes, 2009
Ecological threats continue to proliferate at a worrisome pace and in many circumstances defy efforts to neutralize them. Mounting concerns about the gap between the scale of biophysical disruption and policy performance have stimulated both academic ...
Mushkat, M, Mushkat, R
core  

Defining Roles in Pediatric Palliative Care: Perspectives From Oncology and Palliative Care Teams

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Early integration of pediatric palliative care (PPC) is associated with improved symptom management, quality of life, and healthcare utilization for children with cancer. Despite this, variation persists in how PPC is understood, operationalized, and integrated within pediatric oncology programs. In particular, ambiguity surrounding
Leeat Granek   +13 more
wiley   +1 more source

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