Standards for UNiversal reporting of patient Decision Aid Evaluation studies: the development of SUNDAE Checklist [PDF]
Background: Patient decision aids (PDAs) are evidence-based tools designed to help patients make specific and deliberated choices among healthcare options.
Abhyankar, P +13 more
core +2 more sources
ABSTRACT Hemoglobinopathies are prevalent globally; diagnosis is complex in high genetic admixture populations like Brazil. We report, in two pediatric siblings, the first documented cases in Brazil of heterozygosity for hemoglobin (Hb) O‐Arab with coinheritance of α‐thalassemia (αα/−α4.2; −α3.7/−α4.2), resulting in microcytic and hypochromic anemia ...
Elisângela de Souza Miranda Muynarsk +9 more
wiley +1 more source
Disclosing conflicts of interest in patient decision aids [PDF]
In 2005, the International Patient Decisions Aid Standards (IPDAS) Collaboration developed quality criteria for patient decisions aids; one of the quality dimensions dealt with disclosure of conflicts of interest (COIs). The purposes of this paper are to review newer evidence on dealing with COI in the development of patient decision aids and to ...
Barry, MJ +5 more
openaire +4 more sources
Determining information for inclusion in a decision-support intervention for clinical trial participation : A modified Delphi approach [PDF]
Peer ...
Campbell, Marion K +4 more
core +1 more source
ABSTRACT Background Neuropsychological complications may impair the qualitative prognosis of patients with pediatric brain tumors. However, multifaceted evaluations cannot be conducted in all patients because they are time consuming and burdensome for patients.
Ami Tabata +9 more
wiley +1 more source
A systematic development process for patient decision aids [PDF]
The original version of the International Patient Decision Aid Standards (IPDAS) recommended that patient decision aids (PtDAs) should be carefully developed, user-tested and open to scrutiny, with a well-documented and systematically applied development process. We carried out a review to check the relevance and scope of this quality dimension and, if
Coulter, A. +5 more
openaire +5 more sources
Empirical relationships between health literacy and treatment decision making : A scoping review of the literature [PDF]
Copyright © 2014 Elsevier Ireland Ltd. All rights reserved. Acknowledgements This research was supported by a Joseph Armand Bombardier Doctoral Scholarship awarded to Leslie J. Malloy-Weir by the Social Sciences and Humanities Research Council of Canada.
Charles, Cathy +3 more
core +1 more source
Using patient decision aids to promote evidence-based decision making [PDF]
Evidence-based medicine integrates clinical experience with patients' values and the best available evidence.1 In the past, clinicians took responsibility not only for being well informed about the benefits and harms of medical options but also for judging their value in the best interests of the patients.
openaire +2 more sources
Providing information about options in patient decision aids [PDF]
Legal, ethical, and psychological arguments indicate that patients need to receive information about their health situations before their care decisions are made. Patient decision aids (PtDAs) are designed to help patients make decisions; therefore, they should provide information that results in patients understanding their health situation.
Feldman-Stewart, Deb +7 more
openaire +2 more sources
Dynamic Predictions with Time-Dependent Covariates in Survival Analysis using Joint Modeling and Landmarking [PDF]
A key question in clinical practice is accurate prediction of patient prognosis. To this end, nowadays, physicians have at their disposal a variety of tests and biomarkers to aid them in optimizing medical care.
Andrinopoulou, Eleni-Rosalina +5 more
core

