Results 31 to 40 of about 15,582,923 (344)

Accelerating Rare Disease Drug Development: Lessons Learned from Muscular Dystrophy Patient Advocacy Groups

Therapeutic Innovation and Regulatory Science, 2020
With scientific and molecular advancements related to disease pathogenesis, advances in gene and stem cell therapies, and the promise of lucrative markets for biopharmaceutical companies, there has been a rapid expansion in the number of potential new ...
Raymond A. Huml, J. Dawson, M. Bailey, Nermina Nakas, Jane Williams, M. Kolochavina, Jonathan R. Huml   +6 more
semanticscholar   +1 more source

Meaningful Fissures: The Value of Divergent Agendas in Patient Advocacy

American Journal of Bioethics, 2020
Patient advocacy organizations emerged in the 1950s to collectivize patient power and promote patient’s shared interests and rights.
J. Richardson, R. Sharp
semanticscholar   +1 more source

Impact of progressive familial intrahepatic cholestasis on caregivers: caregiver-reported outcomes from the multinational PICTURE study

Orphanet Journal of Rare Diseases, 2022
Background Progressive familial intrahepatic cholestasis (PFIC) is a spectrum of rare genetic diseases characterized by inadequate bile secretion that requires substantial ongoing care, though little research is published in this area.
Claudia Mighiu, Sonia O’Hara, Enrico Ferri Grazzi, Karen F. Murray, Jörn M. Schattenberg, Emily Ventura, Melanie Karakaidos, Alison Taylor, Harpreet Brrang, Anil Dhawan, Jose Willemse, Alan Finnegan   +11 more
doaj   +1 more source

The Developing Role of the Defense Lawyer in Mental Health Litigation [PDF]

, 1977
Hogg Foundation for Mental ...
Dix, George
core   +1 more source

A survey of caregiver burden in those providing informal care for patients with schizophrenia or bipolar disorder with agitation: results from a European study

Annals of General Psychiatry, 2018
Background Agitation is a common feature of bipolar disorder and schizophrenia. Previous research indicates that specific symptoms impact caregiver burden in these conditions, but the impact of agitation on caregiver experience is poorly understood.
Sophee Blanthorn-Hazell, Alfredo Gracia, Jenna Roberts, Anca Boldeanu, Davneet Judge   +4 more
doaj   +1 more source

Patient Advocacy for Beginners [PDF]

AMA Journal of Ethics, 2011
Though the lack of consensus about the proper role of advocacy in physicians' professional lives makes it unlikely that medical schools will focus on it, those who wish to bring about change can do so without formal training.
openaire   +2 more sources

Barriers to practicing patient advocacy in healthcare setting

Nursing Open, 2019
To explore barriers to practicing patient advocacy in healthcare setting.
C. Nsiah, Mate Siakwa, Jerry P K Ninnoni
semanticscholar   +1 more source

From observation to action: a qualitative interview study of factors that influence the reporting of observations of unprofessional conduct in healthcare settings

BMJ Open Quality
Background Unprofessional behaviour in healthcare settings can undermine patient safety, erode team morale, and if not addressed, negatively impact organisational culture.
William Martinez, Gerald B Hickson, William O Cooper, Lynn E Webb, Michelle Troyer, Nicolette M Kostiw   +5 more
doaj   +1 more source

Characterizing the experience of agitation in patients with bipolar disorder and schizophrenia

BMC Psychiatry, 2018
Background Agitation is a common manifestation of bipolar disorder and schizophrenia which includes symptoms ranging from inner tension and unease to violence and aggression.
Jenna Roberts, Alfredo Gracia Canales, Sophee Blanthorn-Hazell, Anca Craciun Boldeanu, Davneet Judge   +4 more
doaj   +1 more source

US, EU, and Japanese Regulatory Guidelines for Development of Drugs for Treatment of Alzheimer’s Disease: Implications for Global Drug Development

Clinical and Translational Science, 2020
Drug development guidelines from regulatory authorities provide important information to sponsors on requirements for clinical evidence needed to support approval of new drugs.
Anne Vinther Morant, Henrik Tang Vestergaard, Anders Blædel Lassen, Vaidrius Navikas   +3 more
doaj   +1 more source